HS Warrior Stories

HS Warrior Stories Stage III HS Warrior + Wife Team 💜
→ Global HS advocacy & education
→ Real lives beyond the diagnosis
↓ Resources & Share Your Story

We created The HS 101 Starter Guide because we wish something like this had existed when Jeremy was diagnosed over eleve...
07/26/2026

We created The HS 101 Starter Guide because we wish something like this had existed when Jeremy was diagnosed over eleven years ago.

Today, we’re sharing the final chapter: ‘Support & Resources’. If there’s one message we hope you take away from this chapter, it’s this:

➡️ You don’t have to figure out HS alone.

There is a community. There are people who understand. And there is more hope today than ever before.

Please share this with someone who may need help navigating HS.💜

Each month, we ask ourselves what actually changed in the world of HS?This isn’t just a recap of the news. It’s our pers...
07/03/2026

Each month, we ask ourselves what actually changed in the world of HS?

This isn’t just a recap of the news. It’s our perspective on the trends shaping the future of hidradenitis suppurativa.

June didn’t bring one defining breakthrough. Instead, it showed something just as important: meaningful progress is happening across research, treatment, clinical care, advocacy, and our community.

Which insight stood out most to you?

⬇️ We’d love to hear your thoughts in the comments.

If you’ve ever felt overwhelmed by all the different treatment options for hidradenitis suppurativa (HS), you’re not alo...
06/27/2026

If you’ve ever felt overwhelmed by all the different treatment options for hidradenitis suppurativa (HS), you’re not alone...

Topicals. Antibiotics. Biologics. Surgery. Lifestyle changes. Where do you even begin?

The truth is that there isn’t one “best” treatment for HS because there isn’t one type of HS. Every person’s disease is different, which means treatment should be, too.

In Chapter 4 of our HS 101 Starter Guide, we walk through:
- Why treatment is highly personalized
- The most common treatment options available today
- Why treatment often works best as a combination of therapies
- Why you are an important member of your healthcare team
- Why, despite how difficult this disease can be, there has never been more reason for hope

Whether you’re newly diagnosed or have been living with HS for years, we hope this guide helps make treatment feel a little less confusing…and a little more hopeful.

💜 Save this post for future reference.
💜 Share it with someone navigating HS.

💬 We’d love to hear from you: What treatment (or combination of treatments) has made the biggest difference in your HS journey?

This post is for educational purposes only and is not medical advice. Always talk with your dermatologist or healthcare provider about the treatment plan that’s right for you.

📖 Chapter 3 of our HS101 Starter Guide: Living With HSThis chapter isn’t about flares or treatments. It’s about the real...
06/24/2026

📖 Chapter 3 of our HS101 Starter Guide: Living With HS

This chapter isn’t about flares or treatments. It’s about the realities of living with HS beyond the skin, including:
✅ The invisible symptoms.
✅ The mental health toll.
✅ The good and bad days.
✅ The support that changes everything.
✅ And the reminder that you are so much more than your diagnosis.

If you’ve ever felt like HS affects everything in your life, this chapter is for you. 💜

💫Please share with someone who needs more information about Hidradenitis Suppurativa (HS).

06/20/2026

The HS Community is a whole vibe! We are support. We are love. We “get it”. When we get together, this is how it can feel! Lots of folks just meeting for the first time…and it doesn’t matter, because we are .
This is what community looks like and we want you to join us!
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06/19/2026

Still riding high on the vibe from the AHSID (AH-SYD) | Hidradenitis Suppurativa Non Profit iReclaim Summit. The bar has officially been set. And it’s HIGH! Here’s just a quick compilation of clips I grabbed from the summit. More to come!
Jasmine “IVANNA” Espy | HS Advocate…you outdid yourself yet again. The Warriors can’t stop talking about how good we all felt here. Thank you, as well as all the sponsors for bringing all of us out and making this happen. We are all so thankful for you.
*
❤️

06/07/2026

The name Hidradenitis Suppurativa doesn’t even reflect what the disease actually is. It used to be thought that this was an infection of the sweat glands, causing pus to drain. But science has shown that this is a disease of the hair follicles!
How many of you already knew this?

Could this be HS?!!??Maybe you’ve been told it’s an ingrown hair. A boil. A cyst. Maybe you’ve been dealing with painful...
06/05/2026

Could this be HS?!!??

Maybe you’ve been told it’s an ingrown hair. A boil. A cyst. Maybe you’ve been dealing with painful bumps for years and never realized there could be a bigger explanation.

This chapter of our HS 101 Starter Guide was created to help you recognize common signs of HS, understand why diagnosis is often delayed, and learn what steps you can take next.

Most importantly, we want you to know that you are not overreacting, you are not “imagining” your symptoms, and if something doesn’t feel right, it’s okay to keep asking questions.

We built this guide because getting answers shouldn’t take 7–10 years.

Save this post for later, and share it with someone who may be searching for answers. 💜

🔗LINKS to free resources in this chapter are in the link in our bio.

💜 HS Awareness Week is here.This week, we’re launching our HS 101 Starter Guide 📓, a simple educational series designed ...
06/02/2026

💜 HS Awareness Week is here.

This week, we’re launching our HS 101 Starter Guide 📓, a simple educational series designed to help people understand what HS is, how to live with it as a Warrior (and caretaker), and why early diagnosis matters.

Many in our community already know this information. But someone out there is still wondering why the painful “bumps” keep coming back, and they don’t yet know there’s a name for what they’re experiencing.

Over the coming days, we’ll be releasing the guide chapter by chapter, with a full downloadable version coming soon.

If this helped you on your own journey, please consider sharing it. Many people with HS wait 7-10 years for a diagnosis. Together, we can help shorten that journey for someone else.

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