Answers for Indy

Answers for Indy Here’s the medical blog of a chronically ill neurodivergent life support survivor! Welcome to my life

08/11/2025

They also tend to wish R/SA on women who support refugees and immigration 🐸☕

Step one of getting answers: Fighting with the printer to be able print out over 10 different pages of evidence from dif...
30/10/2025

Step one of getting answers: Fighting with the printer to be able print out over 10 different pages of evidence from different hospitals across the country to give to the doctors.

All information obtained on this was taken from websites of some of the most famous hospitals in America including Cleveland Clinic and Mayo Clinic…

Every single thing is critical, acting as a puzzle piece. Each paper connects to each other…

Let’s fu***ng do this!

So holy s**t do I have an update for all of you guys!One that I genuinely didn’t think I’d ever get to write, but that’l...
29/10/2025

So holy s**t do I have an update for all of you guys!

One that I genuinely didn’t think I’d ever get to write, but that’ll be at the end of the post.

First of all, it’s been a year since my Epilepsy diagnosis and man, time has flown! This day last year I was diagnosed with Epilepsy and I’m 99% sure there’s still some glue in my hair from the EEG test.

Now as for my wellbeing I’ve been good. My sleeping went from being bad, to being really good in the span of a few weeks which again is good. Unfortunately my Bridget Bug isn’t feeling good and I don’t know why that is. She threw up yesterday all over my mom, all over herself and all over my mom’s bed and last night she proceeded to throw up on my bed while I was asleep and then lay in the puddle of vomit for the remainder of the night.

So she’s currently banned from being in my bed until she feels better. Poor Bridget, I hope she starts feeling better soon.

AND NOW THE MOMENT YOU’VE WAITED FOR!-

Actually the moment I’ve waited for….

The one my whole team has waited for….

Are you sitting down? You should be…

Ready?…

1…. 2… 3….

We may finally have answers for everything. After 8 long and hard years of no answers, we think we may have finally uncovered what has been going unseen this entire time. We suspect that this whole time I have had Mast Cell Activation Syndrome (MCAS) and that it is the cause of everything from my organ failure, to my potassium issues, to my cardiovascular concerns and a whole list load of other things. It’s gonna be a long road of testing to find out if this is it, but if it is then we will officially have answers and know that what happened isn’t mitochondrial cell related, but instead related to my mast cells…

Please send every ounce of support to me, my mom, John, Blu and the rest of the family as we go through this next chapter of testing, because we may finally have Answers for Indy….

Medical Update Time! Honestly there’s really not been much to update on. However I did see yet another new specialist an...
07/09/2025

Medical Update Time!

Honestly there’s really not been much to update on. However I did see yet another new specialist and of course, they didn’t have answers. In fact, this doctor was genuinely shocked by just how many rare conditions I have.

It was my new hematologist. He was wonderful and it was great to get established with a new one since I’ve now aged out of CHOP and can’t see my old one anymore. However I did find out some things that I definitely did not want to hear.

The first of which is that our Pharmacies here in Delaware (as well as our hospitals) do not carry factor. So that means that if I go to the hospital here in Delaware and need transfusions of factor, I’ll be out of luck. In fact, he told me that for anything major like upcoming surgeries that I should go to either University of Penn in Philly or Johns Hopkins in Baltimore. It’s really scary because if I have any emergencies I’ll need to be airlifted out of state. But that’s life I guess, and so I’ll run with it.

I love you guys!!!

31/08/2025

Sooo it absolutely sucks to say this but unfortunately my Instagram accounts (including my medical updates one) as well as my personal FB) were launched into a void of uncertainty due to a glitch in the system for M3TA that unfortunately has wrongly suspended millions of accounts. I’ve filed numerous appeals and I’m currently pursuing my next steps to recover everything.

I’m currently typing this from my old FB account from 2019 that is under my mom’s name due to FB trying to take that in 2018ish because of their age restrictions. That account is still linked to this one, as well as my mom’s account itself meaning that I have multiple backup options for this medical blog.

I love you all and I’m so sorry for not having a sooner explanation! I wish everyone the absolute best and I’ll be here soon with an update! Also for everyone who came over from my currently suspended Instagram account or FB account, please spread the word of what happened so people can find me again!

\\\ Medical Update /// Hey guys! Long time no see and I’m here to change that! I’m officially tubeless again. After talk...
08/08/2025

\\\ Medical Update ///

Hey guys! Long time no see and I’m here to change that! I’m officially tubeless again. After talking with my therapist, we realized that my depression could be a factor in me just completely losing my appetite. When I’m depressed, I never notice it because it’s honestly a normal feeling for me. I plan to start using an emotion tracker again now. As for me, I’m starting to feel like myself again and a few days ago I even went to a waterpark to celebrate a friend’s birthday! So things are looking up, and I’m so glad they are!

Feeding time….
27/07/2025

Feeding time….

It’s now a leash that beeps and I take no criticism. I will always make up better names for every single thing I come in...
26/07/2025

It’s now a leash that beeps and I take no criticism. I will always make up better names for every single thing I come in contact with and this is another example of such.

24/07/2025

Alrighty buckle up folks for a long overdue update,

So wildwood was fun! Maybe too much fun… While I was in Wildwood I fell in the pool at the hotel. I didn’t realize that where I was standing was a ledge, so I went to walk normally and slipped and hit my leg on the concrete wall of the pool. It seemed fine at first, but over the course of the following week it swelled and I had a mass that was the size of a golf ball and it prevented me from bending my right knee. I ended up spending many fun hours in the ER, while trying to figure out what this is. I got scans, blood tests, ultrasounds, the whole shabang- I was diagnosed with a Hematoma.

There’s one s**tshow covered. Now let’s get on to the next one, shall we?

The next morning, I woke up at 3 in the morning gasping for air, unable to regulate my body temperature and vomiting. Turns out I caught “ER plague” aka some random sickness that was running wild in the ER. It kicked my ass so hard, that what little appetite I had was gone and now I have an NG tube again…

It’s been fun, which is a lie. It’s been hell. I’ll figure it out though.

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