Confessions of a Rare Disease Mama

Confessions of a Rare Disease Mama Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Confessions of a Rare Disease Mama, Digital creator, PO Box 21, Loveland, OH.
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Medical mama x2 sharing the real, raw, beautiful journey of raising two rare disease warriors.
đź“šAuthor of Soaring Together,
🎙️Podcast Host @ Confessions of a Rare Disease Mama
đź’—Here to help special needs parents feel seen, supported, and less alone.

03/10/2026

Don’t get me wrong… I didn’t always live this way.
In the beginning, I spent a lot of time fearing what might come. I would look at my children and wonder how long we had. I was grieving a future that hadn’t even happened yet.
But over time I realized something important.
None of us are promised tomorrow.
Not my children.
Not me.
Not any of us.
So instead of living in fear of what may come, I’m choosing to be present for what is.
Their life is happening right now.
And it deserves to be filled with love and happiness.
So I’m going to love them with everything I have, for as long as we’re given.🤍

02/07/2026

I wouldn’t have chosen this for them.

But I will choose, every single day, to build a world that is gentler for my kids.

One act of love at a time.

01/23/2026

Wouldn’t trade them for the world. But would trade the trauma🫠

01/23/2026

Follow for more of the rare mama content you didn’t know you needed 🫶✨

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Loveland, OH
45140

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