Super Loopie Woman: Lupus Warrior

Super Loopie Woman: Lupus Warrior Official LFA Ambassador here to talk about Lupus, Fibromyalgia, Endometriosis, Migraine, Depression, PTSD, VWd, Infertility & So Much More!

Official Lupus Foundation of America Ambassador, Group Facilitator & LRAN Member. Here to talk about Lupus & other chronic health issues 💜

For more info, visit http:/linktr.ee/superloopiewoman

June is Pride Month 🏳️‍🌈 & Scoliosis Awareness Month 🦴! For all those who aren't straight 🫶🏻
06/01/2026

June is Pride Month 🏳️‍🌈 & Scoliosis Awareness Month 🦴!
For all those who aren't straight 🫶🏻

I am a warrior.I am strong.I am beautiful.I am perfect the way that l am💜
05/29/2026

I am a warrior.
I am strong.
I am beautiful.
I am perfect the way that l am💜

Happy Memorial Day!--May we all remember those we've lost fighting for our freedom!Hopefully your weather is nicer than ...
05/25/2026

Happy Memorial Day!--May we all remember those we've lost fighting for our freedom!

Hopefully your weather is nicer than mine....Don't forget- Lupus can make you photosensitive!
Photosensitivity can cause rashes, fever, fatigue, joint pain, and other symptoms in people with both cutaneous (skin) and systemic lupus. Excess exposure to UV rays is a common trigger for increased disease activity (flare) of both cutaneous lupus and systemic lupus.
So apply & REapply sunscreen, wear sunglasses, hats & other clothing to keep you as covered & cool as possible!

Have fun,stay safe & don't forget what this day is about.

The morning of a person with lupus is so unhinged...you wake up in pain and exhausted, no matter how much sleep you get,...
05/22/2026

The morning of a person with lupus is so unhinged.
..you wake up in pain and exhausted, no matter how much sleep you get, so you take a pain pill...
..the pain pill makes you nauseous, so you take an anti nausea pill...
...the anti nausea pill makes you more tired so you take a caffeine pill....
...the caffeine pill makes me jittery and crazy...

All of them together make me question if I have just not taken anything at all.

Lupus isn’t just excruciatingly painful and exhausting — it can also be deadly.When my Co-facilitator and I went to the ...
05/21/2026

Lupus isn’t just excruciatingly painful and exhausting — it can also be deadly.

When my Co-facilitator and I went to the health fair at Mt Ararat Baptist Church, one of the questions we asked was "do you have any connections to lupus", or "do you know anyone with lupus"? The answer we received was overwhelming. I lost count of the number of people who told me their friend/sister/coworker/aunt..etc... had lupus and had passed away from it.

The reality is that systemic lupus still carries one of the highest mortality rates among autoimmune diseases. While medical advances mean lupus nephritis (kidney disease) is no longer an automatic death sentence, the threat hasn't vanished. Instead, severe infections and heart disease have taken its place as the leading causes of death for SLE patients.

This burden is not shared equally. In the Black and Brown communities, the impact is devastatingly high. African Americans with lupus are diagnosed younger, face a much higher risk of life-threatening kidney complications, and die at significantly younger ages.
Awareness saves lives. Education changes outcomes. We have to keep talking about the hard truths.

This is why raising awareness is so critical.

Happy Clinical Trials Day! 💜🧬 Behind every medical breakthrough is a clinical trial, and behind every single trial are b...
05/20/2026

Happy Clinical Trials Day! 💜🧬 Behind every medical breakthrough is a clinical trial, and behind every single trial are brave participants who are literally changing the future of healthcare.

For the lupus community, clinical trials aren’t just scientific research—they are our hope. Lupus is incredibly complex, unpredictable, and often misunderstood. That’s why we need inclusive, diverse, and patient-centered research. Every single trial brings us closer to safer treatments, better outcomes, and eventually, a cure! ✨

As someone who is deeply passionate about this fight and actively involved in the Lupus Foundation of America's initiatives, I want to share two incredible programs that I am a part of, where YOU can make a massive difference:

📊 RAY® (Research Accelerated by You): This is a powerful, online patient-powered research registry where lupus warriors and caregivers share their real, lived experiences. By answering questions about your symptoms, treatments, and daily life, you provide researchers with a crucial "snapshot" of the average lupus journey. Only 11% of warriors in the registry have participated in a clinical trial, but everyone can share their story to help accelerate new treatments!

📣 LRAN (Lupus Research Action Network): This is a nationwide peer-to-peer education and training program designed to empower people living with lupus to become advocates. LRAN equips us with the knowledge to discuss the benefits of clinical research right within our own communities, striving to increase diversity and enrollment in vital trials so that all voices are represented.

If you or a loved one is living with lupus, please consider learning more about how you can be a part of the movement. Your story could help rewrite the future of lupus care... because progress starts with participation! 💪💜

➡️ Join the fight: Become a part of the solution by checking out lupus.org/ray to sign up for the registry, or talk with your doctor about clinical trials in your area.

When "I" is replaced with "We", even "illness" becomes "wellness" -Malcolm XRemember. You are not alone💜
05/18/2026

When "I" is replaced with "We", even "illness" becomes "wellness" -Malcolm X

Remember. You are not alone💜

Another successful health fair in the books! 💜 We love getting out into the Pittsburgh community to spread awareness, sh...
05/17/2026

Another successful health fair in the books! 💜 We love getting out into the Pittsburgh community to spread awareness, share resources, and connect with all of you.
Know a local spot, business, or community event we should visit next? Drop a comment below or reach out to us at [email protected]! ✉️✨

Dr. Jaime Miller and I are so excited to have been invited back to the Mt Ararat Baptist Church Health Fair & Vaccine Cl...
05/17/2026

Dr. Jaime Miller and I are so excited to have been invited back to the Mt Ararat Baptist Church Health Fair & Vaccine Clinic!

Today, May 17, 2026
10:00 AM - 1:00 PM

Mt Ararat Baptist Church
Fellowship Hall
271 Paulson Ave
Pittsburgh, PA 15206

We will proudly be there
to raise awareness & answer any questions!

Know of a health fair we should attend? Email [email protected]

Can we talk about the post-vacation exhaustion? ✈️😴We all know the joke about needing a vacation from your vacation, but...
05/16/2026

Can we talk about the post-vacation exhaustion? ✈️😴

We all know the joke about needing a vacation from your vacation, but when you live with Lupus, it’s a completely different reality.

Explaining to people why I need days to rest and recover after traveling or vacationing can feel so exhausting in itself.😣

🚙To the outside world, travel looks like fun, relaxation, and beautiful photos. But behind the scenes, the reality of a trip includes:

The physical toll of changing routines, navigation, and packing.

The invisible stress of meticulously planning around flares, medications, and energy limits.

The sensory overload and unpredictable environments that put a chronic illness on high alert.

Travel is wonderful, but it takes a massive deposit out of my energy bank. I’m not just 'tired'—my body is literally working overtime to reset and heal from the extra physical and mental stress.😫

So if you don't hear from me for a few days after I get back, just know I'm resting, recharging, and letting my body catch up. Taking time to recover isn't a luxury; for me, it’s a requirement. 💜

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