Blaine’s TBI Journey

08/22/2026

Changing things up a bit. I used to play his memory videos during morning care while he was still in bed, but going to start doing it when he is having his one hour of sitting straight up in the chair. These faces though.

07/29/2026

Last month we had a swallow test and Blaine was cleared for pureed foods, just a couple bites. Today we had our visit with the pulmonologist and when he took out Blaines trach to replace it, it was nasty and looked like dried food on it. It has never looked like that. That would mean that the little bit of food that he has been given part of it is going into his lungs. The risk of aspiration and pneumonia is too great to chance it in my opinion. And now we watch to see if he gets an infection from it in his lungs 🤦‍♀️.

07/14/2026

A great time to be outside , sun is behind the trees, it is a manageable 83 degrees out and pollen is low/medium.

07/07/2026

07/06/2026

Being a medical mom isn’t easy.

It is alot of advocating.

It is learning your childs unique needs and then coming up against an industry that lumps everyone in the same boxes.

If you voice concerns, you are difficult.

Good thing I have never backed down from a challenge, or protecting my kids.

Ohhh, and I hope you like the new T. 😂

07/01/2026

Blaine is up to 55 degrees in the sit to stand machine. The PT is starting the paperwork for us to have one at home.
One of the new things Speech has been working on is putting two objects in front of Blaine and telling him to look at one. So today it was a comb and a spoon. He has been very inconsistent, and it has been hard to tell sometimes by his eye movement where he is looking, but today he had a first and moved his whole head looking at the correct object each time.

Ohhh and he hit the round button and took his own selfie during OT today 😂😂

06/24/2026

Blaine had a barium swallow test today and he did remarkable! No silent aspiration, no aspirations at all. He gets to have liquids and pureed food now. Going to start with just 3-4 small bites a day with water inbetween to wash it down.

After the swallow test he had therapy and they started raising the standing frame. He was able to tolerate a 40% raise/incline? Not exactly sure how to express that.

06/13/2026

Blaine’s vibrating plate with EMS arrived today! I try to add something new every month to aid in his healing journey. Vibrating plates help stimulate brain activity, reduce muscle decline, and help with circulation. Let’s gooooo!!!