Reece

05/02/2025

05/01/2025

My newest specialist appointment is today. Seeing my cardiologist. Cross your fingers, send positive vibes. Hoping nothing comes of this visit. Hopefully the SupraVentricular Tachcardia is gone and the premature atrial ectopic are gone and no more meds!!

04/22/2025

So my latest update.
I will be returning to get a second MRI with contrast asap. I am having too many neurological symptoms.They are trying to figure out what 5mm thing is, there are so many possibilities. I will be seeing opthalmology to check for papilledema. Which could be from pressure in my brain, could be from my autoimmune meds. I am gonna talk to my primary about my birth with my youngest son. After breaking my water, my birth went fast. They were trying to do an epidural when I screamed at them he was coming. They only had time to lay me down before he came. I had a headache for 3 months after having him. Possibility for the lower cerebeller tonsils, the partially empty sella? I don't know if it's possible. I am in an area of unknown.
Now my shoulder I will be seeing a pt specialist for just my shoulder. I refuse to have surgery again. My previous surgery is what messed up my head I swear. It was pure h3ll. The pain, the slow healing, the complications. I will not get a surgery unless it is life saving and absolutely nessessary.
Cardiologist appointment made. I just can't take the beta blockers. If I'm not having a racing heart (that comes and goes) then I feel like I am gonna faint. I am so weak taking it.
My first aquatic therapy session was amazing. It was so much easier exercising that way. I refuse to stop exercising. I need it to control my fibro and lose the steriod weight. I gained 19 pounds. Gonna hit my goal this year sometime. I am determined.
I just want my previous normal back. I should of listened when I was first diagnosed with all of these illnesses that it gets so much worse, but at the time I felt so bad that I couldn't imagine it. I hope this year to see my family out of state. I need to get better and save to see my family. I think it will help.
Everyone have a goodnight! Off to bed, have aquatic therapy tomorrow. Excited to see what we do ❤️

04/12/2025

RIGHT SHOULDER MRI RESULTS
1. Moderate supraspinatus tendinosis with high-grade partial-thickness bursal surface tearing posteriorly at and just medial to the footplate. This likely represents the sequela of previous calcific
tendinosis with resorption and decompression of the calcifications in the subacromial subdeltoid bursa. Mild subacromial subdeltoid bursitis.
2. Mild to moderate infraspinatus tendinosis.
3. Mild to moderate subscapularis tendinosis with a low-grade partial-thickness partial width articular surface tear at the footplate.
4. Mild intra-articular biceps tendinosis.
5. Mild acromioclavicular joint osteoarthritis. Mild acromial enthesopathy

04/12/2025

MRI BRAIN RESULTS:
5 mm FLAIR hyperintensity in the anterior left temporal lobe white matter without mass effect or restricted diffusion. This finding is nonspecific and could be seen in the setting of a low-grade process such as encephalomalacia or an artifact. A low-grade glioma is unlikely but cannot be entirely excluded. Recommend follow-up contrast-enhanced MRI of the brain in 3-6 months to assess for stability.
2. Partially empty sella and trace flattening of the optic discs. These findings can be seen in the setting of idiopathic intracranial hypertension (pseudotumor cerebri). Please check for papilledema.
3. Slightly low-lying cerebellar tonsils without evidence of a Chiari I malformation 3mm before C1

04/12/2025

MRI of my brain and shoulder today. Not too happy with results only cause I was hoping to have no findings. I will post them shortly.

04/01/2025

The aftermath of the fire that happened in our home. It was my fault. I was cooking, exhausted and in pain. I had over done it. I wasn't paying attention just trying to rush to get dinner done. Grease ended up leaking from the pan into the bottom and it started the stove on fire. I usually check everything constantly to make sure things are ok. Not this time and then the fire happened. The stove ended up having to be removed and scrapped due to component damage. So we had no stove.

04/01/2025

So update!! Yesterday was a good day! I went in to meet my physical therapist team. Starting aquatic therapy next week but the good part, the lady noticed something about the way I stood. She had me do all the movements to rate my muscles and asked if I have ever been tested for a hypermobility illness. Could I finally have an answer to what is going on? Could I finally get things under control? The feeling of not knowing is absolutely the worst. You feel out of control, lonely, not heard and feel like all your hope is gone. She also mentioned POTS from my traumatic surgery. All I told her was my symptoms. She actually listened. It made me feel so much better mentally. She also mentioned if my rheumatologist doesn't listen to find a new one. It's important to get testing for these. It was an awesome to be heard.

03/28/2025

This was January 4, 2025