Life With Tori_ Dealing with GBS

06/17/2025

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06/17/2025

Hey fam 💛

Every day with Guillain-Barré Syndrome is different. Some days I feel strong and hopeful, other days—well, it's tougher. But every single day, I'm still here… pushing through.

Today, I’m choosing to celebrate small wins 💪✨
Whether it’s walking a few extra steps, getting out of bed with less pain, or even just smiling despite the discomfort—it all counts.

To anyone else on this journey:
🌿 What’s one small win you had today?
💬 Drop it in the comments so we can celebrate you!

04/01/2025

34 and in a nursing home… it’s lonely, and honestly, isolating. I keep to myself a lot—not because I want to, but because it’s hard to connect when you feel out of place.

I miss feeling normal. I miss being around people who get it.

But I’m ready to get better. Ready for a fresh start and a sense of normalcy—whatever that looks like.

If you’ve ever felt stuck or out of place… you’re not alone.

03/01/2025

I never thought I’d be here—34 years old, stuck in a nursing home because of Guillain-Barré Syndrome. It’s hard to put into words what it feels like to be in a place that isn’t meant for you, surrounded by people who don’t truly care. It’s not just the physical challenges; it’s the loneliness, the isolation, the feeling of being invisible.

I miss having real support, people who genuinely care about me—not just because it’s their job, but because they want to. I miss feeling like I belong somewhere. Every day here is a reminder of how much has changed, and honestly, it’s exhausting.

I don’t share this for pity but because sometimes, the hardest part of struggling is feeling like no one sees it. If you’ve ever felt alone in your battle, just know you’re not. And if you still have the ability to reach out to someone who’s struggling—do it. It might mean more than you realize.

01/05/2025

12/28/2024

A friend has generously set up a GoFundMe campaign to aid my recovery. Please consider sharing the link if you are unable to contribute: https://www.gofundme.com/f/help-friends-name-reclaim-independence

12/23/2024

12/17/2024

https://youtube.com/?si=VNWDETfQ6cbwjQiU
Yall sub please

12/17/2024

Psalm 40:1-2
I waited patiently for the LORD to help me, and HE... heard my cry. He lifted me out of the pit of despair, out of the mud and mire.

12/05/2024

Your Feelings Are Valid

Whatever you're feeling right now—joy, sadness, or something in between—it’s okay. Be kind to yourself and know that you’re not alone. You matter, and so do your feelings.