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March  #2We finally had another good day (70 and sunny).  I just got a call telling me that Judy was climbing on one of ...
04/06/2026

March #2
We finally had another good day (70 and sunny). I just got a call telling me that Judy was climbing on one of the new stuffed chairs and she slid off of it onto the floor. Since neither she nor the chair were hurt they gave her a coke and put her in her room to relax. We have asked them to calm her down this way whenever she cries or get angry. I didn’t ask why she was running around the common area at 9 pm. I had taken her outside this afternoon and we walked around the grounds until she said her legs were tired, but apparently they recovered.
While Mark was here we took Judy down to Memorial Presbyterian church and walked around the empty building. She had been here many times before and expressed some interest now. I thought about taking her to a service, but it probably would not hold her attention. The memory community hosts musicians to play or sing for us for an hour (a captive audience), and I make sure to take Judy to hear them. Everyone is encouraged to sing along if they know the song but she just whispers or taps her fingers. She does not comment on the program (she won’t answer if you ask how she liked a program, or her meal—possibly because she forgot).
The staff categorizes a not-so-good day as one where Judy has an anger episode or sadness. I see her every morning, and sometimes she is still asleep and sometimes she is out eating breakfast. She says she is glad to see me, and sometimes she asks where have I been. I help the staff give her her meds, which are now a smaller number. Sometimes they are dissolved in her hot chocolate, sometimes they are crushed and stirred into chocolate pudding and spread on toast like jam. The worst is when an inexperienced cna tries to get her to take the crushed pills in apple sauce off a spoon. That usually ends with medicine on the floor.
Good days are when she wakes up cheerful, sings a song with the staff while they dress her, and gobbles up her breakfast (and meds). Others will come out for breakfast and she will say hello without using their name, instead giving them a compliment on their wardrobe or their smile. She thinks some don’t like her, and it makes her sad (she whispers this to me as we leave the dining room). Last month a wife joined us who has been married 6 months longer than us, and he visits every day after having rented a room in the independent living building. Judy talks to the wife when the husband is gone, but she is deaf and can’t process Judy’s speech fast enough. Judy pats her when she goes by. Judy tries to kibitz with everyone.
We had expected to join a community that had chosen to grow old together, but our group does not interact very much in part because there has been a good deal of replacement with a new person joining us each month. Only four men and three women have been here longer than Judy has, all over 65. The men have been here several years, and have local visitors. Our neighbor is a woman our age who has been here a few months longer than Judy. She corrects Judy when she does not do things properly, which annoys Judy. Another of the senior women is bedridden. The staff is very friendly and are cheerful and encouraging with all the residents.
Judy makes acquaintance with each new resident (they have all been women) since none of the more senior residents have shown any interest in her or the other newbies (the two friendly senior woman died a month after we arrived). She has made friends with a woman whose husband does not visit very often because he thinks it interferes with her transition to a new life-style. Another new resident can not speak but she and Judy get along as the least verbal of the group using body language. The verbal residents are put off by the effort it takes to understand Judy, who talks fluently but the wrong words come out. The newbies sit in the common area and talk (the women show no interest in TV). There is not much for the residents to do to pass the time (a couple have a hobby and the men watch TV in their rooms) aside from eating and waiting for the morning activity and the two afternoon activities (but only half will participate). Judy roams the building, checking out what the staff are doing and listening in on conversations to the point where she can interject a one-liner and then be off again.
March #2
We finally had another good day (70 and sunny). I just got a call telling me that Judy was climbing on one of the new stuffed chairs and she slid off of it onto the floor. Since neither she nor the chair were hurt they gave her a coke and put her in her room to relax. We have asked them to calm her down this way whenever she cries or get angry. I didn’t ask why she was running around the common area at 9 pm. I had taken her outside this afternoon and we walked around the grounds until she said her legs were tired, but apparently they recovered.
While Mark was here we took Judy down to Memorial Presbyterian church and walked around the empty building. She had been here many times before and expressed some interest now. I thought about taking her to a service, but it probably would not hold her attention. The memory community hosts musicians to play or sing for us for an hour (a captive audience), and I make sure to take Judy to hear them. Everyone is encouraged to sing along if they know the song but she just whispers or taps her fingers. She does not comment on the program (she won’t answer if you ask how she liked a program, or her meal—possibly because she forgot).
The staff categorizes a not-so-good day as one where Judy has an anger episode or sadness. I see her every morning, and sometimes she is still asleep and sometimes she is out eating breakfast. She says she is glad to see me, and sometimes she asks where have I been. I help the staff give her her meds, which are now a smaller number. Sometimes they are dissolved in her hot chocolate, sometimes they are crushed and stirred into chocolate pudding and spread on toast like jam. The worst is when an inexperienced cna tries to get her to take the crushed pills in apple sauce off a spoon. That usually ends with medicine on the floor.
Good days are when she wakes up cheerful, sings a song with the staff while they dress her, and gobbles up her breakfast (and meds). Others will come out for breakfast and she will say hello without using their name, instead giving them a compliment on their wardrobe or their smile. She thinks some don’t like her, and it makes her sad (she whispers this to me as we leave the dining room). Last month a wife joined us who has been married 6 months longer than us, and he visits every day after having rented a room in the independent living building. Judy talks to the wife when the husband is gone, but she is deaf and can’t process Judy’s speech fast enough. Judy pats her when she goes by. Judy tries to kibitz with everyone.
We had expected to join a community that had chosen to grow old together, but our group does not interact very much in part because there has been a good deal of replacement with a new person joining us each month. Only four men and three women have been here longer than Judy has, all over 65. The men have been here several years, and have local visitors. Our neighbor is a woman our age who has been here a few months longer than Judy. She corrects Judy when she does not do things properly, which annoys Judy. Another of the senior women is bedridden. The staff is very friendly and are cheerful and encouraging with all the residents.
Judy makes acquaintance with each new resident (they have all been women) since none of the more senior residents have shown any interest in her or the other newbies (the two friendly senior woman died a month after we arrived). She has made friends with a woman whose husband does not visit very often because he thinks it interferes with her transition to a new life-style. Another new resident can not speak but she and Judy get along as the least verbal of the group using body language. The verbal residents are put off by the effort it takes to understand Judy, who talks fluently but the wrong words come out. The newbies sit in the common area and talk (the women show no interest in TV). There is not much for the residents to do to pass the time (a couple have a hobby and the men watch TV in their rooms) aside from eating and waiting for the morning activity and the two afternoon activities (but only half will participate). Judy roams the building, checking out what the staff are doing and listening in on conversations to the point where she can interject a one-liner and then be off again.

March   #1March is starting out like a lion so, it may take two letters to cover all the news. our oldest granddaughter ...
03/10/2026

March #1
March is starting out like a lion so, it may take two letters to cover all the news. our oldest granddaughter bought a house, our middle granddaughter got engaged, and Emily, our youngest granddaughter and a friend leave this weekend to celebrate spring break in Savannah Georgia (my son will come over from Chicago to room with me while they are gone). When they return, my sister from Denver drops by for a visit. I see Judy every day, usually in the morning (helping her get dressed and get breakfast) and in the afternoon ending when she goes to supper (4:30). Emily’s house is only 5 minutes from the nursing home. I final got to see Emily’s doctor, who gave me a quick exam and refilled my prescriptions. My eye doctor lasered the scar tissue from my cataract surgery, so I can now drive at night (headlights coming toward me were refracted all around my eye by the ragged edge of the scar, obscuring the road). Next month Judy and I will meet Emily’s dentist.
February was a little rough, even not counting the weather. Judy fell down in the common area; we suspect because she had been administered a dose of sedative as she was up and active at 11 pm. Since she hit her head, protocol was to send her to the ER. They called me and said that they had requested an ambulance but said it was not necessary for me to come. From our experience going to the ER in December when Judy got covid we did not want her lying alone in a room for 5 hours while they ran tests, so we told them we would come and followed the ambulance. The x-rays were negative, and they also viewed her hips. It was 5 am when we got her back to bed.
After that experience we began to study the protocols in place for using sedation when residents were having an “episode”. The staff keeps detailed records, and we found out that Judy had been sedated a majority of the days in January, presumably because she was crying or aggressive. The staff never told us of these instances. The drug they commonly use is hard on the kidneys, and Judy has kidney disease. We got together with the doctor and substituted a different drug, and within a week Judy had some fire back. We are now looking at her prescription list to see if she is over medicated. She has been taking a dementia drug for two years that is known to lose its effectiveness after a few months, so we are stopping it. We expect to convince the head nurse to conduct some more training so the workers will stop depending on sedatives to control episodes and instead manage deescalation behaviorally. We are fortunate that our memory center has lower employee turnover rate than the country (which is 50% ).
Judy and I are now members of Memorial Presbyterian church and I am prodding them to set up a visitation program for their sick or invalid members, hoping to add some variety to Judy’s environment. This week we repeated an “outing” we enjoyed in December where we rode the bus around town after picking up an ice cream sundae. It is a lot of trouble to get everyone buttoned up for the trip, but Judy liked the sundae this time. As we begin to thaw out, I am making more frequent trips to the gym. I had a good workout schedule in Shelbyville with a class 3 hours a week and a private workout after each class which burned 200 calories. When we went into the first memory care unit in Indy last August I stopped all exercise and substituted packing and moving our house. Now I find it very taxing to get up early and do a half-hour on machines that only burns 100 calories. It is going to take time to get back into some sort of shape.
More news in three weeks. Mark will help me post some pictures. Would you like to get this in your email? Email me.

02/04/2026

February Update 2026

We have completed three months in Michigan, but there is still a long list of things needed to complete the move (for instance, get Michigan plates on my car, get Judy a Michigan ID card, and unpack dozens of boxes).

Judy, Emily and I came down with covid just before New Years. We got a call from the night worker at the memory care just before midnight saying that Judy was very quiet and not behaving as she usually does. Out of an abundance of caution, we took her to the ER and spent a long night there. She tested positive, and luckily that was all that was wrong after a battery of tests. She never had a cough! Because of her condition, she cannot verbalize what she is feeling, so it’s a guessing game. Fortunately, Mark, Merynn and Kyle didn’t catch it!

Judy likes to get up at 4 or 5AM and help the staff with whatever they are doing. She eats breakfast, goes back to bed, wakes up about 7AM and has another breakfast. I usually arrive about 8:30 and get her to take another nap before lunch. The mornings are her most active time throughout the day. There is an exercise session before lunch every day, but Judy is only interested in the big ball punch game–and she punches the ball pretty hard. She does get distracted at times and the ball sometimes hits her in the head while she is looking somewhere else, but she remains nonplussed. Aside from the activities scheduled through the day, there is an excursion scheduled every Monday. We took the facility bus to McDonald's on MLK day and had an ice cream sundae. Judy enjoyed the trip but fears getting on and off the bus.

I have also tried to teach her the card game “war” and she will watch me flip both stacks of cards, but she is hesitant to turn over a card herself. She watches and comments, but her physical interaction is limited. I also amuse some of the residents by folding a blanket and today the staff-led exercise was sorting and folding towels.

I have read 8 books on dementia–including one that recommended folding linens as an activity. I’ve picked out the best one so far for Mark and Emily to read: The Caregiver’s Guide to Memory Care and Dementia Communities by Rachel Wonderlin. There will be a test!

Often dementia patients identify with a period of their lives that they like to talk about as if they are re-living it now (maybe with some extra people). Judy has not done this and she does not talk about her past even though we have a life-sized poster of our wedding picture at eye-level on her wall, and she looks at it sometimes as she passes. She remembers my name and last night she asked Emily when Mark was coming. She is difficult to predict because she doesn’t fit in any “category” of behavior stereotypes of Alzheimers. She does have episodes of panic/fear where she believes people will hurt her, and we get calls from the care staff to come help to calm her down, but these are infrequent.

It is always sunny and warm in Judy's room and she has a picture-window view of the parking lot. She generally wanders through the public areas and has been known to walk into other patient's rooms when they are gone.

This week she has a good appetite and has taken her pills with a minimum of hassle. Hiding them in hot chocolate seems to work.

I am going to distribute this letter on three lists: Facebook for those people who are following the Judy Mitchell Update Page, emailed to those not on FB, and mailed those who would prefer to get it in the mail. Let me know which list to put you on or if I’m missing anyone who would be interested in getting updated. I am at [email protected] or (317) 364-3644. Best wishes for the new year!
Will & Emily

12/26/2025

2025 NEWS FROM THE MITCHELLS

May the Lord bless you and yours this Christmas season. I am writing a Christmas letter which I have never done before to pass on news of Judy and our family as we adapt to our next chapter. Of course we have had a welcoming snow storm here in Michigan, but we had a nice Thanksgiving with all the children and grandchildren and they will all be back for Christmas.

We have not yet recovered from our move up here in October as unopened boxes in the garage and basement will testify. Judy has adapted fairly well to her new home, but she has good days and not so good. She has become a staff favorite while the other residents don't know what to make of her and her constant visitors. Yesterday we had a craft project for families and when we told Judy about the plan to decorate wreaths. She shot back, “who died?” She continues to get up at 6AM and tries to avoid swallowing her pills, but I arrive a little after 8AM each morning and get her to take a post-breakfast nap. She is eating well and does a lot of shepherding of the other residents in place of joining the regular exercise class herself. Her place and the employees are very nice, and we have had minimal issues with their care of her. She is a five minute drive from Emily’s house.

I have set up some medical appointments in January and February to introduce me to my new doctors. We have taken some short drives to adjacent towns but we are not planning any but day trips. Judy seems to like riding in the car (she remembers how to get in her seat) but we don't know if her back-seat driving is because she is frightened or because it is fun (the drivers keep assuring her she is not in danger). Besides visiting with Judy I have joined the new member’s class at Memorial Presbyterian Church, and it is the second largest Presbyterian church in Michigan. They televise their services on YouTube.

When I finish all the moving related activities, I plan to continue my study of Alzheimer's and visits with Judy. I have read three books since settling in. I plan to work on learning to converse on Facebook and learning to use my smart cell phone. I intend to cajole Mark and other people with time to spare to tutor me. In addition, Midland has a very elaborate support system for seniors –they serve lunch at all five program locations– and I have attended two tech talks on cell phones that were even more beginner than me, but they gave me some resources to explore.

We hope that as our family changes continue to be challenging, we take the opportunity to grow and learn how to live in the moment. We wish you and your family health and wellness in the coming new year, and please keep us on your prayer list. Emily says she will welcome any visitors that endeavor to make the trip!

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