Defying The Odds

09/24/2026

Just because I'm in a wheelchair that doesn't define me. I am much more than my chair. People assume just because I am in a wheelchair I can't do certain things. I can do anything I set my mind to. I am not my wheelchair.

06/22/2026

06/16/2026

This is a discussion I have been avoiding. We are still human at the end of the day.

05/07/2026

Don't let your bad days outweigh your good days. We all have bad days. Keep your head up you got this.

11/20/2025

It's Day 2 of Awareness Month!

We often share the fact that Spina Bifida is sometimes referred to as a "snowflake condition." But why? Like snowflakes, no two cases are exactly the same.

Did you know?

There is a wide range of types of Spina Bifida and a wide spectrum of effects within each type!

We will delve into some of those types later in the month.

Spina bifida affects each person differently. The severity can range from:
Mild, with little to no physical impact to severe, involving paralysis, bladder/bowel issues, hydrocephalus, and other complex medical needs, and everything in between.

Even two people with the same type and lesion level may experience different mobility abilities (some walk, others use orthotics, walkers, or wheelchairs), varying cognitive effects (especially if hydrocephalus is present), and unique health complications or surgeries.

More importantly, every individual is one of a kind with distinct personal strengths, goals, and personalities.

We often say Spina Bifida has many faces, and SBAK serves them all. No matter where someone falls on the spectrum of ability or disability, we celebrate their uniqueness and the positive impact they bring to our community.

11/20/2025

How Common Is Spina Bifida?

Spina Bifida occurs in about 1 in every 2,700 live births in the United States. It is the most common permanently disabling birth defect.

Thanks to medical advances, people with spina bifida today are living longer, healthier, and more independent lives than ever before. 💛

11/20/2025

Mobility is a Spectrum

Mobility needs are different for each person with spina bifida. Some may walk without assistance, others use braces, crutches, or walkers, and many use wheelchairs.

These tools aren’t limitations — they’re ways to gain independence, freedom, and access to the world. 💛♿👣