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25/02/2026

We completed our Day 10 walk with Elsie’s Great Grandma 💕 my back’s still a bit sore but we managed a walk round the block, past Uncle Austin Walmsley and Auntie Lily Smith’s works 💖

https://gofund.me/a67b5f785

23/02/2026

Happy 30th Birthday to the best Daddy in the world 💕
There’s a reason Elsie pops is the biggest Daddy’s girl going, even if she does love to terrorise you 😂
Thank you for all you do, from getting up early every morning to give me an hours peace, to cooking tea every night, after you’ve been at work all day…I’ve probably cooked less than 20 meals since Elsie was born 😅
We hope you’ve had the best day and love the presents Els picked for you 💕

15/02/2026

We might be a bit crazy for this one as Elsie is not an outdoor girl and we don’t have much free time, but we are going to walk 150km by Elsie’s third birthday, in the hope that we can get her to Napa again in April, and try some new treatments for her seizures as they have been bad recently🤞
If anyone would like to join us on one of the days, for a little walk, we would love that 💖

14/02/2026

I’ve spoken to a few epilepsy parents recently who didn’t know this!
Playing Mozart, particularly Mozart’s Sonata for Two Pianos in D Major (K448) has been shown to reduce epileptiform discharges and seizure frequency…how crazy is that 🤯
We’ve actually loaded it onto Elsie’s creative Tonie so it’s super easy, we just pop it on at bedtime and often leave it for her first few hours of sleep too 💖

05/02/2026

It’s Tube Feeding Awareness Week 💕
Elsie’s been tube fed since she was 9 months old, initially via an NG tube, as a relapse in seizures meant that she needed to start the keto diet urgently. Unfortunately, even though she continued to breastfeed until she was almost 2, she was very averse to bottles, due to the medical trauma she’d already experienced. A year later Elsie had a peg inserted and has since switched to a Mic-key button, which has been a game changer for us! I can’t lie, we hated the NG tube, it was necessary in some ways but it heightened her oral aversions, made her reflux unbearable and her little nose and cheeks so sore 💔
Now that she has the mic-key button, we can cook all Elsie’s meals ourselves and blend them, which has massively improved her reflux and we’re slowly working on undoing the trauma and introducing tastes of food, with the help of a wonderful feeding therapist 💖
If you see anyone with a feeding tube, please don’t feel the need to stare, these tubes are life saving and enable us to nourish our little ones with everything they did. Plus they are especially handy at getting meds in too 😅💕

11/01/2026

We’d like to say a massive thank you to Heather, Lindsay, Thomas and their whole family for raising money for Elsie just before Christmas 💕 they made and sold the most delicious sticky toffee puddings to help with the cost of all Elsie’s ongoing treatment and therapies and we are so incredibly grateful for their generosity 💖 I’m still dreaming of the sticky toffee now 🤤

01/01/2026

Princess at the the end 😂👸💖
Happy new year 🎉🥳
💜

31/12/2025

Hi everyone, we hope you’ve all had a wonderful Christmas and a very happy New Year 🥳
We wanted to say a huge thank you to every single person who has supported us this year and to everyone who has donated to help Elsie and shared her story. There truly are no words to describe how grateful we are, or the difference your generosity has made to our lives 💕
This Christmas brought us a moment we never thought we would see. Thanks to the incredible therapies Elsie has received, she was able to sit in front of the tree and play with her toys all by herself, a really emotional milestone for us. It means she can now play alongside her little cousins and friends, rather than lying in the middle, and that is something we once only dreamed of.
While we’re still working hard to help manage her seizures, Elsie has come on in leaps and bounds both physically and cognitively. None of this would have been possible without your support 💖
Because of your donations, Elsie has been able to access weekly DMI therapy, start CME therapy, speech and language and feeding therapy, as well as chiropractic treatments, craniosacral therapy and acupuncture. She also completed a three-week intensive at NAPA in London, which was an amazing opportunity for her.
We’d also like to give a special thank you to everyone at Chipping Congregation Church for the fundraisers they’ve organised this year, and to Heather, Thomas and family for raising money by selling their delicious sticky toffee puddings, we are so thankful for your kindness and effort.
We have lots planned for the year ahead and several therapies we’re hoping to repeat or continue. We’re planning to organise some small fundraisers along the way and, with hope in our hearts, we’re wishing that this time next year Elsie will be standing in front of the tree 🎄🤞
Thank you all again for being part of Elsie’s journey 💖

16/11/2025

I’m so sorry it’s been a while since the last Elsie update, it’s been a bit of an up and down month or so! Elsie’s eeg results came back a lot worse than we were expecting an with traits of a progressive syndrome that has always been our worst case scenario, so she’s started a new medication and we’ve just been getting used to that and processing it all!
We have had some super highs too though, the main one being we’ve secured a last minute spot 🎉 thanks to everyone’s amazingly generous donations, we’ll be there for 3 weeks of intensive physio, OT and feeding therapy 😆
We had a lovely respite trip away, despite receiving the call about Elsie’s scan results, just before we arrived at our lodge 😅 and we also enjoyed a lovely family break to celebrate some big birthdays in the family 💕
I’ll hopefully get round to sharing some pics from those over the next week to so 🤞

03/10/2025

A little Elsie update from the last month 💖
Thanks to all the amazing donations everyone has so kindly made, Elsie has had a brilliant month! She’s had lots of physio and is now rolling confidently everywhere and can sit independently for about 10 seconds!! We’re now working on crawling and getting her sitting stronger 💪 She had an EEG last week too, so we’re hoping to get a better idea of the seizure type she’s currently having
Elsie’s started a new style of physio, reflexology and sound therapy and it’s allowed us to continue her current physio with intensive weeks too, acupuncture, naturopathy and chiropractic treatments. Plus, next week Elsie’s starting feeding and speech therapy and the week after occupational therapy, to hopefully help her very limited hand function 🤞
Our next goal is quite a big one though! We would absolutely love to take her to Napa in London for 3 weeks of intensive therapy that would cover physio, speech and language, feeding and OT! If anyone would mind helping us to share Elsie’s story further or has anyone ideas of fundraisers we could do, we would really appreciate any help 💕

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Telephone

+447813651301

Website

https://gofund.me/299e1f96

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