Jaxson's Journey

Jaxson's Journey Jaxson was born in 2015 with Cystic Fibrosis. This is his journey to defy the odds.

🌅Up early this morning with a smile on his face for an elastography ultrasound. Jaxson's blood work has been coming back...
09/15/2025

🌅Up early this morning with a smile on his face for an elastography ultrasound. Jaxson's blood work has been coming back slightly abnormal so we are searching for a cause. Fingers crossed it's nothing serious. The only thing he didn't like was that he had to fast. Now off to school. 🏫

Jaxson's medication came for the month. We are so thankful we are able to get these shipped from The Pharmacy at MaineMe...
08/23/2025

Jaxson's medication came for the month.
We are so thankful we are able to get these shipped from The Pharmacy at MaineMed. The specialty department and his team even make it easier by calling us when he is ready for refills.

08/21/2025

Here is a little glimpse into Jaxson's clinic appointment yesterday. We began with Pulmonary Function Tests (PFTs), which are essential for managing cystic fibrosis and maintaining lung health. 🫁

PFTs measure various aspects of lung function, including lung capacity, airflow, and gas exchange. This test can identify early signs of lung disease in individuals with cystic fibrosis, often even before symptoms arise. It tracks even the slightest changes in lung function over time, enabling doctors to adjust treatment plans as necessary. Additionally, PFTs can reveal the effectiveness of any adjustments made to care plans. Jaxson undergoes these tests approximately every 3 to 4 months.

Morning stretch and warm up with Jeremy Swayman at the UMaine Goalie Camp.
08/16/2025

Morning stretch and warm up with Jeremy Swayman at the UMaine Goalie Camp.

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Maine, ME

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