Chronic Resilience

09/05/2026

Stress, worry, and anxiety simply come from projecting your thoughts into the future and imagining something bad. This is focusing on what you don't want! If you find that your mind is projecting into the future in a negative way, focus intensely on NOW. Keep bringing yourself back to the present. How present are you in your life? Practice presence with Rhonda's book The Power http://bit.ly/The-Power-Book

09/03/2026

I had hand surgery yesterday. It was a small, in office procedure. I anticipated the pain and prepared for it.

I have a firm believe in setting myself up for success.

Yes, dealing with multiple chronic illnesses means success can look different all the time. In this case, it means being as self sufficient as possible without inflicting more pain on myself.

Here are some ways I prepared for surgery.

I cleaned my house as best as I could in the week before surgery.

Washed all my clothes , leaving my easy on and off , most comfie clothes where I can easily reach them. So no leggings, for instance because it requires a lot of hand use just to go to the bathroom.

Prepared some foods I can just heat and serve to eat as healthy as possible. Honestly, I only got this half done because of pain. This whole plan is best intentions… not about perfection.

Refilled all prescriptions and filled my daily pill packs for 3 weeks.

Set up my ‘nests’ before surgery. For me, that’s my bed and my living room. Favorite blankets, pillows to prop up and support various body parts. Chargers for my electronics in both places so I don’t have to move them. ( I prefer extra long cord for ease of use…. 6-10 feet.

If friends or families ask how they can help - let them!
Think through what you might need help with.

Yard cut?
Dog walked?
Driving to appointments, picking up kids?
A grocery run?

This list of preparations varies based on the surgery… but I hope it might inspire you to set yourself up for your best interests.

08/26/2026

I-love this creators take on things. Check her out on you tube and follow!

♿😂 Apparently we need to discuss accessible bathroom etiquette.Th...

08/23/2026

I just had this conversation…. No one understands the cost of being chronically ill and or disabled.

The appointments, for me it’s about 10 ‘routine’ visits a year, plus all the appointments that follow the routine visits. Plus X-rays, mris, etc.

The equipment. For me, multiple braces for foot, ankle, knee, hands… wheelchair, pain management items,

The worry and effort, trying pack it up to travel. Hoping the airInes don’t lose or break medical equipment.

Then you navigate your destination….

Disney World’s daily wheelchair rental fee adds another accessibility cost for weeklong vacations.

08/13/2026

Thus isn’t about celebrity… it’s about what it takes to deal with chronic illnesses.

Living with multiple sclerosis can mean facing challenges that most people never see. 💙

This post highlights the strength it takes to keep going through MS symptoms, fatigue, pain, mobility challenges, medical appointments, hospital stays, and unpredictable health days. Being strong doesn’t mean you never struggle—it means you keep moving forward even when your body makes everyday life harder.

For people living with multiple sclerosis, chronic illness, invisible disabilities, or neurological conditions, emotional support and understanding can make a huge difference. Access to quality healthcare, personalized treatment, rehabilitation, physical therapy, and mental health support can also play an important role in managing life with a chronic condition.

If you or someone you love is navigating MS, remember that asking for help is not weakness. Rest is not failure. And having difficult days does not erase your strength.

08/13/2026

08/12/2026

Sometimes self advocating is helping those close to you understand what you are feeling. I hope this helps!

08/05/2026

This is conversation most of us have with our selves….

It’s also a conversation those around us have about us.

The hardest part of chronic illness is never knowing how you will feel, despite all the planning and care we put into planning our day. How do you plan for a day when you never know what your body is capable of with out causing setbacks and flares?