Tinas cràps Life

26/08/2026

It is beyond my understanding as to why my hair has to hurt me 😪
My arm & shoulder are burning, everything touching it hurts and its moments like this I have a strong dislike for my body.

So I have left my husband & son to fend for themselves, and put myself to bed.
Which brings its own issues.
Despite how soft the material of my pillowcase & sheets are, it burns.

Prepping for a big day tomorrow:
✔️ Work
✔️ MRI
✔️ Cook dinner

But for now, I shall live vicariously through you all ....tell me what you are up to?

26/08/2026

Today's feels.
Attempted work, managed 38 minutes.
Its always so disappointing when I cannot bend my body to my will 😭
The allodynia is next level today.

25/08/2026

I planned to adult today, but I can't wake the baby 🤣

25/08/2026

Colouring images for you ❤️

Please feel free to share.

25/08/2026

Ok, I believe this is my comfort food. So if you are wondering what to ever bake for me....here it is. Churros, cinnamon sugar and chocolate or caramel sauce. Yum.

On that note, I better prep for exercise physiology tomorrow 😱

25/08/2026

This app has been invaluable in providing data to my medical team.
I can record, multiple times a day, my pain level, what I feel, what I believe caused it, what medication I took & did it help, what else I tried to relieve my pain, where was I, plus a notes section.

Then I can show my daily average (currently 5.1) plus average pain level per day plus the highest & lowest.

🥰

24/08/2026

I only look sick when I am sick, but, there are signs when I am out and about that show I am just pushing through pain until it is home time.

There are quite a number of people in our community with invisible illnesses like ibs, fibromyalgia and crps, just to name a few.

Often these invisible illnesses come with a high mental toll also.
Feelings of failure
Inadequacy
Depression
Missing the version of them when they were well

Our beautiful town of Boonah is thankfully filled with so many caring and amazing people, but having has taught me a whole new level of understanding for those fighting silent battles.

22/08/2026

Our home away from home for the night.

My son races downhill mountain bikes so we are at the On The Edge Events - MTB Outlaw Downhill series, race 4 here at Toowoomba.

Its been a long day, so I am looking forward to bed...and yay for uber eats 🤣

Happily flare free for the weekend, so getting to enjoy catching up with the regulars from these events, as well as showing our new t-shirt and jersey.

Hope you are having a wonderful weekend, what are you up to?

22/08/2026

21/08/2026

🤣🤣 this is actually my son. He gets up me if I am folding the washing off the line, starts doing it for me.