Elsie Rose

We’d like to say a massive thank you to Heather, Lindsay, Thomas and their whole family for raising money for Elsie just...
11/01/2026

We’d like to say a massive thank you to Heather, Lindsay, Thomas and their whole family for raising money for Elsie just before Christmas 💕 they made and sold the most delicious sticky toffee puddings to help with the cost of all Elsie’s ongoing treatment and therapies and we are so incredibly grateful for their generosity 💖 I’m still dreaming of the sticky toffee now 🤤

Hi everyone, we hope you’ve all had a wonderful Christmas and a very happy New Year 🥳We wanted to say a huge thank you t...
31/12/2025

Hi everyone, we hope you’ve all had a wonderful Christmas and a very happy New Year 🥳
We wanted to say a huge thank you to every single person who has supported us this year and to everyone who has donated to help Elsie and shared her story. There truly are no words to describe how grateful we are, or the difference your generosity has made to our lives 💕
This Christmas brought us a moment we never thought we would see. Thanks to the incredible therapies Elsie has received, she was able to sit in front of the tree and play with her toys all by herself, a really emotional milestone for us. It means she can now play alongside her little cousins and friends, rather than lying in the middle, and that is something we once only dreamed of.
While we’re still working hard to help manage her seizures, Elsie has come on in leaps and bounds both physically and cognitively. None of this would have been possible without your support 💖
Because of your donations, Elsie has been able to access weekly DMI therapy, start CME therapy, speech and language and feeding therapy, as well as chiropractic treatments, craniosacral therapy and acupuncture. She also completed a three-week intensive at NAPA in London, which was an amazing opportunity for her.
We’d also like to give a special thank you to everyone at Chipping Congregation Church for the fundraisers they’ve organised this year, and to Heather, Thomas and family for raising money by selling their delicious sticky toffee puddings, we are so thankful for your kindness and effort.
We have lots planned for the year ahead and several therapies we’re hoping to repeat or continue. We’re planning to organise some small fundraisers along the way and, with hope in our hearts, we’re wishing that this time next year Elsie will be standing in front of the tree 🎄🤞
Thank you all again for being part of Elsie’s journey 💖

We had the most amazing time  with Elsie working so hard and making such incredible progress! We’d just like to say such...
10/12/2025

We had the most amazing time with Elsie working so hard and making such incredible progress! We’d just like to say such a big thank you to everyone who donated to Elsie’s go fund me and gave us the opportunity take her, we’ll be forever grateful and are very aware of how fortunate we are 💕
I’m going to put together a little progress video this week to show off her new skills! Her sitting has improved massively, as well as her hand-eye coordination and understanding meaning that she can now take toys from my hand when I offer them, which is huge considering 5/6 months ago, she didn’t even hold onto toys or play at all 💖
We’ve been very fortunate to be offered a cancellation spot to go to Napa again at the end of April so our next goal is to raise enough money to cover that, so any shares would be really appreciated 🥰

05/12/2025

I’m rubbish at keeping up with trends but couldn’t resist this one 🥹 what a difference a year makes! Also that look at Grandad Shaun Smith at the end 😂💖

I know I said I’d share some of the things we’ve done over the last few months, whilst we’re away at Napa, but I hadn’t ...
04/12/2025

I know I said I’d share some of the things we’ve done over the last few months, whilst we’re away at Napa, but I hadn’t quite realised how intense it would be for all 3 of us 😅
But here’s a few pics of our respite trip away in October, we visited Abergele castle, went pumpkin picking at a farm park, enjoyed the hot tub at our lodge and had a lovely day trip to Beaumaris too 💖

I’m so sorry it’s been a while since the last Elsie update, it’s been a bit of an up and down month or so! Elsie’s eeg r...
16/11/2025

I’m so sorry it’s been a while since the last Elsie update, it’s been a bit of an up and down month or so! Elsie’s eeg results came back a lot worse than we were expecting an with traits of a progressive syndrome that has always been our worst case scenario, so she’s started a new medication and we’ve just been getting used to that and processing it all!
We have had some super highs too though, the main one being we’ve secured a last minute spot 🎉 thanks to everyone’s amazingly generous donations, we’ll be there for 3 weeks of intensive physio, OT and feeding therapy 😆
We had a lovely respite trip away, despite receiving the call about Elsie’s scan results, just before we arrived at our lodge 😅 and we also enjoyed a lovely family break to celebrate some big birthdays in the family 💕
I’ll hopefully get round to sharing some pics from those over the next week to so 🤞

A little Elsie update from the last month 💖Thanks to all the amazing donations everyone has so kindly made, Elsie has ha...
03/10/2025

A little Elsie update from the last month 💖
Thanks to all the amazing donations everyone has so kindly made, Elsie has had a brilliant month! She’s had lots of physio and is now rolling confidently everywhere and can sit independently for about 10 seconds!! We’re now working on crawling and getting her sitting stronger 💪 She had an EEG last week too, so we’re hoping to get a better idea of the seizure type she’s currently having
Elsie’s started a new style of physio, reflexology and sound therapy and it’s allowed us to continue her current physio with intensive weeks too, acupuncture, naturopathy and chiropractic treatments. Plus, next week Elsie’s starting feeding and speech therapy and the week after occupational therapy, to hopefully help her very limited hand function 🤞
Our next goal is quite a big one though! We would absolutely love to take her to Napa in London for 3 weeks of intensive therapy that would cover physio, speech and language, feeding and OT! If anyone would mind helping us to share Elsie’s story further or has anyone ideas of fundraisers we could do, we would really appreciate any help 💕

Happy Birthday Auntie Em  💖 we hope you have a really lovely day and the boys spoil you rotten! 🎁 I saved social media t...
27/09/2025

Happy Birthday Auntie Em 💖 we hope you have a really lovely day and the boys spoil you rotten! 🎁
I saved social media the trauma of seeing your dancing video from Easter 😂💕

Happy 25th Birthday to the best Auntie and Godmother .smithx 💕 we hope you’ve had a lovely day and been spoilt rotten 💖
24/09/2025

Happy 25th Birthday to the best Auntie and Godmother .smithx 💕 we hope you’ve had a lovely day and been spoilt rotten 💖

There’s a few people that we’d like to say thank you to, for helping to make Elsie’s baptism an extra special day 💕Thank...
23/09/2025

There’s a few people that we’d like to say thank you to, for helping to make Elsie’s baptism an extra special day 💕
Thank you so much to Fr. Keefe for travelling so far and returning to Claughton Church to baptise Elsie, after leaving 8 years ago. Elsie was born a few hours after my Grandad passed away and Fr. Keefe kindly returned for his funeral, so it was very special to our family, to have him baptise Elsie too 💖
We’d also like to thank .smith7 for all her hard work, not only did she make the most beautiful cake, she made all the decorations and helped put them up too. Thank you to .7 and for helping to put all the balloons and decorations up and to .smithx and for the gorgeous balloon arch! 🥰
Finally, thank you to my Dad .smith.3557440 for driving Fr.Keefe so he could be here 💙

Whilst we were away, we got the photo’s of Elsie’s Baptism back from  and we couldn’t be happier with them 🥰Thank you so...
17/09/2025

Whilst we were away, we got the photo’s of Elsie’s Baptism back from and we couldn’t be happier with them 🥰
Thank you so much Maddy, you were wonderful on the day and the photos are just what we wanted! We’ll definitely be booking in again 💕
Also another thank you to everyone who made Elsie’s day so special, I’ll no doubt be spamming with more pics for a few weeks now 😅💖

We had the best time away in Wales last week, Elsie absolutely loved it! A full week of chaos with her cousins, Aunties,...
15/09/2025

We had the best time away in Wales last week, Elsie absolutely loved it! A full week of chaos with her cousins, Aunties, Uncles and Grandad 💕 Elsie was obsessed with the swimming pool and had so much fun at the soft play too! Thank you so much Grandad 💖

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