09/20/2025
Hi everyone!! I apologize for being less active these last few weeks. Beyond the day to day chaos that is my life, the tragedies that have gone on in the rest of the world have just made everything feel a lot more... heavy. My heart hurts. For all of us. And it didn't feel right to be sharing my own challenges, or even the happy and good smiley moments. To do either just felt wrong. So I have a lot of personal updates to share that I have been keeping to myself while I try to wrap my head and heart around what the hell is going on in our country. With that said... Here comes a big long update.
Dallas has been loving going to school!! But the some evenings have not been great. He is either really happy, or he is battling pain, discomfort, flushing, fevers, and some scary low blood pressures again. So I woke up at 1am last night to start his bowel cleanout regimine which will run over the course of two days. Which means I will be a very busy mama this weekend. But I hope and pray that this is what Dallas needs to get him back on track and feeling good and happy for the next several weeks. I am thankful for the ability to do this and keep him hydrated from home so we don't have to go to the hospital.
Now for an update on me and my junk knee... after weeks of physical therapy, it has been determined that I will not be able to regain the stability I need. So I will be having major knee surgery in a little over 3 weeks on October 14th. I will receive a donor tendon to reconstruct my ruptured ACL. I also have a torn meniscus that will require repair, and they will repair any additional damage that has been caused by my knee slipping several times since the original injury. I will be in a full length leg cast/brace locked straight for a minimum of 6 weeks. LOTS of Physical therapy and a "Full" recovery from a surgery like this will take 6-12 MONTHS. I have a plan in place for Dallas, but I may need some extra help.
Right now, I am actually most concerned about my daughter Emma. Dallas' amazing big 11yr old sister. Something happening to HER has always been one of my biggest fears. She is my "healthy" kid and nothing can happen to her. Someday she will be my only child. So the thought of anything being wrong with her terrifies me. And I am terrified, because something is going on with her heart. We have known for some time that she has Tqchycardia episodes, and we have had her seen but because the ECG has only ever been on when she is not having an episode, we haven't received any answers. But she had a really bad episode at school on Wednesday and unfortunately, she was too scared to go to the school nurse. So she sat through class with her head down, while her heart beating so hard her necklace was jumping off her chest. Afraid to get up because she thought she would faint or vomit. Her best friend Adele had to help her at her locker and said she was extremely pale and her lips were almost purple. Emma said it lasted longer than it ever has before. It did stop eventually. When she got home from school, she told me what happened and showed me her Apple Watch and I about died. Her RESTING heart rate was 211 BPM 😳😳😳 That is absolutely insane and could even cause cardiac arrest! So now she has a portable ECG monitor she will be bringing with her everywhere, we have a plan in place with her and the school nurse should it happen again, and she has an appointment with a Cardiologist at Childrens St Paul on Tuesday. So yeah... I am pretty freaked out and anxious to get some answers and a prevention plan in place. And we only have 3 weeks to get it done before I have my surgery.
So there is my big long update. I don't know why life has to be so hard sometimes. There is so much going on that I feel like I am drowning. But we will get through it. We always do 💪 Keep us in your prayers and say some extra ones for Emma too please 🥺🙏❤️🩹
