The Angry Zebra

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So just to try and whittle down expenses I thought I would find some more food storage containers. They need to be a spe...
10/06/2026

So just to try and whittle down expenses I thought I would find some more food storage containers. They need to be a special design and I thought they might be on sale this week... result? YEP!

Not sold here any more and the suppliers that do sell it? $15 each... Meanwhile I've barely knocked on one door and while it's not going to be labelled, it's clearly the same container. $1.15... or about $1.65 posted!

If we are playing with these sorts of profit margins it's always worth throwing a few into the next order to quality control them. I know I keep going on about this but it just blows my mind.

(The second photo is just something I generated on a whim)

I don't think this know what they are protesting. Something about Aboriginal rights waving palestinian flags and build...
05/06/2026

I don't think this know what they are protesting. Something about Aboriginal rights waving palestinian flags and building a stadium that brings all nations together shouldn't be built or some s**t... Meanwhile I'm walking behind them! 😂 From the river to the sea, I'm Ashkenazi

05/06/2026

What? Wrong kind of donut?

Freedom is being able to think and speak freely without concerning yourself with the consequences and not bowing down to...
03/06/2026

Freedom is being able to think and speak freely without concerning yourself with the consequences and not bowing down to someone who shouldn't be worshipped!

I'm sorry... Do you think your eight years of study at university is more important than my twelve years of study? I'm currently battling doctors who can't admit that a trained investigator is able to keep landing punches.

I won't go into it too much but the ego of most medical professionals is their downfall. They may be great with horses but treating a zebra using the same methods is not the right thing to do!

Faaaark, it's only taken me what... Three years?I'm finally starting to feel comfortable in my stripes and learning how ...
03/06/2026

Faaaark, it's only taken me what... Three years?

I'm finally starting to feel comfortable in my stripes and learning how to throw it around! It's really awesome to f**k with people's ego and see how they respond. Some people are so used to getting worshipped when you come up and talk to them like you are on their level it screws with their brain! It's f**king hilarious!

My god... When I dress up and ride my mobility scooter on the Gold Coast the attention is insane! I keep the toys around to remind myself that maybe life isn't so bad. Still... The jealousy I face out there is also insane. I'm just a zebra trying to live his best life and others want to cut me down for it???

It just makes me want to scream even louder!

Well s**t... The hardest part about doing all this research is getting quicker and quicker. In just a few minutes I unco...
01/06/2026

Well s**t... The hardest part about doing all this research is getting quicker and quicker. In just a few minutes I uncovered evidence that pills won't help me. Even if I didn't worry about my liver and kidneys my immune system would tank itself in months! I knew about it but it was information that was pushed into the back of my mind for more important things.

Plasma transfusion? That's just going to blow out my veins. All that being said, I can live with everything except the aceruloplasminemia and the episodic ataxia 2. Although that's a funny name, episodic ataxia. Because the cerebellar damage is so great that it's pretty much permanent now. There is absolutely no treatment for that except a dirty medication which will increase the risk of sunburn, being albino that's also guaranteed death from cancer.

I'm f**ked!

(I do like to say I'm Australia's leading researcher on aceruloplasminemia at least. But I'm more a clinical zebra. I like to put everything together and find other problems associated with the mutation, not just the iron deposits! Did you know ACP also greatly increases your risk of obesity due to problems with fat cells!)

I know I shouldn't but I thought I'd treat myself. The last pic was on the way to the tram stop to get home
31/05/2026

I know I shouldn't but I thought I'd treat myself. The last pic was on the way to the tram stop to get home

Just a few photos I took today heading down the coast for a bit of fun. I made it as far as Burleigh. Unfortunately the ...
31/05/2026

Just a few photos I took today heading down the coast for a bit of fun. I made it as far as Burleigh. Unfortunately the albinism is that bad I absolutely struggle with light and contrast in photos.

I just need to make something clear to people. I'm not actively planning anything but my back is to the wall. No treatment will kill me and actually treating my issues (the iron in particular) will be guaranteed to kill me quite rapidly with nowhere near a guaranteed relief of symptoms.

Do I try for research sake or do I try and ride it out? The constant headaches are next level. Ah well!

I just ran into the filmcrew for at Broadbeach. I'm out here trying to push the message that any disease, no matter how...
31/05/2026

I just ran into the filmcrew for at Broadbeach. I'm out here trying to push the message that any disease, no matter how rare can be present in anyone. It's also about trying to help stop the devastation. If my diseases were picked up as a young foal my life would have turned out *VERY* different!

I came down for the monster machinery show and ended up doing something different! I mean... How often do you get to meet the world's rarest rare disease sufferer!?

'The dolphin riders' down at Surfers ParadiseStrangely enough no one has asked if they can ride the zebra
31/05/2026

'The dolphin riders' down at Surfers Paradise

Strangely enough no one has asked if they can ride the zebra

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