Miss Amaya

12/03/2025

Sweet girl!! Feeling much better now and finally on the mend. Her birthday is in a couple weeks… she’ll be 4 😩 where has the time gone???

12/01/2025

11/29/2025

11/29/2025

These are Izzy Wheels!! I need help deciding which ones to get Amaya! These are ones she clicked on. She loves rainbow and all the colors so help me decide!! 🤟🏼💖

11/29/2025

Did she vocalize “I love you” for the first time??

11/28/2025

She’s doing so well and I’m so proud!!

11/27/2025

Happy Thanksgiving to all my family and friends!!! So much to be grateful for today! 🤟🏼🩷

11/24/2025

Hi everyone!! I thought I would reach out and see if anyone has any ideas on how to make this accessible for Amaya? I think a small motor added to the back or maybe some type of sticks to act as feet. I’m not sure but if anyone has any ideas, let me know. This is her favorite thing at school and I hate she has to rely on someone to help her when she wants to do it herself. 

11/21/2025

⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️⭐️
All my friends in Tennessee I’m asking for a friend : do you know of any home repair programs or grants available to a disabled person / family who cannot get approved for a loan or home equity line of credit due to credit or income but in desperate need of a new roof/mold treatment ? Let me know thank you and god bless

11/18/2025

Sweet girls ❤️

I want to give an update as we approach Amaya’s 4th birthday. We’ve had a pretty incredible year. She started preschool, she’s learning how to communicate more each day, she knows most of her letters and her numbers to 10. She has physical, occupational, and speech therapy every single week. She has improved her wheelchair mobility and increased her upper body strength. She is still very sassy and very independent with everything she does. She proves you don’t need legs to be happy with her smile and her infectious laughter. I am so proud of everything she has overcome. We made it through this year without any surgeries. We have followed up with all of her specialists, including urology and neurosurgery, and they all don’t want to see her until next year. My fight with ENT is still prevalent and although they don’t understand why we use sign language, it is not their life nor their child. I have said this once and I will say it again, I am not afraid to stand my ground for what I believe is right for my children.

Our next MRI on Amaya‘s spinal cord should be around February of next year. We are also hoping to get her a hand trike before Christmas of this year. I believe that that’s all for now.

Amaya‘s birthday is in a month, so I will link the wish list. Do not feel obligated to get anything, but she found the Amazon gift book and was flipping through pages pointing at things she wanted so I have added everything I could for her.

Thank you all for your continued love for us, Amaya and our entire family. I am grateful for the support we receive from everyone around the world.

🤟🏼🩷

11/09/2025

📣 Today is Microtia Awareness Day!
Microtia is a congenital condition where the outer ear(s) doesn’t fully develop. Many children with Microtia also have atresia, meaning the ear canal is closed, preventing sound from traveling normally.

Our daughter Amaya was born with Microtia and Atresia.
She uses a BAHA (bone anchored hearing aid) that sends sound through her skull to her cochlea (sometimes). She uses ASL to communicate.

A few things to mention:

💙 Microtia affects ~1 in 6,000 babies
💙 Kids with Microtia are often Deaf or hard of hearing
💙 ASL is not a “backup option.” It gives your child full access to language and communication.

Awareness creates inclusion.
Inclusion creates belonging.
🤟🏼💙

11/09/2025

I've just reached 190K followers! Thank you for continuing support. I could never have made it without each one of you. 🙏🤗🎉