09/07/2025
I may be down, but I'm not out! Chronic illness is a full-time, exhaustive fight and becoming unwell can really impact.
Living with long-term chronic conditions and disabilities is already a relentless battle—pain management, mobility challenges, and just navigating day-to-day life.
But a couple of weeks ago, I was hit with something completely new, and it’s floored me. Like being tackled by a freight train… mid-mountain climb.
The symptoms of this new illness are brutal—chest and throat pain, fatigue so severe I can barely stand, and the inability to eat solid food. 4days without a proper meal now, or is it 5!? 🤷♂️🫣
Either way, I’m now living off liquids, porridge and soup when I can, taking 30 pills a day, and still feeling like I’m losing ground. But what’s hit hardest isn’t just the physical pain—it’s the isolation.
There’s no one here to help me keep on top of the flat, pop to the shop for food/meds, or simply sit and talk. Don't get me wrong, my AMAZABLES carer does loads and I couldn't do any of this without her, but already does more hours than she gets paid for, and that's not fair on her.
Being unwell while already disabled, alone, and self-managing everything is currently really difficult. And it’s made worse by the fact this hit just as I was finally making headway with the business—people were starting to see real value in what I do, and dream of achieving with it.
That part genuinely breaks my heart.
I’d love to wrap this up with some glossy, motivational punchline. But sometimes life doesn’t give you a bow to tie it up neatly. Sometimes, all you’ve got is the next breath. The next hour. The next bloody pill.
Right now, I don’t have answers. But I do have fight. And I’m not out yet.
If you're struggling too—please, keep going, keep keeping on. Second by second, if that’s all you can manage. Because eventually, it does become minute by minute, hour by hour, day by day, and that’s when things start to shift.
Not because life got easier. But because you endured.