Smiles for Baby Charley

Smiles for Baby Charley Charley was diagnosed with brain cancer Pilocytic Astrrocytoma and an extremely rare neurological disorder Diencephalic Syndrome that is caused the tumors

Charley was born on August 13th 2013. She was healthy and beautiful with 10 fingers and 10 toes, she was the happiest baby Id ever seen. She was perfect! At 2 months old I started to think she was a little on the small side. I asked her doctor and he said that she was fine, she may just be a small child. At 3 months old I was even more concerned and took her back to the doctors office and in fact

she had lost weight from her last visit. We then started trying to figure out what was causing her weight loss. After many tests and scans they found a mass in her brain. We were flown to children's of Alabama in Birmingham. There they did a biopsy and December 3rd 2013 Charley was diagnosed with brain cancer Pilocytic Astrrocytoma and an extremely rare neurological disorder Diencephalic Syndrome that is caused the tumors. DIencephalic Syndrome is a very rare neurological disorder characterized by failure to thrive, abnormal thinness (emaciation), amnesia, intense sleepiness, unusual eye position and sometimes blindness. It is normally seen in infancy or early childhood but some cases have been reported in older children and even adults. Diencephalic syndrome is usually caused by a brain tumor such as a low-grade glioma or astrocytoma. Smiles for baby Charley
6847 N 9th Ave Ste A #122
Pensacola, Fl 32504

12/18/2025

Always getting into trouble… then trying to use her cuteness to get out of it.
December 18, 2018

December 18, 2014 Charley girl had been awake for 30 hours thanks to all the steroids she was on. The steroids were alwa...
12/18/2025

December 18, 2014 Charley girl had been awake for 30 hours thanks to all the steroids she was on. The steroids were always the roughest part of any hospital stay.

Charley girl, December 17, 2018. I can still hear her little voice saying, “I’m hiding.”
12/18/2025

Charley girl, December 17, 2018. I can still hear her little voice saying, “I’m hiding.”

12/17/2025

KitKats first good look at the field..

Afternoon walk.. it’s so peaceful here.. 🥰😮‍💨
12/17/2025

Afternoon walk.. it’s so peaceful here.. 🥰😮‍💨

KitKat was bullying the boys at night because she wanted to go outside. 😅So I let her come out this morning and showed h...
12/17/2025

KitKat was bullying the boys at night because she wanted to go outside. 😅
So I let her come out this morning and showed her Pop’s little workshop and a couple of hiding places. She didn’t bolt and seemed curious, so it was a good introduction to her new territory.

Charley with Santa and Mrs. Claus, December 17, 2013 🎄✨
12/17/2025

Charley with Santa and Mrs. Claus, December 17, 2013 🎄✨

Feeling good off those pre meds before her J tube change 💕 December 16 2016
12/16/2025

Feeling good off those pre meds before her J tube change 💕 December 16 2016

12/16/2025

The biggest thing I have to work on with Bubba is getting him not to chase the wildlife. We stand our ground. We do not chase.

12/16/2025

December 16 2014. Six days post surgery. Learning the world in a whole new way.

KitKat hid under the dresser for a couple hours and took a nap… now she’s out here in the living room making biscuits an...
12/16/2025

KitKat hid under the dresser for a couple hours and took a nap… now she’s out here in the living room making biscuits and slapping Bubba around. 😼🥊

12/15/2025

We all made it!!
Only a couple hangers fell.. Everything else was perfectly in place 💪😍

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Pensacola, FL

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