08/09/2026
Chronic Illness Evaluations Update:
I saw the endocrinologist for the first time last week. They ordered a s**t ton of tests based on my symptoms, including the symptoms that affect how my body feels & my functionality as well as my visual appearance related symptoms.
They found an enlarged thyroid on my physical exam (specifically left side thyromegaly, 16grams) so I need a thyroid ultrasound done which is scheduled for this week.
I’ve been in a flare up since late last night so I began the 24 hour urine cortisol test they ordered this morning.
The blood tests she ordered that have come back ruled out diabetes & pre-diabetes and also inadvertently proved that I do NOT have PCOS, only the endometriosis as far as reproductive system concerns (I’ve known the PCOS was a misdiagnosis for a while due to other things but nice to have the hormones confirmed).
They’re doing thorough evaluations for Cushing’s disease and keeping in mind that IF I have it, my fluctuating symptoms indicate a cyclical version of it. As you could probably tell by the thyroid testing and enlargement, they’re also looking for hypothyroidism, possibly Hashimoto’s thyroiditis.
Apparently I have many hallmarks of both.
We also know from the blood tests that came back, I have low vitamin D to the point of deficiency. This explains a lot no matter what we find next because it can cause a lot of the symptoms on it’s own & also can be associated with/caused by either of the conditions I’m being evaluated for.
I feel like we’re FINALLY so close to understanding what the hell has been happening to my body the last 2-3 years and with that, whatever it is, will finally come an actual treatment plan.
It’s been such a long and hard road to get here.
I know I need to be patient but I just wanna start feeling better. It’s been too long of so many important aspects of my life getting completely fu**ed up by my symptoms.
So many people said I was faking. So many people said I was being overdramatic and trying to get out of responsibilities since my symptoms aren’t always at a moderate or severe level. So many people thought I just wanted attention for a “fake illness”.
But this has genuinely torpedoed so many important things to me.
My ability to meaningfully work.
My ability to be a physically active & constantly present mother.
My ability to go out for a relaxing night.
My ability to improve my self esteem regarding how I look due to how severely this changed my physical appearance.
And more.
I just want to know what it is so I know how to get better and can do exactly that.
I deserve a better version of me, my boyfriend (who bless his soul has been CARRYING us financially since I first got sick) deserves a better version of his girlfriend, and most importantly- our daughter deserves a better version of her mother.