Alopecia Connection

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Alopecia Connection An interview-based podcast, highlighting inspirational people with alopecia and their stories.

05/08/2025

ALOPECIA CONNECTION- EPISODE 46

It’s been a minute… but we’re back and coming in strong through NAAF!

This week, we’re sharing a powerful panel from the 40th annual NAAF Conference in Chicago back in June. While we connected remotely, Jessa Ponce, Kim Roxie, and Sam Guenzburger joined live, moderated by the brilliant Simon Rubenstein (huge thanks, Simon for welcoming us and setting it all up!)

From Jessa’s truth about “finding security through her insecurities” to bold stories about living with alopecia, this one is packed with purpose, honesty, and connection.

Listen now wherever you get your podcasts.

Links in comments!



17/01/2025

ALOPECIA CONNECTION - EPISODE 43!

On our new episode, Tommy and Frank welcome Jennifer Gadosky, host of !

To say this episode is a little different… is an understatement. The three of us sat down to chat through our experiences with alopecia, societal pressure, and the journey to self love and care… and we touched on dating…

The best part? We have two versions! So head over to listen to as well! And let’s celebrate our community!

Links below!




18/09/2024

ALOPECIA AWARENESS MONTH 2024 - EPISODE 42!

On this special episode for Alopecia Awareness Month, Tommy and Frank welcome Reuben Lane, goalkeeper for Norwich United FC! ⚽🎉

Alopecia Connection is proud to announce that we’re sponsoring Reuben for the 24’-25’ season at Norwich United FC! 🙌💙

Listen in as Reuben shares his journey with alopecia, which began at 15.

Now 22, he talks about embracing alopecia through charity runs and sports, staying confident while raising awareness every step of the way! 🏃‍♂️⚡

Here’s to a fantastic season for Reuben and Norwich United FC! 🔥👏

Podcast links in the comments below!


Excited to announce that this season Alopecia Connection is sponsoring goalkeeper Reuben Lane of the Norwich United FC!S...
11/08/2024

Excited to announce that this season Alopecia Connection is sponsoring goalkeeper Reuben Lane of the Norwich United FC!

Stay tuned for exciting updates on Reuben, his team, as well as an interview on the podcast!

03/08/2024

HAPPY INTERNATIONAL ALOPECIA DAY!! What a year it’s been for us, our community, and for You! A lot of positive change has come from the FDA and NICE organisations for JAK Inhibitor approvals… but further more, there has been so many inspiring stories from all ages on Alopecia Connection! We will continue to raise awareness, encourage people to share their stories, and connect our community. Enjoy the day everyone!

18/07/2024

EPISODE 40 OF ALOPECIA CONNECTION IS NOW LIVE!!!

On this episode of Alopecia Connection, we sit down with Sue Schilling, the incredible CEO of Alopecia UK. Sue shares her powerful and emotional journey of living with alopecia since childhood and how this visible difference has shaped her into a passionate advocate and leader for the community and this impactful charity.

Her dedication to leading a team of devoted staff and volunteers has created a supportive network that transforms lives every day and truly doesn’t stop. This heartfelt conversation highlights the incredible impact of community on both Sue’s life and the lives of those affected by alopecia.

This episode was particularly challenging to edit because the conversation was so enriching and insightful!

Episode links in comments or wherever you find your favorite podcasts!



06/06/2024

EPISODE 37 OF ALOPECIA CONNECTION IS NOW LIVE!!

On this episode of Alopecia Connection, Frank & Tommy welcome Dan Newman! Dan is helping others heal by using his pain as his purpose.

BALDILOCKS is a movement where people suffering from hair loss can feel like they belong in the spaces they used to enjoy, such as barbers, spas and salons. Dan wants to keep shiny people happy in his BALDIVERSE where he humorously and compassionately gets people to a place of self-acceptance and inclusivity.

BALDILOCKS is a symbol of how we can all find our glow again.

Listen now for the full story. Remember… connection is everything!


15/05/2024

EPISODE 36 OF ALOPECIA CONNECTION IS NOW LIVE!!!

On this episode we reconnect with volleyball coach Nick, (IG: ), who two years ago tomorrow, was our very first contributor!!

Two years after he appeared on the premier episode of Alopecia Connection, Nick returns to give us an update on what he's been up to, and how his alopecia journey has progressed.

Now coaching volleyball in both New Jersey and Florida, Nick chats about his passion for the sport and developing players. Nick also talks about seeing fellow alopecian Alison Mann, IG: (Alopecia Connection Ep. 22), around campus while they attended the same college, and the impact that had on his outlook!

Subscribe, download and listen to Nick’s story now!

01/05/2024

EPISODE 35 OF ALOPECIA CONNECTION IS NOW LIVE!!

On this episode of Alopecia Connection, Frank and Tommy are pleased to welcome Gary Sherwood, Communication Director of the National Alopecia Areata Foundation (NAAF)! Gary shares the history of NAAF, the organization’s legislative advocacy, and answers questions on the upcoming 39th annual NAAF Conference, which will be held in Washington DC, June 27-30th! Between this meeting, informational webinars, local support groups, and fundraising walks, there’s so many different ways YOU can get involved with NAAF!

Listen now!

15/04/2024

EPISODE 34 OF ALOPECIA CONNECTION IS NOW LIVE!!

On this episode of Alopecia Connection, Frank and Tommy welcome 15 year old Mackenzie and her mother Lisa. As you’ll hear, Mackenzie is one of the most inspirational young people in the alopecia community. Right from the beginning of her journey, Mackenzie and Lisa have promoted positivity and awareness of this condition by making and distributing over 3,000 silicone “Mackenzie Strong” alopecia awareness bracelets. Despite having alopecia for a relatively short time, Mackenzie has already become an active role model for younger people with alopecia in her area.

FUN FACT: Mackenzie is great friends with Austin, who appeared on Alopecia Connection Episode 26.

During this interview, Lisa discusses several organizations and groups that helped her as a parent of a child with alopecia, and what it means to have such an incredibly fearless daughter.

Thank you for joining us Mackenzie and Lisa

Listen now!

01/04/2024

EPISODE 33 OF ALOPECIA CONNECTION IS NOW LIVE!!

CHILDREN’S ALOPECIA PROJECT - JEFF WOYTOVICH

On this episode of Alopecia Connection, Frank & Tommy are honored to have the founder of the (CAP), Jeff Woytovich, on to discuss all things CAP! From the non-profit organization's beginnings, to the nationwide CAP Kid camps, ALOPECIAPALOOZA, school speaking tours, and a recent foray into podcasting, CAP's significant impact on the alopecia community is highlighted.

Enjoy our chat with Jeff!



23/03/2024

EPISODE 32 OF ALOPECIA CONNECTION IS NOW LIVE!!

CAROLINE WARD - PART II

On this episode of Alopecia Connection, Frank and Tommy continue our discussion with “Whatever Trevor” children’s author, .

In the second part, we hear more about the book, but we dive deeper into the emotional toll alopecia can bring and the crucial element of talking about your feelings with friends, family… even seeking support where need be such as or even therapy.

We all have a voice that deserve to be heard!

Enjoy our Part II with Caroline and OH! Whilst we’re here… WE HAVE A GIVEAWAY!

Alopecia Connection has purchased several copies of “Whatever Trevor” and would love to send them to our listeners! Simply message the show and we’ll send you a copy today (while supplies last)!


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