Kim's NEC Journey- NeuroEndocrine Ovarian Cancer

Kim's NEC Journey- NeuroEndocrine Ovarian Cancer I'm a 36yo mum and wife, spreading awareness with my journey. I will share everything good, bad and very raw.

I'm diagnosed with stage 4 high grade, small & large cell NeuroEndocrine ovarian cancer as my primary and secondary Borderline Mucinous Cancer.

09/07/2026

This page was created to share my journey.

Not just my story, but to raise awareness about ovarian cancer, neuroendocrine cancer, chemotherapy, and everything that comes after a diagnosis that changes your life forever.

Looking back, my first symptoms probably started around October/November. At the time, they were easy to dismiss. If I'd paid closer attention, maybe I could have recognised them earlier.

By December, my stomach had become noticeably bloated and hard. I remember saying to my husband, "Fat is soft... not hard." I had been working so hard on my health, eating well, trying to lose weight, yet my stomach just kept getting bigger.

I saw a GP in December, but there didn't seem to be any reason to worry. Every symptom had an explanation. Maybe it was my endometriosis. Maybe it was because I'd recently stopped contraception.
Like so many women, I was reassured that it was probably just another everyday female health issue.

But something still didn't feel right.

In early January, I saw a different GP. She examined my stomach and immediately told me I needed an ultrasound asap. I was booked in for the next day.

Within 24 hours, my world changed.

The scan revealed a 17 cm tumour on my o***y.

The following day, I had an MRI. The report described it as a 20 cm solid cystic lesion with septations and increased vascularity. Even then, nobody could tell me for certain if it was cancer.
More scans, more appointments

Then came February 10.

Just one month after my first ultrasound, I had major surgery.

What they removed was bigger than we expected.

The tumour measured 33 cm and weighed 4.5kg.

And that was only the beginning.

Not long after, I received the words no one ever wants to hear.

I was diagnosed with high-grade neuroendocrine ovarian cancer.

Everything changed.

This page exists because I don't want these cancers to remain invisible. Ovarian cancer is often called the "silent" cancer because its symptoms are so easily mistaken for everyday life. Mine were.

If sharing my journey helps even one person trust their instinct.


Photos sourced from google and my tumour/surger

Chemo acne.. wtf.. of course Id get this.. I never had acne as a teen, when I turned 23, a year after my first child I h...
26/06/2026

Chemo acne.. wtf.. of course Id get this..

I never had acne as a teen, when I turned 23, a year after my first child I had horrible acne, nothing ever helped, roaccutane at 25 was the only thing that worked, then came the scars and I was diagnosed with ice pick scarring around age 28.
Well into my 30s, after years and years of treatments, regimes, skincare, dermatologists, it was finally going okay and staying at bay.

Now a set back thanks to chemo, just another thing to add to the list.

The hardest part is how painful it is, not only the acne, but having mouth sores from the chemo, so my face is hurting on the inside and out, today's the worst day ive had through the whole journey.

So here I am posting, because this is one thing i definitely didnt know could happen. Someone did tell me at the start of chemo, I had joked and said I bet I get it,
I think i jinxed myself.



Photo source https://bysarahlondon.com/blogs/journal-mindful-living/chemotherapy-acne-cancer-treatment-best-skincare-ingredients -is-chemo-acne-and-what-does-it-look-like?

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Ballarat, VIC
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