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Elsie Rose

16/11/2025

I’m so sorry it’s been a while since the last Elsie update, it’s been a bit of an up and down month or so! Elsie’s eeg results came back a lot worse than we were expecting an with traits of a progressive syndrome that has always been our worst case scenario, so she’s started a new medication and we’ve just been getting used to that and processing it all!
We have had some super highs too though, the main one being we’ve secured a last minute spot 🎉 thanks to everyone’s amazingly generous donations, we’ll be there for 3 weeks of intensive physio, OT and feeding therapy 😆
We had a lovely respite trip away, despite receiving the call about Elsie’s scan results, just before we arrived at our lodge 😅 and we also enjoyed a lovely family break to celebrate some big birthdays in the family 💕
I’ll hopefully get round to sharing some pics from those over the next week to so 🤞

03/10/2025

A little Elsie update from the last month 💖
Thanks to all the amazing donations everyone has so kindly made, Elsie has had a brilliant month! She’s had lots of physio and is now rolling confidently everywhere and can sit independently for about 10 seconds!! We’re now working on crawling and getting her sitting stronger 💪 She had an EEG last week too, so we’re hoping to get a better idea of the seizure type she’s currently having
Elsie’s started a new style of physio, reflexology and sound therapy and it’s allowed us to continue her current physio with intensive weeks too, acupuncture, naturopathy and chiropractic treatments. Plus, next week Elsie’s starting feeding and speech therapy and the week after occupational therapy, to hopefully help her very limited hand function 🤞
Our next goal is quite a big one though! We would absolutely love to take her to Napa in London for 3 weeks of intensive therapy that would cover physio, speech and language, feeding and OT! If anyone would mind helping us to share Elsie’s story further or has anyone ideas of fundraisers we could do, we would really appreciate any help 💕

27/09/2025

Happy Birthday Auntie Em 💖 we hope you have a really lovely day and the boys spoil you rotten! 🎁
I saved social media the trauma of seeing your dancing video from Easter 😂💕

24/09/2025

Happy 25th Birthday to the best Auntie and Godmother .smithx 💕 we hope you’ve had a lovely day and been spoilt rotten 💖

23/09/2025

There’s a few people that we’d like to say thank you to, for helping to make Elsie’s baptism an extra special day 💕
Thank you so much to Fr. Keefe for travelling so far and returning to Claughton Church to baptise Elsie, after leaving 8 years ago. Elsie was born a few hours after my Grandad passed away and Fr. Keefe kindly returned for his funeral, so it was very special to our family, to have him baptise Elsie too 💖
We’d also like to thank .smith7 for all her hard work, not only did she make the most beautiful cake, she made all the decorations and helped put them up too. Thank you to .7 and for helping to put all the balloons and decorations up and to .smithx and for the gorgeous balloon arch! 🥰
Finally, thank you to my Dad .smith.3557440 for driving Fr.Keefe so he could be here 💙

17/09/2025

Whilst we were away, we got the photo’s of Elsie’s Baptism back from and we couldn’t be happier with them 🥰
Thank you so much Maddy, you were wonderful on the day and the photos are just what we wanted! We’ll definitely be booking in again 💕
Also another thank you to everyone who made Elsie’s day so special, I’ll no doubt be spamming with more pics for a few weeks now 😅💖

15/09/2025

We had the best time away in Wales last week, Elsie absolutely loved it! A full week of chaos with her cousins, Aunties, Uncles and Grandad 💕 Elsie was obsessed with the swimming pool and had so much fun at the soft play too! Thank you so much Grandad 💖

04/09/2025

We’d like to say a huge thank you to everyone for choosing to raise money for Elsie with their tea and coffee tent at Chipping Show this year, we are so very grateful 💕
We would also like to thank you for your prayers for Elsie at Oliver’s dedication last weekend! We had a really lovely day 💖
And an extra thank you to Elsie’s Auntie .smith_x for writing up her story 🥰
💜

02/09/2025

Thanks to everybody who has so generously donated to Elsie’s page so far, we have been able to book Elsie in for lots of different therapies over the next few months.
It’s enabled us to go back to weekly sessions with the amazing plus book in for 2 more intensive weeks between now and Christmas! I really can’t wait to see the progress she makes with Chloe as she’s been coming on so much recently 😆
We’ve also booked Elsie a place at in Ireland for January, which we’re very excited to try! 🏊‍♀️
She’s started craniosacral therapy and I’m hoping to get some appointments sorted with a private Speech and Language/Feeding Therapist too.
As well as all that, it’s helped us to continue all the other therapies she already does, so we truly are so grateful 🙏
We’ve still got some money left over, but we need to raise more to book Elsie a place at somewhere like Napa London and also for her oxygen therapy, when she’s ready for that, which hopefully won’t be too long off!
If anyone has any ideas for fundraisers that we can do, please let me know 🥰💖

https://gofund.me/299e1f96

27/08/2025

Happy 19th Birthday to the best Uncle and now Godfather .7 💙 and I suppose alright brother too! Hope you’ve had the best day at work 😂🎉

17/08/2025

A day that we were told would probably never come - sitting independently with no hands to prop her up 🥹💖

It truly is a testament to the incredible work that Chloe at RVCP does. In the last month, not only has Elsie managed to sit for a few seconds, completely unaided, she has started rolling everywhere! Nobody’s safe, especially Durp 😅

Elsie started physiotherapy with Chloe when she was 9 months old, after we found out that she is entitled to very little physio through the NHS. We had tried other private physio’s too, but from our first appointment with Chloe, it was clear no one else would compare! She has built the best relationship with Elsie, she handles more sass and side-eye than you can imagine (hopefully without taking it too personally) and she still manages to get the best out of her.
We can’t thank Chloe enough for her pure dedication to helping Elsie thrive, especially for the times she has advocated for her with other medical professionals, when as parents we felt like no one was listening. She just gets it, she gets the fights we face to make sure Elsie receives the support she deserves, as well as the daily struggle of caring for a child like Elsie pops. Going to RVCP isn’t just a physio session for Els, it’s a therapy session for me and my gosh, I have a good vent 😂

03/08/2025

After a rubbish start to the day with a 16 minute cluster of seizures, Elsie made it to with Grandad and even managed to cheer up after a quick power nap 💕
We managed to see Auntie on the stand and she absolutely loved seeing the cows and all the doggies too 🐄🦮

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+447813651301

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https://gofund.me/299e1f96

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