Witching Hour Spellcast

27/11/2024

WHO’S INTERESTED IN RESURRECTING INCANTATION NATION PODCAST?

25/10/2024

This is what a witch looks like!
Not sure if you can see my purple zoom zoom (power wheelchair)
♿️ Witch 🧙
🇺🇸🫏Democratic Witch
🪷🎧Phone and Text Banker Witch
👩‍🦽‍➡️🗳️ Activist and Organizer
👩🏻‍💻🌊 Bringing the Blue Wave from the comfort of my own home
Thank you, Byron for starting this trend

04/07/2024

There is social media
There is main stream media
What happened to just speaking with each other? Having conversations? Listening?
I can tell you that it is happening now and it’s our chance to make a difference.
Quit doom scrolling and get involved.
It’s up to us to fix this mess.
We hold the power or they would not be trying to take it from us
It’s easier than ever to get involved. You choose the amount of time to spend.
I am dropping a link for Grassroots Democrats HQ. This is the organization I work with. We have in person events in California but so many opportunities to volunteer virtually from your living room.
I will be leading phone banks on Saturday for the Biden Harris Campaign and for Sen Jon Tester of Montana.
I would be happy to help anyone who wants to get involved.
Thank you for what you do, Byron Ballard

Working to ! 🌊

20/06/2024

Nightfall tonight at Stonehenge

06/05/2024

I spent my whole life struggling. My father and stepmother thought I was a melodramatic hypochondriac. Doctors would seem concerned and run tests. When the tests came back not giving them anything conclusive they would stop trying to find out what was going on with me.
I have memories that I understand now of doctors having me do the hypermobile “party tricks,” then they would try to stretch my skin. They really expected my skin to be stretchy. I had no clue what they were looking for. Now I do.

In the past EDS was seen as a hypermobility thing. There was “benign joint hypermobility,” then there was the “rarer,” form Ehlers Danlos Syndrome. I think the focus at the time was hypermobility and fragile skin.

Around 2010 Dr Alan Pocinki wrote a long letter about things he saw in patients with hypermobile joints. Some feel this was the start of connecting the systemic issues of EDS. If you can’t connect the issues, think connective tissues.

In 2017 the diagnostic criteria for hEDS was updated. The stretchy skin was removed as mandatory for an EDS diagnosis. We are at the beginning stages of understanding EDS. Knowing that it’s not at all rare. Medicine might be ten to fifteen years away from doctors actually accepting and treating EDS. I fully believe had my skin been stretchy I would have been diagnosed in my teens.

I really don’t hold how long it took to get a diagnosis in a negative light, but since we know about it and I fit the criteria, I am beyond angry that I must fight with nearly every single provider to get treatment. I have fought hard and have educated myself, but I can’t practice medicine. I am building a team of providers who know EDS or are willing to learn about it.

The Ehlers Danlos Society offers training through their ECHO program. I am grateful for May being EDS awareness month so we can spread awareness of our disorder.

Here is the letter Dr Pocinki wrote in 2010. It’s interesting to see where we are now

02/05/2024

Day 2 of EDS Awareness Month
If you speak to most medical professionals they tend to focus on hypermobile joints. What they are finally figuring out is how one’s entire body is impacted. Dr Eli Penn has some great insights on a much overlooked issue in EDS. GI issues are quite common and often extremely difficult to diagnose

https://youtu.be/wB06-NjRlEI

Dr. Eli Penn is an Interventional gastroenterologist at Atrium-Navicent Health System in Macon Georgia and an Associate Professor of Medicine at Mercer Unive...