Parenting With Heart & Mind

Parenting With Heart & Mind Dive into our world as we share our unique journey through heart disease and autism.

Are you in Ocala FL area?Have you heard of Cauldron & Quill? Because if you haven’t let me share.Today we got theBLUEBER...
04/26/2026

Are you in Ocala FL area?

Have you heard of Cauldron & Quill? Because if you haven’t let me share.
Today we got the
BLUEBERRY FRENCH TOAST Latte 🫐☕️
&
Blueberry Chocolate Milk for the kiddo.
Not pictured but my husband got a Banana Foster Hot Latte.

The flavor, creativity and uniqueness is something like I’ve never experienced before.
I can’t wait for them to find a home base.

Go check them out and give them a follow.

04/15/2026

Today marks the 5 year anniversary of my sons heart surgery that saved his life.
I had to say goodbye to my son and watch him get wheeled off with a team of nurses and a surgeon and was expected to put all my trust in them.
A 4 hour surgery but it took more like 6 hours before I could see him again.
The drugs from anesthesia took over his eyes.
No one talks about a 2 month old baby who has to go through withdrawal.
The tubes, the blank stare, the monitors and the beeping. It lives rent free in my brain. It’s a trauma I don’t wish on any family.
But my heart warrior came out on top.
Thank you to Dr Griffiths from Primary Childrens Hospital for giving my son the opportunity at life. Thank you for treating the babies under your care as if they are your own.










5 Years Ago today.We went in for our first scheduled Echo to check on my son’s heart murmur.His heart murmur was found f...
04/13/2026

5 Years Ago today.

We went in for our first scheduled Echo to check on my son’s heart murmur.

His heart murmur was found for the first time at 3 weeks old.
But by his 8 week checkup (the day before the echo) the murmur was not heard any longer.
At his 8 week checkup:
*heart murmur very faint if not resolved
*dropped from 97% for weight at birth to 21%
*diagnosed failure to thrive
*instructed to fortify his breastmilk feeds to gain weight
*advised that since the heart murmur was barely heard it was probably resolving on its own but the doctor said he wouldn’t be doing his job if we didn’t get it checked out (he was right).

April 13th 2021: we were told our child probably has less than a week left if we hadn’t found his heart problem.

We went into this echo with a false sense of security thinking his heart murmur was fading.
We ended up admitted to the emergency dept, transferred to the city, and life flighted across state lines to a pediatric heart surgery center.

This is him now.❤️‍🩹

I know I’ve been extremely absent from this page and I’m deeply sorry.We are still fighting things in our personal life ...
04/10/2026

I know I’ve been extremely absent from this page and I’m deeply sorry.
We are still fighting things in our personal life preventing me from really being able to update much.

But today is school picture day! So I thought I’d share 🙃

When you are medically classified as non verbal and realistically only minimally verbal then paying attention to body la...
03/12/2026

When you are medically classified as non verbal and realistically only minimally verbal then paying attention to body language is incredibly important.

He was holding onto this spot for some time and yes he did end up having tightness and tenderness in that area.



03/10/2026

He only just turned 5 in February and isn’t even in kindergarten yet and I watched him attempt to spell this word. I’d say he did pretty well!





Are words even needed for this post?😅💜
03/07/2026

Are words even needed for this post?😅💜








My son is 1 in 100.
02/17/2026

My son is 1 in 100.

02/13/2026

My son and I were in a “high energy rear end collision”.

For those new around here my son is minimally to non verbal autistic. The impact was directly behind him.
When paramedics tried to examine him he screamed.
When his dad arrived on scene and attempted to get him transferred to our other car… he screamed.

The amount of uncertainty, questions, concerns as a parent that I have about his well being is so loud my ears hurt. Because this reaction for him is not normal. And when they can’t tell you what is wrong? All you are left to do is wonder.
How do you advocate for their care if they can’t tell you? That’s been our biggest challenge with his language ability and our top focus.

Unfortunately being a stay at home mom to a special needs child means we really can’t go without a second car. He’s got therapies, appointments, school that all require transportation.

This in many ways is devastating for us.

I don’t have much to update as of now because it’s still so fresh. But it’s a statement that I wanted to share to just give some insight on what autism parenting looks like in everyday life situations.

Day 12 of heart month and today we want to take a moment to say HAPPY BIRTHDAY to the strongest little warrior we know.
02/12/2026

Day 12 of heart month and today we want to take a moment to say HAPPY BIRTHDAY to the strongest little warrior we know.

Address

Ocala, FL
34431

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