Cerebral Palsy Support community

16/04/2025

My Princess..i miss u my daughter 😭💔🙏🕊 I love u❤️‍🩹

09/02/2025

Better late than never. I'm just out of words. One thing I can say is I LOVE MY DAUGHTER AND I MISS HER SOO BAAAD!..her entire family and friends who knew her! Death is not an easy thing to endure, nevertheless, I'm trying. Yes! I understand she's in a better place. I knew one day it'll be over but not so soon. My sweeeet sweeeet Heena Rinne. I use to hear and see people around me who I personally know lost a loved one, I could not relate.. until now!..Everyday I pray and ask for strength and understanding to keep it together. My babygirl was going through alot..ALLOOTT! God doesn't give you more than you can handle. I am okay, I'll be better in time. Thank you to all who was there to support us when we need it the MOST in eeeevvveeerrrryyywaaaayyy and who's still there. Love you all! Thank you!🩶💔🙏🕊❤️

04/02/2025

My Princess, babygirl, sweet face, dove, cheena gal. You came on the 21st of September 2018. The best gift a mom could've asked for. Your cheering personality and beautiful smile touched many, many, many hearts...all over! Heena, my darling, this has been the hardest pill to swallow. I knew one day it'll all be over but not so soon.
As 1st time parents, we were asked what we'd do if our daughter would be a special child. With little knowledge of a special child and to face the fact that it was our child, I only had to accept the challenges that was ahead. Little did Tevin and I know what all that entailed but never the less, we faced them by searching. It was never easy on either parent because just as normal families we were also ALWAYS trying hard to get our lives together. We barely or never had time for ourselves muchless for each other. As soon as we saw a little light, here comes another rough patch. Either I have to quit working because the sitter could not handle our baby or we gota pay bills and we're out of money. Finance never enough, This usually lead to frustration, depression, relationship problems..so many things. It was really really hard. The roughest part was getting time for ourselves. I had always dreamed of having my little family but nevertheless, the challenges molded me into being stronger and wiser. It made me look at life differently. Your laugh and smile is no more, except in our memories; Forever cherished MY PRINCESS You're now our angel my love. Rest in perfect peace sweet face. 💔💔💔💔🕊🕊😪

20/12/2024

Hi all. Just a quick update..the total is below and the bill has already been paid in full. Thank you all so much for all the support in everyway.

20/12/2024

20/12/2024

I dont know where to start but I'm here asking for help. My baby girl is going through it once again. For some time, I've been trying to hold it together but there's just so much we can do. She was vomiting blood and secreting plenty mucus. When her nana and I took her to the Healthcare Specialist Clinic we saw a pediatrician and was then referred to do an endoscopy. To to the endoscopy she needed to be placed on anesthesia. After the endoscopy, we understood she was suffering from gastritis and acid refluxes. My princess has to go on a 3months treatment which is very costly and 2days of antibiotics treatment. It's overwhelming but still grateful because it could have been worse. 😢💔🙏
211666801 Atlantic bank.
260655010160000 Elaine Sherr Mejia Belize bank

02/06/2024

I'd like to send out appreciation to all who chose to support my family and I. Whether it was Monetary funds, kind words, advice, all was needed. It haven't been an easy road and glad I shared my situation because I realized there are still people out there with a heart and with no hesitation was ready to assist. I will be as honest because I don't want anyone to feel or have the slightest thought this is a scam. The goal in donation needed was one thousand and we have passed that amount. I appreciate all of you and just to put it out there, we've surpassed our limit needed for her coming operation in September. It's a little while to wait but a savings account will be created for baby Heena. Nevertheless, having a child with CP, requires a lot of Dr visits and plenty care. Kids with this disability travels with a lot of different kinds of issues, therefore the funds received will be going towards any additional expenses she may have. ❤️❤️🙏🙏

31/05/2024

First we want to say a huge thank you to everyone who made a choice to assist Heena. All the compassion and support was truly felt and humbly appreciated. Today we took Heena to the dentist for her first consultation and to assess her dental hygiene. Often kids with CP (cerebral palsy) are known to grind their teeth, as a result this wares down the enamel and can cause the tooth to crack, decay or lead to nerve pain. As a result there are multiple tooth that has already been worn down. This especially includes her molars(back teeth) which has been affected heavily by the grinding of her teeth. As a result an operation will be necessary to have the nerves removed from the teeth so that she does not feel pain when eating or suffer from tooth ache in her years to come. After the assessment was over, we were then scheduled to come back in late August, to make preparations for her first operation in September, at this time the nerves will be removed from her molars. This is only the first step in taking care of her dental health, nevertheless we give thanks to be able to embrace a change and see progress in the overall health and growth of our child. ❤️🙏

30/05/2024

I'm up today but also alot on my mind. Why when you make 2 moves forward, something triggers that and you just fall right back to step one?? Why when you're trying so hard to do better, feels like it gets worse. This is nothing I usually do. I always bottle up my pain& feelings because I believe no one else would understand or care for the most part. I don't know where this is going nor Where to begin with all this?? There are more questions than answers. My family needs help in any means possible, I was ashamed but here I am. My baby Heena will be 6 years old in September and has been through sooo much to be so little; nevertheless God knows best. He knows most days I wish I could replace her body with mine just so she can have a normal life. I still love her with all my heart regardless of her disability. She's such an ammmaaazing little soul I tell you. Through all her pain she still smiles😌🙏. That there pushes me to stay stronger.
Heena was diagnosed with Cerebral Palsy a disability that affects the brain since she was 8months. My baby girl got her arm amputated last year August. Took a toll on everyone, especially us the parents and Heena. The arm needs to be covered when its cold If not it can pain her. The was admitted again in January of this year for pneumonia. I thought I would lose her then, but Dr says she's going to be okay. She has become so delicate. Couple days ago she had a fever and barely wanted to eat, strange. Very fussy and I just could not figure it out until I tried feeding her, she refused to eat so then I assumed it's her teeth. I decided to contact a dentist for information on procedure to remove decayed tooth if not her blood line can be affected. I was advised, to undergo the surgery they'll have to use anesthesia to put her to slp due to her condition which cost eight hundred dollars. The consultation fee is about one hundred and fifty dollars separate. So, it's almost a Gran to have them removed.
As a mother, my heartaches to see my baby goes through such things but I can only try to be strong for her and be her voice. I do have a part time job but, that's hand to mouth. I mean, as much as I'd like to work full time, no one else can handle my girl like me. That I understand.

Nothing last forever and I'm now doing what I should have done along time.💔💔🙏🙏😔

31/01/2024

A Happy soul is she 🥰