Alicia's Journey with IIH

Alicia's Journey with IIH "Empowering Lives, Sharing Stories Together in IIH and Beyond”

Alicia's Journey with Idiopathic Intracranial Hypertension (IIH) is a platform where Alicia courageously shares her experiences navigating life with this condition. Join her as she confronts her struggles, celebrates her triumphs, and tackles the daily challenges associated with this rare neurological disorder characterized by high intracranial pressure around the brain. From initial diagnosis to exploring treatment options, Alicia's narrative illuminates the significance of awareness, resilience, and the power of community support in overcoming adversity. Whether personally affected by IIH or seeking to deepen understanding, Alicia's journey offers invaluable insights, inspiration,and a beacon of hope for all.

Good morning! Self-care is not selfish, and rest is not a sign of weakness. When your body asks you to slow down, listen...
05/09/2026

Good morning! Self-care is not selfish, and rest is not a sign of weakness. When your body asks you to slow down, listening is an act of wisdom and compassion. You do not have to earn the right to rest. Take care of yourself today without guilt or apology. 💙💚

Good night. I made it through another week, and that is worth celebrating. My progress may not look impressive to everyo...
05/09/2026

Good night. I made it through another week, and that is worth celebrating. My progress may not look impressive to everyone, but I know what it took to keep going through the pain, exhaustion, and uncertainty. Tonight, I will not minimize my strength. I will rest knowing that every small victory matters. 💙💚

Behind every diagnosis is a real person, a powerful story, and a strength the world may never fully see. 💙💚 Join me as I...
04/09/2026

Behind every diagnosis is a real person, a powerful story, and a strength the world may never fully see. 💙💚

Join me as IIH Warrior, mother, and chronic illness advocate Anne Coleman shares her honest, unfiltered journey of living with Idiopathic Intracranial Hypertension and invisible illness. Through healing, self-advocacy, hope, and purpose, Anne is transforming her pain into connection and awareness.

📅 September 5, 2026
⏰ 11:30 AM Jamaica Time | 12:30 PM EDT
📍 Streaming live on TikTok: .robinson47

Come hear her story, ask questions, and show your support. Every voice matters, and every story deserves to be heard.

Good morning, and happy Feel-Good Friday! You may not have control over every challenge this day brings, but you can sti...
04/09/2026

Good morning, and happy Feel-Good Friday! You may not have control over every challenge this day brings, but you can still make room for something that brings you comfort, peace, or joy. Celebrate every victory, including the quiet ones that nobody else sees. You have made it through another week, and that is worth acknowledging. 💜

Good night. Before this day ends, I am choosing gratitude. I may not have everything figured out, and my body may still ...
04/09/2026

Good night. Before this day ends, I am choosing gratitude. I may not have everything figured out, and my body may still be fighting battles others cannot see, but I am thankful for every moment of strength, every answered prayer, and every person who continues to support me. Even in difficult seasons, there is still something worthy of gratitude. 💚

🚨 “Idiopathic” does not mean imaginary! The cause may be unknown, but the pressure is real. The pain is real. The vision...
03/09/2026

🚨 “Idiopathic” does not mean imaginary!

The cause may be unknown, but the pressure is real. The pain is real. The vision changes are real and the lives affected by Idiopathic Intracranial Hypertension (IIH) are real.

Too many people suffer in silence because their condition is misunderstood. It’s time to replace assumptions with awareness and silence with understanding. 💙💚

Read. Learn. Share. Someone’s diagnosis may depend on greater awareness.

Thankful Thursday: A Heartfelt Thank You to My Incredible Support Team!As I continue my journey with IIH, today I want t...
03/09/2026

Thankful Thursday: A Heartfelt Thank You to My Incredible Support Team!

As I continue my journey with IIH, today I want to pause and express my deepest gratitude to each and every one of you who has been by my side. Whether through your prayers, words of encouragement, emotional or financial support, your love has lifted me more than you know.

To my family, friends, church family, coworkers, medical team, and even those I’ve met along the way your unwavering support means the world to me. On the days when the struggle feels overwhelming, it’s your kindness, patience, and understanding that keep me going.

You’ve made this journey feel lighter and filled with hope, and for that, I am forever grateful. Please know that your gestures, big or small, do not go unnoticed. From the bottom of my heart, thank you. Together, we are stronger, and together, we will continue to persevere.

With immense gratitude and love,
Alicia ❤️🙏

💚💙 WHAT IS IIH? 💙💚Idiopathic Intracranial Hypertension (IIH) is a serious neurological condition in which the pressure o...
03/09/2026

💚💙 WHAT IS IIH? 💙💚
Idiopathic Intracranial Hypertension (IIH) is a serious neurological condition in which the pressure of the cerebrospinal fluid (CSF) around the brain becomes elevated without a detectable cause. This increased pressure may affect the optic nerves, threaten vision, and cause disabling symptoms that significantly impact daily life.

Common Symptoms of IIH Include:
🥼 Severe or persistent headaches
🥼 Blurred or double vision
🥼 Temporary vision blackouts or vision loss
🥼 Ringing or whooshing in the ears (pulsatile tinnitus)
🥼 Nausea and vomiting
🥼 Dizziness or balance problems
🥼 Neck, shoulder, or back pain
🥼 Pain behind the eyes
🥼 Brain fog, memory problems, and fatigue
🥼 Swelling of the optic nerve (papilledema)
🥼 Sensitivity to light

Is There a Cure for IIH?
There is currently no known cure for IIH. It is a chronic condition that may require lifelong care and monitoring.

📚 Treatment Options May Include:
💊 Medication – reduces cerebrospinal fluid production
🏃‍♀️ Weight management – may help lower pressure when medically appropriate
💉 Lumbar puncture – may provide temporary pressure relief
🪛 Shunt surgery (LP or VP shunt) – drains excess cerebrospinal fluid
👁️ Optic nerve sheath fenestration (ONSF) – relieves pressure on the optic nerve to protect vision
⛓️ Venous sinus stenting – improves venous drainage in carefully selected patients
👩‍⚕️ Regular specialist monitoring – helps protect vision and manage symptoms

🧪Treatment is individualized and focuses on reducing pressure, preserving vision, and managing symptoms.

🧠IIH is not “just a headache.” It is a complex and often misunderstood condition that can cause serious, long-term complications—especially when it is not diagnosed or treated promptly.

🗣️ Let’s raise awareness so more people can recognize the symptoms, seek timely medical attention, and not suffer in silence.

Good morning! Today, I am thankful for every person who chooses to listen, learn, and support those living with IIH. Som...
03/09/2026

Good morning! Today, I am thankful for every person who chooses to listen, learn, and support those living with IIH. Sometimes, the smallest acts of kindness—checking in, sharing a post, offering encouragement, or simply believing someone—can make the greatest difference. Let gratitude guide your heart today. 💚

Good night. Tonight, I am reminding myself that caring for my mental health is just as important as caring for my physic...
03/09/2026

Good night. Tonight, I am reminding myself that caring for my mental health is just as important as caring for my physical health. Living with IIH can be emotionally exhausting, and I do not have to pretend that every day is easy. I am allowed to pause, breathe, pray, and acknowledge what I feel. Tomorrow is another opportunity to begin again. 💙

Address

Kingston

Telephone

+18765713207

Website

, ,

Alerts

Be the first to know and let us send you an email when Alicia's Journey with IIH posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share

Category