CareFully

CareFully News for people living with or caregiving for others with chronic illness, disability, and aging.

23/09/2025

The data is clear: family caregivers are the essential, yet unsupported, backbone of our healthcare system.

Forbes shines a vital spotlight on the new report from the National Alliance for Caregiving and the Coalition to Transform Advanced Care, "Not Just Visitors: Integrating Family Caregivers in Care Delivery and Design," which reveals the critical gap between the immense value family caregivers provide and the limited support they receive.

The article highlights key recommendations from the report that the Centers for Medicare & Medicaid Services (CMS) can implement now:

➡️ Creating billing codes for caregiver training
➡️ Integrating caregiver needs into care coordination
➡️ Expanding Medicare Advantage benefits to include respite care
➡️ Using ACO global budgets for caregiver support services

Our Caregiving in the US 2025 report reveals what many families already know too well: 40% of family caregivers report high emotional stress while providing $600 billion in annual unpaid care, with nearly 1 in 4 describing their own health as fair or poor.

Thank you, Forbes, for highlighting the need for concrete action to support our nation’s family caregivers. This isn't just policy work—it's about validating the 63 million family caregivers who provide care with "much love but little skill." By implementing these recommendations, we can finally recognize family caregivers as essential partners rather than visitors in our healthcare system.

Read more from Forbes: 🔗 https://bit.ly/3ImbOMl

Read the National Alliance for Caregiving's and Coalition to Transform Advanced Care’s "Not Just Visitors: Integrating Family Caregivers in Care Delivery and Design" and discover solutions to better support our family caregivers: 🔗 https://bit.ly/3VghRF7

17/09/2025

Family caregivers are described as "visitors" in care settings, but their role is essential to patient survival and well-being. With 1 in 4 Americans being family caregivers, they provide an estimated $600 billion in unpaid care annually, yet they do so without formal training, support, or recognition.

The National Alliance for Caregiving and the Coalition to Transform Advanced Care have released "Not Just Visitors: Integrating Family Caregivers in Care Delivery and Design," revealing the critical gap between the immense value family caregivers provide and the limited support they receive.

Integrating caregiver support is not optional. It is essential for a sustainable, equitable, and high-quality healthcare system.

It’s time to stop treating family caregivers as visitors and start seeing them as vital members of the care team.

Read the paper and explore the solutions: https://bit.ly/3VghRF7

05/08/2025
25/07/2025

What unhoused people with disabilities need is not more policing or confinement, but permanent affordable housing, access to mental health services, and the support to live with dignity in their communities.

01/07/2025

KFF is tracking the Medicaid provisions in the 2025 federal budget bill, including new Medicaid work and verification requirements and a reduction in the expansion match rate for states that use their own funds to cover undocumented immigrants.

14/06/2025

A recent CBS News article reveals a growing and urgent issue: millions of children and young people in the U.S. are stepping into unpaid caregiving roles often without recognition or support.

Thank you to CBS for leveraging data from Caregiving in the U.S. 2020 by the National Alliance for Caregiving and AARP to shine a light on this critical reality.

Students like Joshua Yang are not just studying for finals, they’re managing medications, appointments, and insurance for loved ones. Without adequate policy protections and resources, more youth will be forced to shoulder these responsibilities alone.

Let’s act. We must protect Medicaid, identify and support young caregivers early, and ensure culturally relevant outreach and care.

Read the article: https://www.cbsnews.com/news/medicaid-cuts-children-unpaid-family-caregiving/

27/05/2025

Our CEO, Jason Resendez, joined PBS NewsHour to break down how the House-passed budget package would make caregiving harder for families across the country. From burdensome work requirements to severe cuts to home- and community-based services, this bill threatens the critical supports that help caregivers care for older adults, people with disabilities, and loved ones with serious illnesses.

Thank you, PBS News, for continuing to spotlight caregiving in this national conversation.

📺 Watch the interview: https://www.pbs.org/newshour/show/how-the-gops-proposed-medicaid-cuts-could-affect-millions-of-family-caregivers
✊ Take action to protect Medicaid: https://caregiving.quorum.us/campaign/SaveMedicaidNow/

16/04/2025

The film, which is set to air in spring 2025, is the latest in a new cinematic canon centering caregivers.

11/04/2025

The popular public health care program for low-income Americans covers nearly half of all births in America. Almost half of the nation’s children are also enrolled in the program.

10/04/2025

Today, the U.S. House of Representatives passed a budget resolution that kicks off consideration of a proposal to deeply cut Medicaid and the Supplemental Nutrition Assistance Program (SNAP) — critical programs that family caregivers across America depend on to support their loved ones. These cuts would harm countless families who rely on Medicaid for essential healthcare services and SNAP benefits to ensure proper nutrition for those in their care. Deep cuts to Medicaid and SNAP would devastate the families who rely on them. Family caregivers already do so much with so little — we must protect the programs that make caregiving possible.

19/03/2025

Millennials are stepping into caregiving roles like never before; balancing work, family, and financial strain while providing unpaid care to loved ones. A recent piece in The Guardian highlights the growing challenges faced by millennial caregivers, citing data from NAC and AARP’s Caregiving in the U.S. report.

Read more about their experiences and the need for better support: https://www.theguardian.com/society/ng-interactive/2025/jan/28/millennial-caregiving

20/02/2025

INSIDE: Caregiving, the first production to be funded through WOSU's new endowment, aims to help audiences understand and prepare for the challenges of elder care.

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