Alicia's Journey with IIH

Alicia's Journey with IIH "Empowering Lives, Sharing Stories Together in IIH and Beyond”
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Alicia's Journey with Idiopathic Intracranial Hypertension (IIH) is a platform where Alicia courageously shares her experiences navigating life with this condition. Join her as she confronts her struggles, celebrates her triumphs, and tackles the daily challenges associated with this rare neurological disorder characterized by high intracranial pressure around the brain. From initial diagnosis to

exploring treatment options, Alicia's narrative illuminates the significance of awareness, resilience, and the power of community support in overcoming adversity. Whether personally affected by IIH or seeking to deepen understanding, Alicia's journey offers invaluable insights, inspiration,and a beacon of hope for all.

Living with an invisible chronic illness is of the hardest things to explain because so much of the struggle happens w...
05/10/2025

Living with an invisible chronic illness is of the hardest things to explain because so much of the struggle happens where no one can see it. The pain, the fatigue, the uncertainty they become a part of your everyday life. You learn to smile through it, to show up even when your body is screaming for rest, and to keep moving forward when it feels like everything is holding you back.

Advocating while living it isn’t easy either. It means opening up about your pain, educating others who may never truly understand, and constantly reminding the world that “invisible” doesn’t mean “imaginary.” Some days it takes all your strength just to exist and yet, you still find the courage to speak out, raise awareness, and stand up for others fighting silent battles too.

Because sharing your story isn’t just about you it’s about giving a voice to those who are too tired, too afraid, or too misunderstood to speak. You make the invisible visible, and that’s powerful. 💚💙

🎉💙 IT’S MY BIRTHDAY MONTH 💚🎉This year, I’m celebrating all month long and guess what? YOU can celebrate with me! 🎂✨I cre...
01/10/2025

🎉💙 IT’S MY BIRTHDAY MONTH 💚🎉
This year, I’m celebrating all month long and guess what? YOU can celebrate with me! 🎂✨
I created an Amazon Wish List 🎁 filled with gifts (yes, actual gifts!) and I’d be so grateful if you picked something even if it’s just $3.00. Every little blessing means the world to me. 💙💚
Let’s make this birthday extra special together. Thank you for walking with me, cheering me on, and always showing love. 🙏🏾💙💚
👉🏾 https://www.amazon.com/hz/wishlist/ls/2SRUB478G13B6?ref_=wl_share

Hello October 🍂✨ New month, fresh chances, and a gentle reminder that growth is beautiful even when it feels slow. 💙🦋 ...
01/10/2025

Hello October 🍂✨ New month, fresh chances, and a gentle reminder that growth is beautiful even when it feels slow. 💙🦋

Rise and shine 🌞 — Wednesday whispers: you’re halfway there, don’t give up now.
01/10/2025

Rise and shine 🌞 — Wednesday whispers: you’re halfway there, don’t give up now.

✨🙏 THANK YOU 🙏✨From the bottom of my heart, I want to say thank you to each and every one of you who stood by me during ...
01/10/2025

✨🙏 THANK YOU 🙏✨

From the bottom of my heart, I want to say thank you to each and every one of you who stood by me during these challenging times. Your love, prayers, words of encouragement, donations, and participation in the activities for IIH Awareness Month meant more than I could ever put into words. 💙💚

This journey has not been easy, but knowing I am not walking it alone has given me the strength to keep going. Every message, every share, every act of kindness has made an impact not just on me, but on the mission to raise awareness and restore hope for those living with IIH.

To my friends, family, supporters, and fellow warriors thank you for being part of my journey. Together, we are rewriting the story of IIH with courage, compassion, and unwavering faith.

💙💚 With love and gratitude,
Alicia

As Tuesday ends, may your heart be light and your sleep be sweet. 🌙✨
01/10/2025

As Tuesday ends, may your heart be light and your sleep be sweet. 🌙✨

30/09/2025

💙💚 Donation Drive Continues Final Push for IIH Awareness Month 💙💚

Family, friends, and kind supporters, thank you for standing with me not just in September, but before this month began and beyond it as well. IIH Awareness Month may be closing, but my battle is not. Idiopathic Intracranial Hypertension isn’t just a condition, it’s my daily reality, and the road ahead includes more procedures and another major surgery.

That’s why the donation drive will remain open. Your support covers the essentials: diagnostic tests, imaging, medication, transportation, peri-op supplies, and recovery needs. Every gift, big or small, helps carry me through this next phase.

✨ How You Can Help
• GoFundMe: https://gofund.me/ad1f359e4 / Idiopathic Intracranial Hypertension - IIH Awareness Month
Please lend a hand and help
SpurrOpen.com/CareToGive

• Bank Transfer (JMD): See poster
PayPal: https://www.paypal.me/AliciaRobinson217

Suggested Giving Tiers:
🇯🇲 JMD: $1,000 | $2,500 | $5,000 | $10,000+
🇺🇸 USD: $10 | $25 | $50 | $100+
📌1000 person gives $1000.00



💙💚 September was for IIH Awareness 💚💙Tomorrow closes the chapter on IIH Awareness Month, but the fight doesn’t clock out...
30/09/2025

💙💚 September was for IIH Awareness 💚💙

Tomorrow closes the chapter on IIH Awareness Month, but the fight doesn’t clock out at midnight. Idiopathic Intracranial Hypertension (IIH) is not “just a headache.” It’s blinding pain, vision loss, endless ER visits, surgeries, and lives turned upside down.

This month, stories were told. Faces were seen. Hope was shared and message is clear: we need awareness, research, and compassion every single day.

👉 Severe headaches.
👉 Swelling of the optic nerves.
👉 Pulsating ringing in the ears.
👉 Nausea, dizziness, vision slipping away.

That’s IIH. And too many warriors are living it silently.

As we close out September, don’t let the awareness fade. Share this, talk about it, keep the conversation alive. Because raising awareness is how we rewrite the journey for every IIH fighter, everywhere.

💙💚 Together we stand: Strength in the Struggle.

Strength in the struggle isn’t just a slogan it’s survival forged into power. It’s what happens when the weight of life ...
30/09/2025

Strength in the struggle isn’t just a slogan it’s survival forged into power. It’s what happens when the weight of life presses down and instead of breaking you, it chisels you into something unshakable.

For those of us living with Idiopathic Intracranial Hypertension (IIH), the struggle is daily pounding headaches, nausea, blurred vision, endless hospital visits, the constant fear of losing sight. But even in the face of all that, we keep standing. IIH tries to weaken us, but instead it awakens a fight we never thought we had. Every spinal tap, every surgery, every tear shed in pain is proof of a warrior’s resilience.

True strength doesn’t come from easy days or smooth paths; it’s carved out in the storms, in the tears no one sees, in the moments when giving up seems easier than holding on. Struggle reveals your backbone. It pulls from you a kind of courage you didn’t know you had, the kind that whispers, “Not today. I’m still here.”

Strength in the struggle means that even when you’re bent, you don’t break. Even when you stumble, you rise and even when IIH tries to silence you, your very breath declares: I am not defeated.

Good morning 🌺 — Tuesday is proof that small steps still move you forward.
30/09/2025

Good morning 🌺 — Tuesday is proof that small steps still move you forward.

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