Lauren Eade CVI

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Lauren Eade CVI Sharing my life with Cerebral Visual Impairment (CVI) and raising awareness through lived experience.

28/09/2026

It's Ask a Stupid Question Day...

So, we asked the Sight Loss Councils team to share some of the funniest questions they've been asked about sight loss.

Here are a few of the answers that made us smile.

👀 "Do you still dream?"

🦸 "Are you Daredevil now?"

👂 "Do you have super hearing?"

🦯 "Why is your cane pink?"

📸 A wedding photographer once asked:
"Can everyone see the camera? If you can't see me, I can't see you!"

The response?
"Well, guess I'm screwed then..."

Some of these questions still make us laugh. Others leave us wondering where to begin.

What's the funniest question you've ever been asked?

Blind and partially sighted people are often asked questions like these. Some make us laugh, some make us sigh, and some are opportunities to challenge misconceptions about sight loss.

By sharing these stories we want to start conversations that help people learn more about sight loss.



Image description: Kelly Barton, Engagement Manager for North West England, stands on an outdoor walkway using a bright pink long cane.

25/09/2026

Guide dog Lassie’s bedtime routine ❤️





23/09/2026

True or false? Does weather affect CVI?

Weather can have a huge impact for people with Cerebral Visual Impairment (CVI).

Heat makes my vision worse and it’s harder to function in general.

Perkins have a great article: https://www.perkins.org/how-does-heat-affect-cvi/

The lovely folks at blatchingtoncourt asked me to write an article for .Living with CVI can be hard.My vision is fragme...
21/09/2026

The lovely folks at blatchingtoncourt asked me to write an article for .

Living with CVI can be hard.

My vision is fragmented and nonsensical. I see pieces of the jigsaw but never the entire picture. Moving objects like cars are a blur that make me dizzy and nauseous. I can’t judge distance, speed or navigate 3D space. Objects and people suddenly appear from nowhere, which can be frightening. I struggle to hear in noisy places and understand conversations. CVI affects how I think and interact, every moment of every day.

It’s exhausting to navigate a world that constantly overloads your senses. My brain can’t process the environment properly. Not from a lack of effort but a lack of resources. Visual and auditory information is everywhere, all reaching my brain just to overload it. I can’t switch it off. Pain and fatigue are a daily battle. For a long time, I didn’t know how to cope.

Living with CVI can also be beautiful.

The right support is lifechanging, enabling us to thrive instead of just survive. My long cane gave me safety, independence and freedom. Learning to live without relying on vision reduced my headaches, visual fatigue and pain significantly. It brought new opportunities like employment, where I learnt to use a screen reader.

CVI no longer controls my life. It brings small moments of joy. Spotting a bird hiding in the trees that nobody else notices. Laughing with friends when I mishear what they say. Spending quality time in nature to relax. CVI has given me an incredible community of friends who truly understand what it’s like. Now I can help others, the way they helped me.

[Lauren and her boyfriend Brad smile in a garden.]





20/09/2026

Bjarney Lúðvíksdóttir, under the production-name Eyjafilm, creates documentaries with purpose. By renting an Eyjafilm documentary, you are doing more than supporting an independent filmmaker.

18/09/2026

Facts about my sight condition that sound made up, part 2.

Cerebral Visual Impairment (CVI), is a sight condition caused by damage to visual pathways in the brain.

It’s thought to affect 1 in 30 primary school children in the UK. September is CVI Awareness Month 🧡





16/09/2026

Lassie has such a good sense of smell ❤️

It also shows the importance of colour for people with Cerebral Visual Impairment (CVI). If the ball wasn’t orange, I wouldn’t have stood a chance at finding it!

September is CVI Awareness Month! Follow along to learn about CVI and see cute pictures of Lassie.





There are things I can still see. It depends on countless factors. The environment, my health, fatigue, luck. But I reme...
15/09/2026

There are things I can still see. It depends on countless factors. The environment, my health, fatigue, luck.

But I remember the multisensory experiences.

Walking through Amsterdam, smelling the flowers and Christmas market. Hearing the acoustics of an exceptional viola musician. The realisation that I can still enjoy travelling and my life with CVI.

The friendly tour guide at the Colosseum in Rome. The feeling of cold, damp air providing relief from the heat. The sound of the Trevi Fountain, people laughing and bustling around the city. The taste of pizza without tomato sauce being the best of my life.

These are the memories, feelings, that I treasure most.

Thanks to the wonderful Tina blindsided_in_boston for the post topic. Part of her

[Image: Lauren stands in the Roman Colosseum wearing sunglasses and holding her white cane. Her partner, Brad, a man with a beard and backwards baseball cap has one arm wrapped around her and smiles.]




There are lots of things I can’t see anymore.The stars in the night sky.I can’t read books like I used to. I don’t alway...
14/09/2026

There are lots of things I can’t see anymore.

The stars in the night sky.

I can’t read books like I used to.

I don’t always see the birds, especially not in detail.

Can’t find things on a supermarket shelf.

I can’t see an entire landscape, landmark or face.

So many little things taken for granted until they’re gone.

I never got the chance to grieve for my sight loss. Nobody believed it was happening. I was focused on survival. Afterwards, I wasn’t allowed to be upset because it was ‘already over’.

But those feelings and memories don’t just go away. No matter how hard you try to move on.

Grief is a tricky thing.

Thanks to the wonderful Tina Z Caruso for the post topic. Part of her .

[Image: A starry grey night sky with twinkling lights. It fades to a slight yellow at the bottom.]




13/09/2026

True or false? CVI edition!

So many people with Cerebral Visual Impairment (CVI) grow up without knowing they’re vision impaired.

It leads to many challenges in life but with the right support, we can thrive.

I’m Lauren, an adult living with CVI, the UK’s leading cause of childhood sight loss. I was diagnosed at 19.

September is CVI Awareness Month. I’m determined to raise the profile of this condition so more children can access the help they need 💛





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