03/02/2026
🧑🏻🦯February is Retinitis Pigmentosa (RP) Awareness Month 🌏
Did you know?!Around 1 in 5,000 people worldwide live with RP - a genetic, degenerative eye condition with no cure yet. It slowly steals night vision, peripheral sight, and more… turning the world into a narrowing tunnel.
For some of us (like me), it’s even rarer when paired with hearing loss or deafness — that’s Usher Syndrome. Double sensory challenge, double the fight. 🧑🏻🦯🦻
The world wasn’t built for blind & low-vision people. Add in stereotypes like “all blind people see nothing” and ableist attitudes, and it gets exhausting.
Truth bomb: Blindness is a spectrum.
About 90% of legally blind people still have some residual sight - light, shapes, blurry central vision - no matter how little. But when everyone assumes total darkness, we get doubted, second-guessed, and questioned constantly. It hurts.
Here are my actual retina scans 👀 (swipe/zoom in) - you can see the dying photoreceptor cells that took my night + peripheral vision.
I was born seeing normally, but now my central vision is roughly 3 degrees wide (like looking through a straw), and it shifts with light levels.
Spreading awareness changes things.
It pushes for better design, kinder attitudes, more inclusion, and hopefully - one day - treatments that stop or reverse this.
If this post opens even one person’s eyes (pun intended 😏), tag a friend, share your support, or just say hi in the comments.
Your voice helps build a more blind-friendly world. Thank you for being here. 🙏🥰
Description: A series of images showing Karan standing with his cane wearing a T-shirt that says Blind with a verified blue tick. You see photos of Karan’s retina and different versions of what he sees depending on the level of light.
