Walk.With.Levi

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Walk.With.Levi God’s Perfect Creation! PCH Type 4 Fighter! Walking in His Purpose!

This is something that is not talked about enough!
08/04/2026

This is something that is not talked about enough!

Loving my child has never been the hard part.

The hard part is grieving the life I thought he would have, while he’s still right here in front of me.

No one prepares you for that kind of grief.
The complicated kind.
The kind that shows up in the middle of celebrations. in doctor’s offices, as you drive past schools seeing other kids hop off the school bus.

I grieve the “what ifs.”
The things I once took for granted.
The version of motherhood I thought I understood.

And then I feel guilty for it.

Because how can you love your child this deeply , and still feel this ache at the same time?

But both can exist.
The overwhelming love.
And the quiet grief.

If you’re a parent feeling this too, I need you to know,
you’re not broken for feeling it.

You’re human.

And you’re not alone.

We can’t go anywhere without getting lovins!! Levi is so loved by so many! We are so thankful for our village!! Also loo...
08/04/2026

We can’t go anywhere without getting lovins!! Levi is so loved by so many! We are so thankful for our village!! Also look at him being a big boy and sitting up in the booth!! 🥹🥰

“He is not here; He has risen.” – Luke 24:6 This Easter feels even more special! Levi didn’t smile much (maybe just a co...
03/04/2026

“He is not here; He has risen.” – Luke 24:6
This Easter feels even more special! Levi didn’t smile much (maybe just a couple times), but somehow his sweet personality still shines through every picture! I’m so thankful for these moments captured the quiet, the real, the little pieces of him I never want to forget! So grateful for this season, these memories, and the reminder of new life and hope! 🩵🤍

Wednesday was a long evening in the ER after Levi got sick, but thankfully everything checked out okay. Moments like thi...
27/03/2026

Wednesday was a long evening in the ER after Levi got sick, but thankfully everything checked out okay. Moments like this remind me how strong and happy he is no matter how he feels, he’s always smiling 💛

💜 February 28th, 2026 Rare Disease Day 💜Tomorrow we honor strength that doesn’t always make headlines. We honor resilien...
27/02/2026

💜 February 28th, 2026 Rare Disease Day 💜

Tomorrow we honor strength that doesn’t always make headlines. We honor resilience that shows up quietly, every single day. Tomorrow is for Levi.

Rare Disease Day isn’t just about statistics — it’s about real people, real families, and real courage. It’s about kids like Levi who face challenges most people will never fully see or understand… and still show up with bravery, determination, and heart.

Levi, your journey may be rare, but your impact is powerful.
You teach strength without even trying.
You show resilience in ways that inspire everyone around you.
You remind us that different doesn’t mean less… it means extraordinary!

Tomorrow we raise awareness.
Tomorrow we stand for inclusion.
Tomorrow we celebrate YOU.

You are seen.
You are supported.
You are stronger than you know.

💜

A year ago today, we traveled to Birmingham for a major step in Levi’s journey the day his NG tube was removed and his G...
05/11/2025

A year ago today, we traveled to Birmingham for a major step in Levi’s journey the day his NG tube was removed and his G-tube was placed. That same day, he also had an MRI that helped guide us toward the answers we had been praying for. Looking back now, we can see God’s hand in every moment. Levi has come so far and continues to grow stronger each day. He is living proof of God’s grace, healing, and faithfulness. All glory to our mighty and loving God for the miracles He continues to work in Levi’s life!
❤️❤️

Wiggle Fun at therapy!!! We are so blessed with the best therapist!! 💜
31/10/2025

Wiggle Fun at therapy!!! We are so blessed with the best therapist!! 💜

RSV tried to slow us down, but it can’t stop us! We keep fighting, smiling, and showing up with love and strength.❤️    ...
12/10/2025

RSV tried to slow us down, but it can’t stop us! We keep fighting, smiling, and showing up with love and strength.❤️

I’ve been diving into Raising Special Stars by Mattie Book, and it has already been such a blessing. This devotional is ...
23/07/2025

I’ve been diving into Raising Special Stars by Mattie Book, and it has already been such a blessing. This devotional is written specifically for moms raising children with special needs, just like me! 💛

I’ve just started Week 2 alongside a beautiful group of local special needs mamas, and I can already see God moving through our stories, our prayers, and our support for one another.

If you’re a parent navigating a similar journey, this page is for you. You are not alone, and your story matters deeply. 💫

It’s been a big and beautiful week for Levi! We soaked up some sunshine at the beach , got our new braces to support tho...
19/07/2025

It’s been a big and beautiful week for Levi! We soaked up some sunshine at the beach , got our new braces to support those strong little legs , and had our lip & tongue tie released another step forward in our journey!

Grateful for every moment, every milestone, and all the love and prayers along the way.

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15110 Highway 43

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