Answers for Indy

Answers for Indy Here’s the medical blog of a chronically ill neurodivergent life support survivor! Welcome to my life

03/05/2026

So it’s been awhile but I did promise you guys an update after my trip to the allergist so here it is!

This appointment actually went fu***ng incredible. Just when I lost all faith in medical professionals, I went to that appointment and for once left more optimistic than I was when I came in.

The allergist was really helpful. The only way I can describe his mannerisms is that he reminds me of House MD, but that’s what I need. I don’t need someone to unnecessarily sugarcoat things, I need someone who is down to find answers and he is down to help. He explained the testing for MCAS and I have to get two sets of bloodwork. A normal set and then a set during a flare, and then they’ll compare the labs and if my Mast Cell levels go up significantly then it can be confirmed that I have MCAS. He said it is very plausible that MCAS could be an answer for me and he prescribed the testing. He also tested me for hyper-mobility. I had a bit in my hands and wrist (which I already knew) and that was it. He was also very concerned about my heart and the possibility of me having POTS which I’ve wanted to see a cardiologist about for years because I have a lot of the symptoms of POTS so he’s sending me to a specialist in Maryland to have that checked and potentially diagnosed.

All in all, this was a success. One step closer to answers, one step closer…

Send me every single ounce of good luck you can, because today is the day that I see the allergist and start the process...
28/04/2026

Send me every single ounce of good luck you can, because today is the day that I see the allergist and start the process of possibly getting answers 😭❤️‍🩹

25/04/2026

Wanted to do a little introductory post for those who are new! ❤️‍🩹

Hi! My name is Indigo (but I mostly go by Indy)! I’m neurodivergent (Autism + ADHD) and Chronically Ill. I use They/She/He pronouns and I am proudly LGBTQ! 🏳️‍⚧️🏳️‍🌈

This account follows my medical journey, which began in February of 2014 with a diagnosis of Cyclic Vomiting Syndrome. Below is a list of my conditions and what I’ve been through!

Conditions:
ARFID (Avoidant Restrictive Food Intake Disorder)
Spastic Diplegia Cerebral Palsy
Autism + ADHD
Cyclic Vomiting Syndrome
Undiagnosed Mast Cell Activation Syndrome (working on a diagnosis!)
Von Williebrants Disease
Avascular Necrosis of the hips and left knee
An unknown potassium deficiency
Epilepsy

In addition to this I’ve had over 50 surgeries and survived life support!

Welcome to my life, I’m happy to have you here!

Hey everyone! It’s Indy and I wanted to do a medical update for you all!So first of all, Emotionally I’m a bit anxious b...
25/04/2026

Hey everyone! It’s Indy and I wanted to do a medical update for you all!

So first of all, Emotionally I’m a bit anxious because I’m currently off two of my three psych meds for the first time. I’ve never been off them before and I don’t ever want to feel how I did without them or be in a state of mental distress again.

It’s temporary, it’s only for a few days. That’s what I’ve been telling myself.

I had to stop my hydroxyzine and seroquel because of my upcoming trip to the Allergist to get tested for Mast Cell Activation Syndrome (MCAS). These meds have qualities that would affect the results of the testing so from yesterday night until Tuesday night, I won’t be taking them.

I’ve also not been doing good medically. I’ve been in severe pain and sleep is nonexistent for me which isn’t good. My balance and stability on my feet is fading away, I actually fell at my LGBTQ community group and fu**ed up the back of my right leg and my right wrist. Blu has been my goddamn rock through the whole thing and has taken amazing care of me. I love her and I don’t know what I’d do if i didn’t have her.

(Ps. Blu (or Luna) and I are both trans. I am genderfluid, Blu/Luna is Transgender MTF. If you do not like that, this is your cue to get off my account)

Anyway I’ll update after my appointment on Tuesday, love yall! ❤️‍🩹

23/04/2026

After a lot of back and forth debate (and me falling pretty hard last week), I’ve decided to start fundraising for a wheelchair!

Please share and donate!

22/03/2026

Today is March 22nd, and while some of my friends on here may view it as a regular day, for me and many others it has a deeper meaning and I’d like to talk about it for a second.

As many of you know, music is my coping mechanism. It always has been. As someone who is autistic and was never supposed to be able to communicate verbally, music helped me understand and pronounce words. Music has gotten me through so much pain, and the band that has gotten me through all of it is a band called My Chemical Romance! Now why is this important? It’s because on this day 13 years ago, March 22nd 2013, My Chemical Romance announced that they were breaking up. It caused shockwaves and their disbandment is one of the most influential musical disbandments in recent music history because regardless of if you were a fan or not, chances are that you knew about it from somewhere because of the impact it made. Well on October 31st 2019, the band reunited as a whole and since has gone on two tours and I’ve been to both of them as a special guest of theirs. In 2022, Kids Wish Network granted my wish to see them and my mom Tinamarie Fioravanti got permission from tour management for me to be able to meet them since Kids Wish Network couldn’t grant any wishes of meeting people due to the pandemic. During that meeting, I told them about Disenchanted, which is a song from their 2006 alarm The Black Parade. The Black Parade as a whole follows a character known as “The Patient” who has terminal illness and his journey through battling it and eventually his journey to the afterlife where everyone who has died is celebrated. The world of The Black Parade is genuinely what helps me cope with the very real fact that I could die at any given time because I know there’s a parade waiting for me when that day comes. Disenchanted as a song has gotten me through everything. Every poke, every prod, every test, every IV, etc Disenchanted has been there and the lyrics “You’re just a sad song with nothing to say about a life long wait for a hospital stay” and “It was a lie when they smiled and said you won’t feel a thing” are the two most influential lyrics to me and when I met them, I said it was my dying wish to hear Disenchanted. They said they hadn’t practiced it in so long that they weren’t sure how, but that if they ever played it again I would be there for it. They kept that promise to me and in August 2025, I got my wish. I almost didn’t make it because of everything that happened a year prior in 2024, but I made it and this is the video from that very day…

Welcome back guys, we’re so damn glad to have you back!

18/03/2026

I didn’t ask for this life, this life asked for me…

13/03/2026

To my friends with Dysautonomia who have Apple Watches for health purposes, how do you like them? I know they help a lot of people with different Dysautonomic conditions and recently I’ve been looking into getting one for health tracking purposes but I wanted to hear everyone’s thoughts on them first before I spend close to 300 dollars on one.

Also if you don’t have an Apple Watch but you have a different health tracker that is similar, leave your experiences! The only thing I don’t wanna get is those Oura smart rings and that’s because they’re like 400 dollars and you have to pay a monthly fee just to use it and that’s absolutely ridiculous in my eyes because if I’m paying that much for it, I shouldn’t have to pay an additional fee every month just to use it.

22/02/2026

This isn’t exactly medical related, it’s more related to the companions that make my fight worth fighting, of course that being my pets. Of course you already know Bridget Bug, you may know about my Angel, Onyx Nova, however I don’t think I ever mentioned (Bare with me because her full name is long) Like Phantoms Forever “Menace To Society” aka Phantom.

I am a very spiritual person, and believe in following the stars and recently I found out that each of their star signs goes along with their temperament and boy, it’s truer than true.

Bridget was born on January 4th, making her a Capricorn, and Capricorn dogs are usually very disciplined, loyal, and make a reliable companion with a "wise old soul"

And that is her to a T! She’s an old soul and the best ESA ever!

Next is Phantom, and while we aren’t sure what her birthday is, it was definitely during Ta**us season! This one doesn’t shock me at all, as Ta**us cats are known for being stubborn yet loyal and like consistent schedules, and dislike abrupt changes and that’s her exactly! (Except she’s a bastard and hates me)

Lastly is Onyx Nova, and she was a Sagittarius like me! Sagittarius dogs are adventurous, high energy, and independent spirits who love exploring, traveling, and socializing. Which was her personality perfectly. God I miss her.

But all of these gave me more insight on my animals and their roles in my life, and I’m forever grateful for that!

17/02/2026

So medical update for you guys,

So a few days ago I went to my primary care doctor. We talked about a few things. The first was about how pain management is absolutely useless and he’s referring me elsewhere, to which I went on a tangent about how I’m getting fed up and thank f**k he understands it because my case worker from insurance doesn’t.

I mean if you sat in agony for months to a year for an appointment, just to be told “we don’t treat that” and then wait another period of months to a year for an appointment only to get there and be told to microdose ketamine and go through an endless cycle of the same s**t for 9 years, you’d get fed up too, right? But apparently that’s impossible for any of these bozos to comprehend.

Anyways after that long tangent, we talked about MCAS. He then proceeded to say “I don’t know anything about that” which honestly wasn’t a surprise considering what happened when I had the SMAS (which during that ordeal I lost 50 pounds and couldn’t eat food and he tried to diagnose me with bulimia, go figure) and he wrote me an anti-histamine. The first two days of it were fine, but last night was the night from hell because leave it to me to end up having every single side effect of the medication at one time. I’m talking headache, nausea, severe fatigue, lightheadedness, major stomach pain and probably the worst of all was the fact that I was not tired at all, I could not sleep, but I felt like I didn’t have the energy to be awake or even alive. I needed something to do, and honestly I wanted to just lay in my bed with Blu and cuddle and play video games because that’s what I’ve been doing when I feel like s**t and usually it calms me, but I didn’t even have the energy to turn on my Nintendo Switch or hold Blu’s hand let alone play a game. We stopped that immediately and thankfully I’m feeling much better. So yeah, that’s the update for now. I love you guys, thank you for reading ❤️‍🩹

Another day, another doctors appointment!
12/02/2026

Another day, another doctors appointment!

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