10/17/2025
✨ Sharing this tonight for awareness, understanding, and a little bit of hope 💛
Tonight as I sit here, I’ve had a major day. MAJOR.
Yesterday Adam and I went to Guelph to meet with the vascular specialist who confirmed that if my neurosurgeon was on board with low dose anticoagulants, that would be the best course of action for a blood clot that I developed after having a Picc line last week since my blood clot sits right up against a major vein. I got in touch with my Neurosurgeon team today and received the all clear to start. It’s a 45 day course of daily injections. Thankfully, and maybe a little sadly, I’m no stranger to giving myself injections so that part won’t be an issue.
I also had a follow up with the amazing family doctor I’ve been seeing while my regular doctor is needing help. She has been such a gift. She listened, believed me, and never once made me feel crazy. When you’ve had to navigate a medical system with no clear answers but you know something is wrong, it doesn’t take long to be dismissed or not believed.
While we were reviewing everything that’s happened this past week, my endocrinologist (who did the testing last week) called. Perfect timing.
Three years ago I was referred to Dr Purdon in Guelph for unexplained hypoglycemia. We did a few tests but nothing clear showed up. He planned to follow up with a 72 hour fasting test, but life shifted when I was diagnosed with three brain aneurysms and that took over. His follow up fell through the cracks.
Fast forward to this summer. Out of nowhere, I got a call from him. He said he was retiring and while reviewing old files realized my chart had been missed. He apologized, did a two hour intake over the phone, and immediately ordered new tests. The first showed reactive hypoglycemia. The second-the 72 hour fasting test last week- revealed something bigger.
He called today with the results. I have Addison’s Disease.
It’s rare, complex, and yet somehow simple. All my numbers lit up. He said he has never seen a case like mine and that it’s a wild way to end his medical career, solving such a mystery.
I have cried so many tears of relief and validation today. I’ll forever be grateful that he took the time to look deeper, to truly listen, and to treat me like a person.
Addison’s is serious but treatable. I still have more steps and adjustments ahead, but I’ll be in good hands as my care continues with his colleague.
Tonight I cry tears of gratitude and validation. If you know deep down something isn’t right, please don’t give up. Keep pushing for answers. It’s uncomfortable and exhausting but I’m living proof that rare cases do exist 💕 I still have many hurdles to jump over the next bit but I have so much gratitude in my heart tonight 💕✨