05/25/2025
This is a story that we donāt discuss out in open and kept there for years until now. I realized I need to share this for awareness and inspire others and end stigma against epilepsy. Next month is Purple Walk and I hope this post would make a difference
Long post aheadā¦
My son call his story Racing with Epilepsy
When people meet my son for the first time, they see a strong, determined young man who races with passion and grit. What they donāt see is the journey behind the scenesāthe daily challenges, the hospital visits, the seizures, and the quiet courage it takes just to keep going. My son lives with epilepsy and a brain cyst, but those conditions donāt define him. His strength does.
We discovered the brain cyst and epilepsy after a series of scary seizures that turned our world upside down. Overnight, life became a whirlwind of MRIs, neurologists, neurosurgeon, medications, and questions we never thought weād have to ask. The word āuncertaintyā became part of our daily vocabulary. But amid the chaos, one thing remained constant: my sonās love for racing.
Racing is where he feels free. The moment he puts on his helmet, heās in his element. People often ask us, āArenāt you scared letting him race?ā The answer is yesāwe are. But weāre more afraid of taking away his dreams, of letting fear dictate his life. Racing isnāt just a sport to him. Itās a statement: I may have epilepsy, but I will not be stopped.
There have been setbacks. There have been days where seizures left him exhausted, the effects of his medications-But he never lets those days keep him down. And through every step, we held tight to our faith of the Almighty.
There were nights I cried alone. But there were also moments of graceāsmall wins, kind doctors, a smile from Zach even when things felt dark.
To other parents going through something similarāwatching your child fight a silent battleāyou are not alone. And to those kids out there with a diagnosis trying to chase a dream: donāt stop. You may have something extra to carry, but you also have something extra to give.
My son is more than his diagnosis. He is a fighter, a racer, and my hero.