Team Remyngtyn

18/07/2025

Today Remyngtyn received a very special gift from Bridge creek fryers, our dear friends - shirts just like theirs. We are working on setting up our Lemonade Stand over there. Dates will be announced soon. Bridge creek fryers

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16/07/2025

Remyngtyn would benefit greatly from any positive thoughts and well wishes. The infection he had in his foot has spread, causing staph infections on his face and in his eyes. We are beginning a new antibiotic treatment in an attempt to halt the spread. If this treatment fails, he will need to be hospitalized for IV antibiotics. Please send him your best regards and hope for a speedy recovery.

12/07/2025

We had a productive meeting at Shriners today, where it was determined that Remyngtyn's braces are performing their intended function, resulting in no further leg bending. This outcome is a substantial improvement, marked by increased ankle strength and flexibility. The recommended course of action is to maintain the current bracing regimen, with return visits to Shriners taking place on an as-needed basis. Additionally, our neuromuscular specialist, who is also a Shriner, will oversee testing at Children's, following which we will reassess our approach.

This saying was perfectly situated. Remy was sitting in the waiting room when I saw this. It's a small sign with a profound message

10/07/2025

Remyngtyn unfortunately brought part of the ocean back home with him, inside his foot. The doctors have successfully removed the foreign object, which resembled a small broken shell or a piece of glass. We now have a 10-day course of antibiotics, and tomorrow we have a follow-up appointment at Shriners for his braces.

09/07/2025

As previously mentioned, we have a major announcement to make. I will attach a video featuring Remyngtyn, who will share the news.

09/07/2025

We have finally returned home from our coast-to-coast trip. I don't think I've ever seen my kids as excited to be home. The last 72 hours have been nothing short of chaotic for us. First, our last night in North Carolina was marked by a tropical storm. When we left North Carolina, the skies were clear, but chaos ensued just three hours into our journey. We found ourselves driving 20 miles per hour on the highway, unable to see, and caught up in Tropical Depression Chantel. and, of course, the area we pulled into had two active tornado warnings. We had to make a risky decision about whether to take the kids out and hunker down or wait. Two of our three kids were sleeping. We decided to park close to the doors and wait to see if our area would be issued a tornado warning. Thankfully, it wasn't. We slowly made our way to Greensboro, N.C., and decided to let the storm pass through the area.

Day 2 was a success as we made a stop in Northern Kentucky. I took the kids on a tour of my childhood neighborhood and pointed out local attractions. We walked across the bridge and the kids were thrilled to be standing in two states simultaneously. Today, we embarked on the final leg of our journey home only to find ourselves caught in a tornado warning, forcing us to take shelter again, this time with a local farmer. The storm was intense, with branches flying through the air and multiple cars in ditches once we resumed driving. I've had enough of unpredictable weather. However, stay tuned for some exciting news soon 🙊🙊

07/07/2025

Thanks to Tropical Storm Chantel, we managed to arrive in Greensboro, NC before driving conditions became too hazardous. We spent 9 hours in the car to cover just 3 hours of our planned trip. Fortunately, we survived the tropical storm twice during our journey...

06/07/2025

As our vacation comes to a close, we reflect on the profound memories we've created. Unforgettable laughter. Unending smiles and unconditional love. It's been a true blessing to focus on the kids and spend meaningful time with each one. We've been fortunate to experience many firsts on this trip. Seeing dolphins, watching stingrays swim, fully embracing the ocean, having a sand crab as a pet for the day. Remyngtyn remarkably managed to catch a wave on his boogie board. We've officially witnessed sunsets and sunrises on the East and West Coast. We've had our toes in The Alantic and Pacific oceans in the span of 30 days. And as we spend our last night, we're waiting for Tropical Storm Chantel to pass over us, fingers crossed it passes before checkout tomorrow. Overall, we're excited for our next adventure and the kids are motivated to move closer to the beach. Lol

04/07/2025