strivewithsoph

strivewithsoph Epilepsy | MCAS | POTS | EDS ✨
Awareness & education 🧠
Christ is Lord 🫶🏼
Future nurse 🩺
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(8)

05/26/2026

My story with cellulitis…

I have ALWAYS gotten superficial thrombophlebitis in my veins, aka blood clots at the surface of your vein. It always happens with an IV or simple blood draw. Only God knows why…

I was in the hospital for epilepsy reasons. My IV was getting crumbier by the day. When I was moved out of the ICU I had asked the nurse if she could change it. She said it looked fine.

Overnight, I developed a high fever (that I wasn’t even aware of until the night nurse woke me up to get my vitals), night sweats and a very low blood pressure.

She noticed my IV site and took it out immediately, placing a new one in a different spot. I was fine at the end of it, but they were concerned about sepsis and contacted the doctor to start antibiotics right away.

When the doctor came in the next morning, she said she was very surprised how my IV got that bad so quickly causing my body to essentially go into shock I guess lol. All I know is that I was annoyed being in the hospital and wanted to go home 😂

If something is wrong with your patient, PLEASE listen to them! There have been many times when I wasn’t listened to and it has resulted in bad outcomes. Thankfully this didn’t end too bad. I just have a teeny tiny scar!

We had to come back to the ER for more antibiotics because the first round didn’t stop the infection and I developed a fever again, but it could’ve ended way worse!

My dad and I had a BLAST at the Epilepsy Foundation of Idaho Sharon’s ride.run.walk. event today! So many good things to...
05/18/2026

My dad and I had a BLAST at the Epilepsy Foundation of Idaho Sharon’s ride.run.walk. event today! So many good things to see, and the people were amazing! Murphy even got a cape for herself when we got back home; she looks great in purple! We’re making this an annual thing for our family! 💜

05/11/2026

My memory sucksss

I’ve posted this already, but these things are so important to know, so I’m posting it again 💜
05/09/2026

I’ve posted this already, but these things are so important to know, so I’m posting it again 💜

May is mental health awareness month (and EDS awareness month, but I already touched on that and fun things will be comi...
05/03/2026

May is mental health awareness month (and EDS awareness month, but I already touched on that and fun things will be coming soon). I want to tell you guys another part of my story.

A lot of you may already know these things, but since May is the month about spreading awareness about mental health, I want to share some more about mental health and epilepsy.

About 1 in 3 people with epilepsy will have a lifetime psychiatric disorder. That’s 2-5 times higher risk than the general population. People with mental health conditions often receive different, and sometimes worse care, for physical problems (including epilepsy) in emergency settings because of diagnostic overshadowing.

Now that I’ve given you all my statistics, I want to tell you that I fall into every single one of those categories and situations. I have depression, anxiety, OCD and PTSD. A big chunk of that has been caused by doctors who have mistreated me, but I also just happened to get some of it genetically along with my epilepsy.

I’m telling you about this today because mental health is important, along with your physical health. Some of us with epilepsy have mental health conditions that we don’t often talk about. We just talk about the epilepsy. But not the extra crap diagnoses behind the already crappy diagnosis because mental health is stigmatized.

I will admit, I don’t talk about my mental health struggles very often because it just reminds me of what past doctors did to me. Trauma is a beast. I know it’s important to work through it though and I’m getting there.

If this is also you, you are not alone. You are loved, important and valuable to this world! 🧠💜

05/02/2026

These are the 5 things I worry about most in life and that’s exactly why I carry ALL of my medications with me…extra set of regular meds, then emergency seizure rescue nasal sprays and my EpiPens.

04/19/2026

Where are all my medically chronic good people at?! 😂

Throwback with 💜

04/16/2026

I will never take my healthy self for granted ever again. Also just a PSA, my friend in the end is not restraining me (I know I’m gonna get those comments) she gently had her arm around me so I would stay on my side and wouldn’t flail onto my face. It was a bad seizure.

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