05/30/2026
Our little guy gave us quite the scare. Theo had a 100.58 fever and was pretty lethargic on Thursday, having also had a really rough night prior. His team advised us to bring him in to the CHOA clinic. While there, he suddenly took a turn and had an episode of SVT and a fever of 104.5. What started as a few nurses in his clinic room quickly turned into 10-15 nurses, doctors, and specialists surrounding us in the ER. It was the scariest moment of my entire life.
We were in the CICU overnight and have now been moved to the CACU for at least 24-48 hours. Theo has a bacterial blood infection and will need IV antibiotics for probably about a week, depending on how quickly the infection responses to the antibiotics. This type of infection isn’t uncommon for kids getting IV chemo, and one nurse commented that it was “incredible” that this was his first admission. We are all the more thankful that last week was his last infusion.
His vitals look good. His heart has self-regulated to a more normal range most of the time. The antibiotic is hurting his tummy pretty badly so he’s receiving lots of medications to help with that.
We are incredibly thankful for the amazing doctors, specialists, nurses, etc. who have taken such good care of us. There are a few who I will hold close to my heart for being there for us in our darkest hour. Having such great care for our little guy is comforting in such scary moments.
Theo continues to be extremely resilient and tough. We are heartbroken that he is in so much pain, but remain confident in his eventual recovery and testimony.
Specific prayer requests:
- No future bacterial growth in his blood cultures.
- Guiding the doctors to find the right antibiotic for Theo’s specific infection that quickly treats it and has no side effects on his body.
- For his blood counts to recover quickly and his body to have the strength to fight off the infection.
- A smooth removal of his central line (🙌🏼) Monday morning.
- No more episodes of SVT or heart complications.
- Supernatural strength and peace that surpasses all understanding for two very tired parents.
This is not where we wanted to be. We were so hopeful we had managed to avoid this experience, but we are so thankful to have access to such great care at CHOA. If he has to be treated, we wouldn’t want to be anywhere else. We will update as we learn more about his condition, treatment, and recovery.
Thank you for your prayers, love, and kind gestures and messages.
- Abbey
