07/04/2025
What an incredible day in the studio filming Episodes #5 & #6 🎥💥
We had the honor of sitting down with Dawn Torres—her strength is beyond words. She turned a horrific situation of lossing her husband, into a message of hope, wisdom, and encouragement that will really resonate.
And for the first time, we introduced the world to Hunter, a brave 12-year-old battling Duchenne muscular dystrophy. Hunter’s Mom opened up about the heartbreaking and courageous decision to pursue Elevidys gene therapy. This one‑time intravenous gene therapy delivers micro‑dystrophin, aiming to slow muscle degeneration and delay respiratory and cardiac decline .
But it’s not without serious risk. Tragically, two non‑ambulatory teens have died from acute liver failure after treatment—leading to a pause on shipments and trials for that group, and a major FDA investigation . The therapy carries a known risk of acute liver injury, even prompting Sarepta to strengthen safety measures and update its prescribing information .
On the flip side, growing evidence shows Elevidys can improve or stabilize motor function, especially in younger, ambulatory boys—though long-term outcomes vary .
This is exactly why Hunter’s Moms perspective is so vital. You’ll hear why she believes the potential benefits outweigh the risks—and how she’s preparing Hunter and her family for this difficult journey.
Episodes coming soon. You won’t want to miss this.
👉 Help us support families like Dawn & Hunter. Visit JAROFHOPE.ORG and be part of something life-changing. 💚
