10/13/2025
Be part of the future of rare disease innovation! On 6 November 2025,Cambridge Rare Disease Network will host - a landmark tenth-anniversary event celebrating a decade of progress and collaboration across the rare disease community.
The summit will bring together a diverse range of voices - leading researchers, clinicians, biopharma innovators, patient advocates, policy experts, and people with lived experience of rare conditions - to share insights and explore what’s next for rare disease research and care.
With sessions designed to spark new ideas and collaborations, and plenty of time for networking, poster presentations, and exhibition stands, this is a unique opportunity to connect across disciplines and sectors.
🔦 SPEAKER SPOTLIGHT: Breathing Life into Existing Technology
One of this year’s featured talks will come from Keep Me Breathing, a charity leading a groundbreaking global collaboration to transform care for those with CCHS (Congenital Central Hypoventilation Syndrome).
Founded in 2023 by James Oakley following his son’s diagnosis, Keep Me Breathing has brought together more than 130 international experts to develop a biofeedback system that could one day replace lifelong ventilator dependence.
It’s a compelling example of how patient-driven research, supported by cross-sector collaboration, can accelerate innovation and change lives.
Read about the speakers, view the full agenda, and secure your place at to join the diverse community driving the next chapter in rare disease innovation, on CamRARE’s website: camraredisease.org/raresummit25
