Baltimore, Maryland - Hydrocephalus Association WALK

Baltimore, Maryland - Hydrocephalus Association WALK The Baltimore WALK to End Hydrocephalus connects local families living with hydrocephalus and supports the Hydrocephalus Association's (HA) mission to find a cure and improve the lives of those impacted by the condition.
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The Hydrocephalus Association (HA) is the nation's leading organization working to eliminate the challenges of hydrocephalus and improve the lives of people and families living with this condition. With a national support network of over 30 community partners the HA provides support, education, and advocacy to thousands of families each month, and is aggressively executing a new research agenda aimed at improving the lives of people and families affected by hydrocephalus. http://www.hydroassoc.org/donating-volunteering-for-hydrocephalus/store/ http://www.hydroassoc.org/hydrocephalus-education-and-support/hyrocephalus-publications-products/

Mission: The mission of the Hydrocephalus Association is find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Operating as usual

11/27/2020
Give Without Spending!

ONLY A FEW DAYS LEFT for us to raise $100,000 through Express Feedback for Good! All you need to do is share your opinions on companies and brands. Every opinion you give creates much-needed funds to support HA's research and support programs! Share 75 opinions and you'll receive a $5 Amazon gift card! It's FREE and EASY! To sign up, text HYDRO2020 to 31996 or visit http://bit.ly/Hydro-Soc

11/26/2020
Happy Thanksgiving!

Happy Thanksgiving from all of us at the Hydrocephalus Association!

Recognition reminder!!! Did you raise $250 or more? If you did, please look for an email this week from thankyou@hydroas...
11/10/2020

Recognition reminder!!! Did you raise $250 or more? If you did, please look for an email this week from [email protected] with instructions.
Please remember:
1. If someone does not have an email associated with their registration (one person registers family members with one email) Only ONE person will get the email, the rest will get a hard copy, USPS letter with their code and instructions.
2. There is a deadline to redeem!!! 12/10/20
3. The email is coming from [email protected] (check spam!)
4. If you have any issues please email [email protected]

10/07/2020
Double your Donations

We know these times are tough. To help motivate you to continue fundraising for the WALK to End Hydrocephalus, Leslys Vedder has offered to match all WALK donations in October up to $25,000! That means $20=$40, $100=$200 and so on! So, continue fundraising for your local WALK. And if you haven't registered, it's not too late! #hydrostrong

We often say, “We are Stronger Together” ... and this year is NO exception. Because guess what??? TOGETHER we have reach...
10/03/2020

We often say, “We are Stronger Together” ... and this year is NO exception. Because guess what??? TOGETHER we have reached our first site goal of $48,000!!! That is definitely something to celebrate! Thank you to our families, sponsors and entire Hydrocephalus community for your tireless support and fundraising for the Hydrocephalus Association.

And because we know our community can take on any challenge, we’ve raised the bar. Help us get to our next goal of $50,000! Remember that you can still earn recognition prizes through November 1st! How far can we go for hydrocephalus?!

10/02/2020
Your gift is waiting!

We want to recognize you for your hard work! We have extended our deadline for incentive prizes until November 1st!
Registration is still open so it is not too late to get started today! Donations are also accepted until the end of 2020!

Baltimore, we are SO close to our goal!! Can you help us get there ... and push us even higher?? There’s still time! Don...
09/29/2020

Baltimore, we are SO close to our goal!! Can you help us get there ... and push us even higher?? There’s still time!

Donations will still count toward earning recognition prizes and awesome Hydrocephalus Association gear until November 1st!

09/26/2020
Aesculap ALL SITES

We want to give our deepest thanks and a round of applause for our industry partner, Aesculap! 👏

THANK YOU for supporting and believing in our mission to find a cure.
#HydroStrong Together 💙

09/26/2020

Today we celebrate the resiliency, creativity and strength of the hydrocephalus community at our first-ever VIRTUAL NATIONAL WALK TO END HYDROCEPHALUS CELEBRATION! Tune in today at 3 pm Eastern time at the link below as we hear inspiring stories and see what makes the WALK to End Hydrocephalus so special. Featuring actor/singer Phylicia Rashad, actor Max Greenfield, Daryl Evans and Blake Bolden of the L.A. Kings, and much more!
https://www.youtube.com/watch?v=hJ1D3H8UWig&feature=youtu.be

09/25/2020
GENERAL Codman

ONCE AGAIN... we MUST thank Codman Specialty Surgical for being one of our industry partners! 🩺

We hope to WALK together in-person again next year!
Until then, we are staying #HydroStrong together 🤝

09/25/2020
Thank You Sponsors! (ALL SITES)

We want to show some 💙 for everyone who has supported us this year...and that of course, includes all of YOU!

Thank you for staying #HydroStrong this year and continuing to support our mission to FIND A CURE! 🌊🩺💙

Medtronic: https://www.medtronic.com/us-en/index.html
Codman Specialty Surgical: https://www.integralife.com/codman
Aesculap: https://www.aesculapusa.com/en.html
Longeviti Neuro Solutions: https://longeviti.com/
Cerevasc: https://cerevasc.com/
Kaiser Permanente / Mid-Atlantic Permanente Medical Group Physician Careers: https://mid-atlanticpermanentecareers.org/

09/25/2020
Thank You Cerevasc (ALL SITES)

We are SO GRATEFUL for our industry partner, Cerevasc! 💙
Thank you for supporting our mission to #FindACure for #Hydrocephalus!

Staying #HydroStrong together 🤝

09/24/2020
Thank You Longevity Baltimore ONLY

We look forward to being together with our industry partner Longeviti Neuro Solutions in person again next year.
Thank you for supporting OUR MISSION to find a cure for hydrocephalus.
Staying #HydroStrong together 🤝

09/23/2020
Johns Hopkins Medicine - 2020 Baltimore WALK gold sponsor

Thank you to Johns Hopkins Medicine for being a 2020 gold sponsor for the Baltimore WALK to End Hydrocephalus. And thank you to the pediatric and adult departments of neurology and neurosurgery for supporting their hydrocephalus families in so many ways!

09/22/2020
Hydrocephalus Association

Join us on Sept. 26 for our virtual National WALK To End Hydrocephalus Celebration, where we'll highlight the resiliency, strength, and creativity of our community! Get ready for inspiring stories and special appearances by actor/singer Phylicia Rashad, actor Max Greenfield, Daryl Evans of the L.A. Kings, and more! Tune in on Sept. 26th at 3 pm EST on our YouTube channel! https://www.youtube.com/HydroAssoc

Join us on Sept. 26 for our virtual National WALK To End Hydrocephalus Celebration, where we'll highlight the resiliency, strength, and creativity of our community! Get ready for inspiring stories and special appearances by actor/singer Phylicia Rashad, actor Max Greenfield, Daryl Evans of the L.A. Kings, and more! Tune in on Sept. 26th at 3 pm EST on our YouTube channel! https://www.youtube.com/HydroAssoc

09/22/2020
EVLOS Technology - 2020 Baltimore WALK gold sponsor

Thank you to Evlos Technology for being a gold sponsor for the 2020 Baltimore WALK to End Hydrocephalus! Find out a little more about what they do and their connection to the mission of the Hydrocephalus Association!

09/18/2020
Coca Cola Consolidated - 2020 Baltimore WALK gold sponsor

Thank you again to Coca-Cola Consolidated for being a gold sponsor for the 2020 Baltimore WALK to End Hydrocephalus. This is their third year being part of our event, and they sure know how to bring the FUN to our in-person WALKs. Look at all these smiling faces coming together over the past few years for our Baltimore hydrocephalus community!

09/17/2020
Constellation Jeopardy-style Sponsor Video

Check out this informational and fun video from one of our 2020 Baltimore WALK gold sponsors, Constellation. This Jeopardy-style game was featured during our live virtual event. Thank you again to Constellation and it's employees for supporting the Baltimore hydrocephalus community in so many ways!

We had so many great photo entries for our virtual walk photo contest. Search the hashtag #BaltimoreHAWALK on Facebook a...
09/14/2020

We had so many great photo entries for our virtual walk photo contest. Search the hashtag #BaltimoreHAWALK on Facebook and Instagram to see how our community spent the weekend raising awareness and celebrating our Hydro Warrior community. And don’t forget to keep the donations coming to help us reach our $48,000 goal ... we’re SO CLOSE and currently at 91 percent with $43,911!

And now onto our contest winners ... the WINNERS of our virtual photo contest are:

Most festive team: DOMinate Hydrocephalus

Most Creative Independent Activity: Emily Campagna from Happy Heads for “tying knots in OT”!

Congrats to our contest winners! We will be reaching out soon to our winners to arrange for your Amazon gift cards. Thank you all so much for participating and sharing your videos and photos for all to see! Feel free to keep using the hashtags #HydroStrong and #BaltimoreHAWALK to stay connected during this Hydrocephalus Awareness Month!

During our virtual Baltimore WALK program this past weekend, participants had the chance to interact via live Mentimeter...
09/14/2020

During our virtual Baltimore WALK program this past weekend, participants had the chance to interact via live Mentimeter interactive polls. Take a look at some of the responses we received! We loved hearing from our community, who tuned in from a variety of locations!

09/13/2020
2020 Baltimore WALK Team Videos

Introducing our 2020 Baltimore WALK teams ... in their own words. Meet our incredible community and be inspired! #HydroStrong #BaltimoreHAWALK

Thank you to all of you who could join us today during our live virtual event. We hope the experience left you feeling c...
09/12/2020

Thank you to all of you who could join us today during our live virtual event. We hope the experience left you feeling connected to our incredible community, even though we are apart. It was wonderful to see so many familiar faces on our live Zoom event (and there were many more than those pictured below!). A recording will be made available soon.

Please keep posting your photos, making your posts public and tagging #HydroStrong and #BaltimoreHAWALK so we can see all the activities that our families and friends are doing for hydrocephalus this weekend. We love seeing the creativity and energy that all of you bring to such an important cause.

Johns Hopkins Pediatric Neurosurgery
09/12/2020

Johns Hopkins Pediatric Neurosurgery

IT IS THE BIG DAY! But we aren't done with our photo series! PA Stephanie and her family have been FIREFIGHTING for a cure!! Join @hawalk_baltimore at 9AM today for the Baltimore Walk to End Hydrocephalus!!! #hydrostrong #hydrowarrior #nomoreBS

These Hydro Warriors are why we walk! There are a total of 133 brain surgeries among these 16 participants.
09/12/2020

These Hydro Warriors are why we walk! There are a total of 133 brain surgeries among these 16 participants.

These Hydro Warriors are why we walk! There are a total of 133 brain surgeries among these 16 participants.

What an incredible turnout for our virtual Baltimore WALK to End Hydrocephalus! THANK YOU for helping us raise critical ...
09/12/2020

What an incredible turnout for our virtual Baltimore WALK to End Hydrocephalus! THANK YOU for helping us raise critical funds and spreading awareness! We can't wait to see your photos!

Don't forget to make your posts PUBLIC and use the tags #HydroStrong and #BaltimoreHAWALK! That gives our community the chance to see what you and your team are doing for hydrocephalus. #HydroStrong #BaltimoreHAWALK

Our Hopkins team has been doing ALL THE THINGS for a cure!
09/12/2020

Our Hopkins team has been doing ALL THE THINGS for a cure!

And last but not least, Dr. Groves has been DANCING for a cure!! 💃🏻👯‍♀️ we are just minutes away from the start of the Baltimore Walk to End Hydrocephalus! Check out @hawalk_baltimore for the virtual schedule!!! #hydrostrong #hydrowarriors #Walktoendhydrocephalus #nomoreBS

Rise and shine, Baltimore .... it's WALK DAY! We might be virtual this year, but we are moving forward with the same pep...
09/12/2020

Rise and shine, Baltimore .... it's WALK DAY!

We might be virtual this year, but we are moving forward with the same pep in our step that we would have on the morning of a typical walk! Don't forget that our LIVE programming starts this morning at 9am. Zoom links were sent to registered participants via email.

Want some motivational and energetic tunes to get you moving this morning? Or maybe you need a soundtrack to set the pace for your independent activity that you're doing for our hydrocephalus community today. Check out this awesome playlist put together by the Hydrocephalus Association!

https://www.youtube.com/playlist?list=PLq_2LvcufR5tpWtp0J0fI_RAwsF4XVkk3

We love this idea from team WarriorJake! They used last year's Ambassador Avenue poster in their front yard as a way to ...
09/11/2020

We love this idea from team WarriorJake! They used last year's Ambassador Avenue poster in their front yard as a way to spread awareness about their young Hydro Warrior.

We would love to see what you're doing to make your house or home festive for tomorrow’s virtual WALK and Hydrocephalus Awareness Month! #HydroStrong #BaltimoreHAWALK

09/11/2020
Longeviti Neuro Solutions

Thank you to @Longeviti Neuro Solutions for being an industry partner and for its continued support of the Baltimore WALK to End Hydrocephalus. We always look forward to the educational displays and information that they bring to our in-person walks! Longeviti employees have pledged to walk 15 miles this month in recognition of the statistic that a hydrocephalus-related surgery occurs every 15 minutes. As a community, we are all #HydroStrong ... because it truly takes a village!

Can't wait to see your photos/videos showing the world what YOU will do to end hydrocephalus! Photo contest runs this Sa...
09/11/2020

Can't wait to see your photos/videos showing the world what YOU will do to end hydrocephalus! Photo contest runs this Saturday and Sunday, and winners will be announced Monday! Be sure to set your posts to public and use #BaltimoreHAWALK and #HydroStrong

PHOTO CONTEST: Want the chance to win one of two Amazon gift cards? Join in the Baltimore WALK social media photo contest and help us create a sense of togetherness during the weekend of our virtual event, so we can feel together while we're apart! Winners will be randomly selected from entries made between Saturday, Sept. 12 and Sunday, Sept. 13. One gift card will be awarded in each category. The categories are: Most Festive Team (think signs! face paint! awesome team shirts! etc) and Most Creative Independent Activity for Hydrocephalus. Don't forget to print out a sign or two to include in your photos (if you need signs, comment below!)

To participate, here's what you need to do:
* set your social media posts to "public"
* use the hashtags #HydroStrong and #BaltimoreHAWALK (it's important to include BOTH hashtags on every post, so we can find your photos!)
* Share your posts on Facebook and/or Instagram between Sept. 12-13

Remember that we can't see your posts unless you've made them public AND used both hashtags. On Facebook, you can control the privacy on each post you create. However on Instagram, you would have to make your entire account public for a few days during the contest. Those are the only ways to ensure that you're entered to win! Winners will be announced on Facebook on Monday, Sept. 14.

09/11/2020

Welcome to a brand new team, PA-Students for #hydrostrong!

Your TO-DO list for our virtual event this Saturday, Sept 12th!1. SLEEP IN (sort of) and save yourself the early commute...
09/10/2020

Your TO-DO list for our virtual event this Saturday, Sept 12th!
1. SLEEP IN (sort of) and save yourself the early commute to Baltimore’s Inner Harbor, where we usually meet!
2. JOIN US ON ZOOM AT 9am! Throw on your team t-shirt or other Hydrocephalus gear and log in to Zoom to “see” our Baltimore Hydrocephalus community. Be inspired by our virtual Ambassador Avenue and team video messages! Zoom link to join was emailed yesterday, so check your inbox.
3. WALK or do anything you love to do! Run, hike, roll, dance, read, nap, you choose…but do SOMETHING for our cause when we break at 10am. Print out one of our fun signs and take some pics! One of the signs has a blank that says “_______ for a Cure.” A lot of us would do ANYTHING to end hydrocephalus. Be serious or silly. People who see your sign may be seeing the word Hydrocephalus for the very first time. What a simple way to raise awareness. (If you need a sign, comment below)
4. SHARE YOUR PHOTOS & VIDEOS! How can we virtually create a sense of community? Through photos and videos! Participate in our PHOTO CONTEST on Sept 12 and 13 and share them on Facebook and Instagram using #BaltimoreHAWALK and #hydrostrong (Use BOTH hashtags and set your posts to public so we can find them! It’s the only way to enter.) We can’t wait to see what you do!

Also don’t forget to come back to Zoom at 11am for our Closing Ceremony. We are getting so pumped to see all of you!

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General information

The Hydrocephalus Association serves as the primary nexus for research on hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) within the cavities of the brain. Hydrocephalus affects over 1 million people in the U.S. alone. Approximately 1-2 babies for every 1000 births are born with hydrocephalus, but anyone can get hydrocephalus at any time through a brain injury or infection, among other reasons, or as part of the aging process.

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The Hydrocephalus Association serves as the primary nexus for research on hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) within the cavities of the brain. Hydrocephalus affects over 1 million people in the U.S. alone. Approximately 1-2 babies for every 1000 births are born with hydrocephalus, but anyone can get hydrocephalus at any time through a brain injury or infection, among other reasons, or as part of the aging process.

The WALK to End Hydrocephalus is the Hydrocephalus Association’s largest annual fundraising event, raising nearly $2 million last year thanks to more than 17,000 participants in 42 locations across the U.S. When you take part in ending hydrocephalus, you join a family of 1 million+ Americans who are fighting for a cure every day.

The 2019 Baltimore WALK to End Hydrocephalus is to be held on Saturday, September 21, 2019 at West Shore Park- Inner Harbor, Baltimore. For more information on how you can take part in this event, please visit our website: https://bit.ly/2YhXr3o or email us at [email protected]

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Hi! I am a mother of a 26 year old daughter who is a twin and has complex hydrocephalus. She has had over 70+ brain surgeries. I actually used to coordinate the first Baltimore Hydrocephalus Walks too so I think highly of the organization and all the support we have had. I stepped back because of other issues in my life but researched and prayed about ways to deal with the stress of worrying about shunt failures and other traumas in our family. I am excited to share that I finally found easy tools to stop stress, anxiety, fear, in its tracks. However, it is easier for my Instructor to explain, Lauren Walker. Anybody can do these techniques. You do not have to do the yoga part. Conscious breath with movement is simply the key. This Saturday, February 8, Lauren, will host a FREE video event to share how to break the fight-or-flight loop, calm your anxiety, and clear the stuck energies of past traumas. During this special hour with Lauren, you’ll learn simple Energy Medicine Yoga prescriptions you can use anytime and anywhere to shift your system out of stress overdrive and into a relaxing calm that can provide the foundation for a life of greater presence, more vibrant health, and more abundant joy. I invite you to join me for this deeply healing hour. You can RSVP for free- https://shiftnetwork.infusionsoft.com/go/irp/a20887 PS - If you are unable to catch the event as scheduled… simply register on above link and you’ll receive a downloadable recording as soon as it’s available. Please do not hesitate to ask me any questions about this. I just wish I knew about it sooner. Holding stress, fear, anxiety in our bodies makes us sick. Truly anybody can do these techniques. Much love, T. xoxo
Here is the link to download the Team Photos!