Blaine’s TBI Journey

Blaine’s TBI Journey Blaine was in a motorcycle accident 5/26/25. Follow Blaine's brave fight after a severe TBI & Spinal injury. Share love & support!

From coma to vegetative state, now on a healing path.

12/07/2025

So I learned something new this week.

When dealing with a trach clear mucus is good.

When your child also has a gtube the increase of clear/white mucus is not good . Its the bodies way of responding to acid reflux.

Poor Blaine went through a week of bloating and coughing up excess amounts of mucus before it was figured out.

When I discussed the bloating and mucus eith our home health nurse she told me it looked good. This is why it is sooo important to educate yourself and advocate for your child, when you notice a change do not brush it off, you know your child best..even your grown ass man child 😂

12/06/2025

If anyone has videos and pictures of Blaine, if you put them all together and create a long video/iMovie and send it to me I will play it. His phone is set up to screen share on the tv in his room. If they are his memories then they are important to his recovery, regardless if you are an ex. All memories matter, just keep it G rated please.

For iphone users iMovie lets you put all pics and videos together in a stream just click on movie, select all the clips you want then hit create movie.

Androids... no clue lol

Today is the day!! Insurance aporoved the transition from Jevity 1.5 to Real Foods Blend for Blaine. He has a few differ...
12/03/2025

Today is the day!! Insurance aporoved the transition from Jevity 1.5 to Real Foods Blend for Blaine. He has a few different options. Salmon, Beef, Turkey.

Jevity was 100% chemicals.

Our bodies werent made to run efficiently on chemicals.

12/02/2025

Snug as a bug inside watching The Grinch

We are battling the dry air with Blaines trachea, the room humidifier I bought isnt putting out enough so he needs a bet...
12/01/2025

We are battling the dry air with Blaines trachea, the room humidifier I bought isnt putting out enough so he needs a better one, its not in the budget right now. I have added one to his Amazon wish list that is on sale today if anyone has been needing ideas of ways to help.

Blaine’s favorite torment is flipping mom off in pictures, no group photo is complete without it 😂Our first family gathe...
11/28/2025

Blaine’s favorite torment is flipping mom off in pictures, no group photo is complete without it 😂
Our first family gathering in the books. Blaine seemed to handle the stimulation well. Missed his loud mouth and him giving me a hard time though.

11/26/2025

Two huge updates today :)

1. Blaine had a CT scan of his brain yesterday. Blaine’s new CT shows his brain is stable and quiet — all the acute bleeding and fluid are gone, and there is no active damage. The only thing left is the permanent scarring we already knew about. This means his brain is as safe as it’s going to get. His brain has shrunk more than it should for a 27-year-old. This is the permanent “scarring” and loss of brain tissue from the original injury.
Expected bad news – this is the irreversible damage we already knew about (encephalomalacia). It will not get better, but it’s not getting worse.

2. Speech Therapy had another WIN today. Blaine was attempting to make sounds today, the therapist was saying Hi and telling Blaine to say Hi and it very much sounded like he said Hi.....She yelled, did you hear that? She got excited and I got all teary eyed. This was a great achievement!

11/22/2025

Part of TBI recovery is fixing all the little pathways in the brain. Engaging with images and recounting stories can help remake neural connections in the brain. So i took the videos off Blaines phone and made a long movie out of them. I hope it helps.

Ordered Blaine some re-usable washable trach and g-tube pads today. I think these will look better and be more comfortab...
11/18/2025

Ordered Blaine some re-usable washable trach and g-tube pads today. I think these will look better and be more comfortable for him. Found them on Etsy ❤️

After sis visited we went outside for some ☀️ Blaine was on a higher level of consciousness for about four hours today. ...
11/14/2025

After sis visited we went outside for some ☀️ Blaine was on a higher level of consciousness for about four hours today. Those days are few and far between but great to see!

11/14/2025

Closest thing to a smile we have seen so far, everyone needs an older sister thst will entertain them ❤️

11/13/2025

It has been a busy week for Blaine. He had two x-rays and three doctor appointments. I have been concerned with his right shoulder, about a month after his spinal surgery his scapula started dropping. They think he may have some kind of nerve palsy on that side. On a positive note, his degloving injury is healing faster than expected. Next week we have a follow up with the spinal surgeon, then later this month a brain CT scan.

We were also notified this week that insurance approved his wheelchair so they will start building it. Yayy! We were blessed to have been given a loaner when he left the hospital but it doesn’t fit him right.

We received a card from Blaines former co-workers this week. I enjoyed reading all the personal notes to him, thank you to the employees at Midwest Bus!

Address

Mattoon, IL
61938

Website

https://gofund.me/e094b1f8

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