Chronically Jenni

Chronically Jenni Disabled Content Creator, Public Speaker & Model sharing disability education, mobility aid advice and chronic illness hacks. New Youtube Video every Friday!
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Helping people better understand accessibility, disability & inclusion. Work enquiries: [email protected] Welcome to my page for my blog and vlog. It's all about my journey with Ehlers Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome(POTS) & a CSF leak. With my Blog I'm trying to raise awareness for my conditions but also have some fun. Hope you enjoy reading, watching & learning.

17/06/2026

I genuinely think our wedding should have been sponsored by hot glue, Canva & Cricut.

Because when I say I DIY'd my wedding, I don't mean I made one or two little bits, I mean we made A LOT!

I made our welcome sign from a marketplace mirror which I painted with florals & made signs for all sorts of things throughout the venue.

I painted the canvas for our seating plan & designed it using blu tack so I could swap tables around without remaking the entire thing every time an RSVP changed. I used my cricut to write out each table in a similar font to the film it was named after.

We painted & decorated our card box with florals & shells, made the ribbon backdrop for behind our table, which ended up becoming the backdrop for our Magic Mirror photos.

I cricuted over 100 vinyl names & ironed them onto ribbon bows to act as placecards & made the Just Married sign for my wheelchair the night before the wedding!

And then there were the flowers.
They were all artificial & arranged by me & my bridesmaids: including 11 buttonholes, 6 corsages, 3 bridesmaid bouquets, a flower girl bouquet, my bridal bouquet, 2 ceremony installations and all of our centrepiece florals.

The centrepieces were made from charity shop vases, flowers, Disney Doorables from our collection to match the movie the table was named after, and mirrors decorated with shells and pearls.

For favours we filled jars with flavoured maldon sea salts and bath salts, gave them all water-themed names & designed every label on canva and used my cricut to make stickers for each one.

Now, before anyone thinks I magically knew what I was doing, absolutely not. There was a lot of trial and error. Things got remade & my first ceremony arch collapsed. But I really enjoyed the process & being able to do it in a slow & supported way.

Massive shout-out to the hugely talented .dizzy.lizzie for Ian's cufflinks & our incredible crochet cake topper which will both be forever special to us.

Looking back, some of my favourite details weren't the things we bought.They were the things we made. Together.

What did you DIY for your wedding?

16/06/2026

Looks accessible, but is it?

While exploring the thermal spa on P&O Arvia (which access to is a paid for add on service on board) I was excited to spot an accessible rainforest shower complete with a shower bench and grab rails.

At first glance, it looked great. But accessibility isn't just about whether the features are there, it's about whether they can actually be used.

The shower had five different settings. One sprayed me straight in the face. One only came down from the ceiling, meaning it mostly hit my lap. Another sprayed in the wrong direction entirely. Out of all five settings, only one was vaguely usable for me from the shower bench.

This is something I see all the time when reviewing accessibility; a space can tick all the right boxes on paper and still not work in practice.

Accessibility isn't about slapping on some grab rail and calling it a day, it's about thinking through the whole experience from the perspective of the person using it.

Could I use the shower? Technically, yes.

Could I use most of the features it was designed to offer? Nope

A small change, like an L-shaped shower bench similar to the one in the accessible cabins, would have made a huge difference.

Accessibility is about usability, not just compliance.

Have you ever come across something that looked accessible at first glance but didn't quite work in reality? Let me know in the comments.

15/06/2026

Summer Travel Hacks That Just Make Life Easier

These are my go-to hacks for travelling in hot weather as a disabled person, but they’re genuinely useful for everyone:

1. Wearable fans: for hands-free cooling while you’re on the move.

2. Packing cubes: help you easily separate clean clothes, used ones and outfits ready to wash.

3. Bungee cords: great for keeping wheelchairs folded or holding equipment together during travel.

4. Solar Buddies suncream applicator: less mess, less effort and no slippery hands or push rims.

5. AirTags: we used these at Disneyland Paris to keep track of each other in the parks.

6. Carabiners: perfect for hanging water bottles, hotel keys or bags from your chair or backpack.

7. Bum bag: kept all my essentials safe and accessible without needing to hold anything on my lap.

8. Visible armband & app: helped me track my energy and make better pacing choices after a very overexcited first day. I still went over budget but hey I was at Disney!!

Got any travel hacks of your own? Drop them in the comments I’m always looking for new ideas.

11/06/2026

Ever wondered what an accessible cabin is like on a modern cruise ship? Here's a look around my accessible balcony cabin on Arvia.

One thing I really liked about this cabin was that it felt designed for disabled and non-disabled people to comfortably share the same space.

Features like the fold-down shower bench, adjustable sink and pull-down wardrobe rail could all be adapted to suit different users, rather than making the room work for just one person.

Starting with the bathroom, there was plenty of space to manoeuvre a wheelchair, and the toiletries were positioned at an accessible height, which is a small detail but one that's often overlooked.

It wasn't perfect though. The shower head and towels were mounted a little too high for me to reach independently, although that could easily be fixed if staff placed them differently.

The automatic doors were one of my favourite features. The cabin, bathroom and balcony doors could all be opened automatically, making it much easier to move around independently.

Although fair warning, the bathroom door was a little enthusiastic about staying open, so privacy required some patience. We were on our honeymoon so it wasn't exactly a deal-breaker, but it could be awkward if you're sharing with a friend, family member or carer.

The bedroom felt spacious and practical, with room to manoeuvre, space under the bed for a hoist if needed, plenty of storage, a mini fridge, and plugs close to the bed. The only thing I'd change is having the life jackets stored lower for easier access.

And finally, the balcony. Compared to the accessible cabin we stayed in on Britannia last year, this balcony felt much larger and more usable, and was probably my favourite part of the whole cabin.

Overall, this is one of the better accessible cruise cabins I've stayed in. It's not perfect, but there were lots of thoughtful accessibility features built into the design.

Would you stay in a cabin like this? What would make it accessible for you? Let me know in the comments.

09/06/2026

Is supported travel actually worth it?

That's probably the question I get asked most when I share trips like our honeymoon cruise with Limitless Travel (ad - pr trip)

When you're looking at the price, it's easy to compare it to booking a cruise yourself. But what you're actually paying for isn't just the holiday.

You're paying for all the planning, research and problem solving that happens before you even leave home.

Before we travelled, Limitless took the time to understand my access needs. They arranged the booking, organised accessible excursions, included door-to-door accessible transport, and made sure support was available throughout the trip.

Could Ian and I have booked a cruise ourselves? Absolutely.

But it would have taken so much more time, energy and anxiety, and honestly, I don't think it would have been nearly as enjoyable.

Instead of spending weeks researching accessibility, wondering whether places would actually be accessible, and worrying about what would happen if something went wrong, we knew there was a team there to support us.

That support showed up in lots of different ways throughout the trip.

When we visited Bilbao, we got to explore the Guggenheim Museum, which ended up being one of the highlights of our honeymoon.

When an excursion provider was giving confusing information about whether I could stay in my wheelchair, the Limitless team stepped in and advocated for me, making sure I could travel with the rest of the group.

And even on the smaller things, knowing there was always a group meal to join, support available if I needed it, and people who understood disability took away so much stress.

Whether we were spending time together as a couple or joining the wider group, there was always the reassurance that someone had our back.

For me, that's the real value of supported travel.

You're not just paying for the holiday.

You're paying for less stress, less uncertainty, and more opportunity to actually enjoy the experience.

Because when you're travelling as a disabled person, sometimes the biggest luxury isn't the holiday itself.

It's being able to relax and enjoy it.

Have you ever used a supported travel company? If you've got any questions about Limitless, accessible cruising or supported travel, leave them in the comments and I'll do my best to answer them.

08/06/2026

Welcome back to Looks Accessible But Is It?

This beach in La Coruna, Spain was listed online as having accessible features, including accessible toilets, showers and a beach wheelchair. Unfortunately, when we arrived, we discovered the accessible beach programme didn't start for another five days.

The accessible route, toilets and showers were all there, but disabled people couldn't actually use the beach that day. As the path was blocked off and the facilities were locked.

I can understand not running some services in the middle of winter, but disabled people exist all year round and deserve equal access all year round.

Have you ever arrived somewhere that was advertised as accessible, only to find out it wasn't actually available when you got there? Let me know in the comments.

Share this with people to help them understand that just because somewhere says it's accessible, doesn't always mean that it actually is.

05/06/2026

We’re right here. You can just ask us.

Speak to us, not about us. Disabled people are not invisible.
We deserve the same respect as everyone else.

I’ll always remember the first time I travelled abroad for work as a wheelchair user, the staff member asked every single question to my friend, even though I was right there, answering. No matter how many times I responded, they refused to even look at me and kept speaking to her even after she repeatedly said she didn’t know. It was frustrating for me & uncomfortable for her, because she was my friend and not my carer, I was the one who knew the details and I was perfectly capable of speaking for myself.

This happens to disabled people all the time: in travel, healthcare, education, even everyday shops and cafes.

Some people say they’re worried about getting it wrong, so they default to talking to whoever is with the disabled person. But here’s the thing:

Disabled people will communicate with you in the way we can, and if we need support, our carer or companion who knows the level of support we need will step in. But that’s our call to make. Not yours.

Please don’t talk over us, talk down to us, or talk louder as if we won’t understand. Assuming we can’t communicate, or choosing not to try, takes away our autonomy and dignity.

If you’re unsure, just look at the person, ask the question, and follow their lead. It’s that simple. And so much more respectful.

Start by including us in the conversation.
It really is that simple.

I'd love to hear your experiences of this in the comments and if you think more people need to hear it please remember to share this post.

Video Description:
A wheelchair user (Jenni) arrives at a travel desk with her friend. The staff member speaks only to the friend, asking about Jenni’s passport, baggage, & assistance needs. Jenni answers each time, but is ignored until the staff member finally realises, “I guess it would’ve been easier to ask you directly.” Jenni & her friend turn to camera and say, “Exactly.”

04/06/2026

If you live with hand pain, weakness or hypermobility these hand hacks might just make daily tasks a whole lot easier.

You can check the comments to get the links!

Here’s what’s featured in this video:

- Compression gloves give gentle support and help with circulation. They can ease pain, reduce swelling and make hands feel more supported through the day.

- My silver ring splints from have made a huge difference. They stabilise my fingers, prevent hyperextension and reduce pain, without compromising on style.

- The Nimble one-finger opener is brilliant for opening packaging safely. It’s sharp enough to cut but designed to be safe even with limited grip or coordination.

- Keywings add extra surface area and leverage to your keys, making them easier to grip, find and turn. They really help reduce strain.

- Grip toggles are really versatile. You can add them to household items to improve grip, or use the suction cup version to help open drawers and cupboards.

- The pill popper tool makes it so much easier to get tablets out of blister packs without hurting your hands. Although it can break larger powdery tablets.

- Thumb braces from Push support the joint and help keep your thumbs in a better position during everyday tasks. I find them really helpful on flare days.

- This spray can gun, originally designed for paint, helps me use hairspray and other products more easily. It gives much better control with less strain.

- If you find buttons too fiddly, the button hook tool makes doing them up much simpler.

- The zipper pull tool is one I think everyone needs in their handbag. It attaches to any zip to help you pull it up more easily.

- And finally, there’s tools from disabled-owned small business .beauty . It attaches to all sorts of beauty products to make them easier to grip and use.

Let me know your favourites in the comments, or share your own hand hacks too.

This is your sign to take your wedding outfits on honeymoon!Because if you're only going to wear it once, you're not get...
03/06/2026

This is your sign to take your wedding outfits on honeymoon!

Because if you're only going to wear it once, you're not getting your money's worth.

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