Alport Syndrome- Hope for the Cure

The Alport Syndrome Hope For The Cure Foundation was formed in the spring of 2009 in honor of Dylan DeSerrano, one of the youngest ever diagnosed (age 2) with Alport Syndrome. We are 100% volunteer run 501 (c)(3) organization with a mission to raise awareness and money for research related to Alport Syndrome and other kidney diseases as well as provide assistance to those fighting kidney disease.

In our first year, we held two successful fundraising events. In December, we donated funds to Children's Medical Center of Dallas to purchase 5 new flat screens and four state of the art television/gaming systems for their dialysis room. We have begun a special partnership with Children's Medical Center of Dallas and we look forward to continuing that partnership in the future.