09/07/2026
Today, Mark had his fortnightly therapy session with the amazing Sarah ❤️
It’s sometimes hard to explain just how much these therapies help Mark, but today was another reminder of why we continue to research and try anything that may bring him even the smallest amount of comfort from the effects of MND.
Sarah works with specialist treatments that help to relax Mark’s muscles and release some of the awful tension and tightness that MND causes. She spends time working on his arms and hands, which can become so tight that his hands gradually scrunch up into a fist. Over the course of the day they can become incredibly sore, stiff and eventually almost locked in that position.
Yet after just 30 minutes of Sarah working with him, Mark is able — with help holding his hand open — to stretch out his fingers and hand again.
She also works on the muscles in his neck and shoulders, where the tension and tightness can become so severe that Mark can barely turn his head. The difference afterwards can be incredible… he can go from hardly being able to move his neck at all, to being able to turn his head fully from side to side.
These things may sound small to some people, but when you live with MND, they are absolutely huge.
And Sarah doesn’t just help Mark physically. She has this amazing ability to get us both talking while she works — sometimes about things we probably avoid because they’re difficult, painful or simply too hard to say out loud. Somehow, she creates a space where those conversations happen naturally, and that helps both of us mentally too. We are truly so grateful for everything she does for Mark… and for both of us. ❤️
And the reason we are able to continue finding, researching and booking therapies like this is because of the incredible support people have shown through Mark’s GoFundMe campaign, Together with Mark. 🧡💙
Every donation, every share and every person who has supported us has helped make sessions like today possible. These therapies help Mark physically, they give him moments of relief and comfort, and in turn they help us as a whole family.
Anything that can ease even a tiny part of the burden that this bloody awful disease puts on Mark is all we ever want.
Mark’s GoFundMe is still up and running, so please keep sharing his story and his campaign. Please help us continue raising awareness of MND — so more people understand not only what this devastating disease does to the person diagnosed, but also the enormous impact it has on their partner, their children and everyone who loves them.
And, if we can, to continue raising funds towards Mark’s ongoing care, therapies and support as his needs continue to change.
From the bottom of our hearts, thank you to every single person who continues to stand beside us, support us and share Mark’s story.
It means more than you will ever know.
Loo x
❤️ Please click below to the GoFundMe Page
https://gofund.me/ce23bd3b3
