Hope for Hadley

Hope for Hadley Follow us here for updates on Hadley as we learn to navigate ATRT and the world of childhood brain cancer!

01/01/2026

Early yesterday morning, our sweet Hadley James went to be with the Lord. How thoughtful of her to wait until New Years Eve so that we could celebrate her life lighting up the sky. She would have loved watching them. (Probably from inside the house where it wasn’t so loud!)

We covet your prayers during this time as we navigate life without our goosey girl. She was the best big sister, and Banks and Murphy Kate are missing her so incredibly much. And while we are all absolutely heartbroken, we find comfort in Gods promises. We are thankful she is no longer scared or hurting, and that she is finally at peace.

Over the last couple days, Hadley has declined much faster than we would have liked. Yesterday we made the decision to t...
12/28/2025

Over the last couple days, Hadley has declined much faster than we would have liked. Yesterday we made the decision to transfer her care inpatient to help keep her comfortable. Over the last 24 hours, we have worked closely with her team to get her nausea and pain under control. She is still a little restless, but we are doing everything we can to help her.

She is still waking up every so often wanting to play with slime and asking for Banks to come see her. Oh, and of course, she’s asked if we can go to target tonight!

We don’t know how long we have, but we are thankful for every second we have with her! Please continue to pray with us for her comfort, that she is pain free, and is able to get the rest her body deserves.

This is not the update we were hoping for, but that seems to be the trend lately. The tumors on her spine have stabilize...
12/12/2025

This is not the update we were hoping for, but that seems to be the trend lately. The tumors on her spine have stabilized. But, there are so many new tumors to her brain scattered all over, and the tumors that were there before are so much bigger. We know that the time we have left is extremely limited, extremely. Our plan for now is to continue treatment through the holidays as long as her body and quality of life allow for it. This is to hopefully allow her to have an amazing Christmas surrounded by everyone who loves her. She is still running and playing and living the best little life we can give her. She does frequently have headaches and does get tired more easily now than before, but she is still managing very well with the help of comfort measures. Thank you to everyone who has reached out, prayed for Hadley and our family, sent gifts and everything else y’all have done for us. We appreciate it more than we could ever express. Please continue to keep her in your prayers that we can keep her comfortable and happy.

Hadleys MRI of her brain and spine are set for tomorrow morning at 9:30! Please remember to pray for our sweet girl that...
12/12/2025

Hadleys MRI of her brain and spine are set for tomorrow morning at 9:30! Please remember to pray for our sweet girl that she will have stable scans and that the treatments we have been doing are working to keep her tumors from growing.

Hadley has had a very big week! We started out on Monday driving to Memphis, and then Tuesday, Hadley had a lab check an...
12/07/2025

Hadley has had a very big week! We started out on Monday driving to Memphis, and then Tuesday, Hadley had a lab check and treatment! She handled treatment like a champ, and then we headed upstairs to play for a bit! On Wednesday, we moved from housing at the hospital to a hotel downtown. We hung out around the hotel most of the day and let the kids rest and play. Thursday we went to the marathon Expo and checked in for the race, and also hit up the candy store on Beale street! Friday, Hadley showed some of our friends around the hospital, and then we went shopping at the Galleria! Friday evening we were able to see some more friends and hang out at the hotel, prepping for race day!

Yesterday morning we woke up bright and early for the race! Dad and the kids took off walking from downtown to the St. Jude campus to watch part of the race and wave at our friends as they ran through! After I ran (walked🤪) through campus, they headed upstairs to play and warm up. After hanging out for a little while, Hadley decided she wanted to meet me at the finish line to help me cross again, so they packed up and headed back down to the finish line! I continued the race and met up with them just before the finish line where Hadley hopped over the fence and we finished together! After the race, we enjoyed some more time with friends and family, and the kids were able to open some Christmas gifts, too!

Today we packed up a weeks worth of chaos in our room, and headed home! Along the way, we stopped at a reptile expo in Southaven and the kids all loved it! We’ve really had the best week, but we are ready to be home for a few days! We will only be home for a few nights before heading back to Memphis for scans. Hadley will be sedated Friday for scans of her brain and spine to see if the current treatment she is on is helping to give her any stability. Please be in prayer with us that her tumors are holding stable, and that we can continue to give her more good days while preserving her quality of life.

Tomorrow is race day! We have 7 tickets left to sell! Let us know if you want one and we will pull your ticket for you!
12/05/2025

Tomorrow is race day! We have 7 tickets left to sell! Let us know if you want one and we will pull your ticket for you!

11/28/2025

Hadleys hair has been thinning for about a month now, and she was getting fed up with it! It would get in her mouth, her food, and it bothered even more when she was sleeping. She tossed around the idea of cutting it for almost a week and yesterday she decided for sure she was ready! She said she wanted to share her haircut video with all of her friends so here we are! She’s still so excited about it! I think that’s because she won’t have to wash it anymore🤣

11/27/2025

Fundraiser for the St. Jude Marathon! We head to Memphis on Monday for treatment and will stay there until the race on Saturday! Here’s some information about the only fundraiser we are doing this year! It is a raffle for a Browning A-Bolt III 308 with a synthetic stock in army green! I will post a picture in the comments later for anyone interested!

If you are not interested in the fundraiser, but still would like to donate, I will continue to share the link to my fundraiser for Hadley’s team!

Editing to add that all of the money raised will go directly to our fundraiser for the hospital!

Hadley had a good check up on Tuesday! Her labs looked good, and her liver enzymes were down! She had a good treatment, ...
11/09/2025

Hadley had a good check up on Tuesday! Her labs looked good, and her liver enzymes were down! She had a good treatment, but afterwards was feeling very tired and irritable. This trip was just Hadley and mom, so I’m sorry for the late update! She needed extra cuddles and love that evening. We’ve also picked up a cold, which is part of the reason I think she had such a tough evening on Tuesday. We’re hoping to kick this virus soon so she starts feeling better!

Hadley will head back to St. Jude in about a week for another treatment and lab check! Please continue to pray that her liver enzymes stay down and don’t begin to rise again with the chemo she’s taking at home. She has also started having some pain in her back, so please also pray that we are able to keep her comfortable!

Here’s a picture of the kids all playing on their new play set! We were able to surprise them yesterday with the help of some sweet friends! They are all so excited and it has already helped keep Hadley much more active!

Hadley is back at St. Jude for another lab check and chemo infusion! She’s had the last week off of all chemo, but now i...
11/04/2025

Hadley is back at St. Jude for another lab check and chemo infusion! She’s had the last week off of all chemo, but now it’s time to start again! Please pray with us that her liver enzymes have come down with this week off of chemo, and that she has an uneventful chemo infusion this afternoon! If her liver enzymes continue to rise, we will have to lower the dose of chemo she is receiving. Please pray specifically against that! I will update later this afternoon with how things are going!

Hadley is back at St. Jude and getting ready for her next chemo infusion! She’s currently getting all of her pre-meds to...
10/21/2025

Hadley is back at St. Jude and getting ready for her next chemo infusion! She’s currently getting all of her pre-meds to help with nausea control, and then her chemo will start. Please pray with us that she has an uneventful infusion and doesn’t have any nausea or vomiting this evening. She has been doing so well the last couple of weeks, and we are so thankful! Please also continue to pray that these treatments will help Hadley maintain stability in her tumors so we can have so many more good days!

Hadley recovered well from her stomach virus, and we decided to take the rest of that cycle off of her chemo. She had th...
10/07/2025

Hadley recovered well from her stomach virus, and we decided to take the rest of that cycle off of her chemo. She had the best week and a half of rest, spending time with cousins and friends, and doing everything she wanted to do! We came back to Memphis early to spend time with some friends! We all enjoyed a weekend at Bass Pro making sweet memories! Hadley had labs this morning, and for the most part, everything looked okay. Now, we are waiting on her chemo to get ready and then we will head down to the infusion center for the afternoon. Please keep Hadley in your prayers for nausea control, that the chemo is killing the cancerous cells and nothing else, and that she will tolerate her oral chemo every night for the next three weeks.

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Nanih Waiya
Mississippi

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