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BloodStream Media The #1 Rare Disease Podcast Network in the World. BloodStream Media is a network of podcasts intended for the bleeding disorders community.

BloodStream Media podcasts include The BloodStream Podcast, Ask The Expert, and The Powering Through Podcast. Learn more about our individual podcast series at BloodStreamMedia.com

03/07/2025

Simon Fletcher, a research nurse and PhD candidate, is on the latest Gene Therapy segment discussing the mystique of gene therapy and how it’s important to hear stories from people who have had good results. More on the latest BloodStream!

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor:
It’s a Whole New World brought to you by CSL

02/07/2025

Chip Hailey said yes to gene therapy for hemophilia B and shares his decision-making process on the latest BloodStream!

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor:
It’s a Whole New World brought to you by CSL

02/07/2025

Dr. Rachael Grace highlights the importance of early screening for bone density issues in young people with pyruvate kinase deficiency. Being proactive with vitamin D, calcium, and bone-strengthening exercises from childhood can help prevent low bone density later in life. Preventative measures taken today can positively impact future health outcomes.

Available now: www.JustListenPod.com

Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK Deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community.

Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD.

This podcast is not intended as medical advice. Please consult your healthcare team with any treatment re­lated questions.

01/07/2025

Craig Benson share the importance of patient advisory boards in clinical trial phases on the latest Bloodstream!

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor:

30/06/2025

Hear nurse practitioner Melony Avella-Howell discuss the transition from pediatric to adult care in thalassemia. Watch the snippet then go watch the entire episode!

Available now: https://pod.link/1639436269

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community.

Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions.

30/06/2025

In this segment of Gene Therapy: A Whole New World, Hanna explores what it feels like to make a big decision like gene therapy — what role identity, personal goals, and timing all play. You’ll hear from Chip Hailey, who lives with hemophilia B, as he walks us through his journey toward saying yes to gene therapy — and what it’s meant for him since. You’ll also hear from Simon Fletcher, a research nurse and PhD candidate, who helps break things down from a clinical and compassionate lens.

Listen, Rate, Review, and Subscribe where you get your podcasts!

It’s a Whole New World brought to you by CSL

27/06/2025

New treatment options are here for the hemophilia community! Learn more in Patrick’s conversation with Craig Benson and our latest gene therapy segment that focuses on the psychological impact of gene therapy. Plus, we share news about the Genentech and Spark integration.

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor: , visit bleedingdisorders.com to learn more.
It’s a Whole New World brought to you by CSL

Segment is brought to you by Genentech, visit www.hemashort.com to watch the short film.

26/06/2025

How DO these manufacturers comes up with these drug names? 👀

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor: , visit bleedingdisorders.com to learn more.
It’s a Whole New World brought to you by CSL

Segment is brought to you by Genentech, visit www.hemashort.com to watch the short film.

26/06/2025

Jim Fagan talks about how the writing staff approached the storytelling for Stop The Bleeding!

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor: , visit bleedingdisorders.com to learn more.

25/06/2025

Writer/Director Jim Fagan was interviewing with The Daily Show and they had to ask - What is Stop The Bleeding? 😂

Listen, Rate, Review, and Subscribe where you get your podcasts!

Presenting Sponsor:

25/06/2025

Feeling anxious about transitioning from pediatric to adult care? 🤔 We got you covered! In today's episode of Thal Pals, Nurse Practitioner Melony Avella-Howell shares her experiences and tips for making this journey smoother and less intimidating. Available now: https://pod.link/1639436269

Listen, rate, review, and subscribe wherever you get your podcasts!

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community.

Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions.

25/06/2025

🎧 New Episode Alert! 🎧 Catch Dr. Rachel Grace talking with Dr. Andreas Glenthøj on "Just Listen: Voices of PK Deficiency"! 🩺🧬 📝 Highlights: - Dr. Toy's journey into hematology - Managing iron overload and bone density - Using international PKD guidelines for better care Listen now and stay informed!

Listen, rate, review, and subscribe wherever you get your podcasts!
Or by clicking here: www.JustListenPod.com

Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community.

Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD.

This podcast is not intended as medical advice. Please consult your healthcare team with any treatment re­lated questions.

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