04/16/2026
Update on Melody: Her recovery from surgery continues to improve, and her mobility is coming back steadily. She has also started her cancer treatment, and we are hopeful for a strong response without side effects.
This journey has opened our eyes to something many families face—stress doesn’t just come from the diagnosis, but from the cost of care. Cancer patients need peace and focus to heal, yet many are burdened by financial uncertainty.
Melody is currently part of a clinical trial, which allows her to receive treatment at no cost. Outside of that, the FDA-approved medications for her rare cancer can exceed $20,000 per month. These are not cures, but they are essential in slowing the disease.
Even more difficult to understand is that insurance may still deny coverage for these treatments, despite their approval and necessity.
We are grateful for where we are today and hopeful for continued progress.