Jaxson's Journey

Jaxson's Journey Jaxson was born in 2015 with Cystic Fibrosis. This is his journey to defy the odds.

06/22/2026

What are you doing for summer fun? I have decided to work on fire starting with my flint and steel.
#๐ฅ๐ข๐Ÿ๐ž๐ฌ๐ค๐ข๐ฅ๐ฅ๐ฌ

Woohoo!! My blood work came back great and ice is back in at my home rink. Summer hockey and golf clinic starts Tuesday!...
06/19/2026

Woohoo!! My blood work came back great and ice is back in at my home rink. Summer hockey and golf clinic starts Tuesday! Let's go! ๐Ÿ’๏ธโ›ณ๏ธ๏ธ๐Ÿ’ช

๐ŸฉบCF Clinic was today, I started off the day with a fasting blood draw and glucose test๐Ÿฉธ๐Ÿ’‰ I had a nice surprise of legos ...
06/18/2026

๐ŸฉบCF Clinic was today, I started off the day with a fasting blood draw and glucose test๐Ÿฉธ๐Ÿ’‰ I had a nice surprise of legos and snacks for my birthday๐ŸŽ‰(this weekend) from my care team. I got to see my favorite Dr๐Ÿ‘จโ€โš•๏ธ and passed my PFT's with flying colors๐ŸŒฌ We discussed doing a set of chest Xrays to keep an eye on my lungs, my last ones were in 2023๐Ÿฉป We also scheduled my next ultrasound on my liver and kidneys for September. We are keeping all my medications ๐Ÿ’Š the same for now where I have been able to maintain my weight and I am still in the 97th percentile for height. ๐Ÿ“ Now to wait for my results from blood work and sputum swab. โณ๏ธ
Oh and I got to skate today! ๐Ÿ’ ๐ŸงŠ

May is Cystic Fibrosis Awareness Month๐Ÿ’™๐ŸŒน
05/01/2026

May is Cystic Fibrosis Awareness Month
๐Ÿ’™๐ŸŒน

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Maine, ME

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