Baby Haven Greyson's Angels

09/18/2025

Haven is home safe tucked in bed. I often wonder what makes a human being resilient. I mean I have met some real life hero’s in my life in the Army overseas. Soldiers risking life and limb for our freedoms.

However, when I look at my son and other complex medical children like him, I can’t help but think about how they do it. How do they endure procedures after procedures, diagnosis after diagnosis, therapy after therapy and pokes after pokes - yet somehow still they find the gift of life so amazing. Often you see my son smiling despite having just screamed and crying out in pain minutes before. It’s his special gift, I think. To not hold on to the pain; rather to choose joy no matter the circumstances.

He takes whatever life throws at him and miracle after miracle he proves life is worth fighting for. It such a privilege to watch his process of absorbing life and seeing his progress as he grows. It’s hard to fathom so many thought he wouldn’t be here. That odds were against him. Yet despite the tolls he has had to pay to have this life, I think he tells us everyday pain only tells us that we are alive. That every day is opportunity to experience love and life and new things in different perspectives.

It’s what unites us all in the hardest and most devided of times. Haven teaches us if a baby to six year old can survive and thrive against the odds - so can we all. Just believe. Wake up everyday like it’s that new baby day we won’t always have. Take a moment to say good morning to the trees and good night to the moon. Watch bees as they go from flower to flower - just don’t touch them. After all as Haven says, “Bees are our friends.” And if you feel pain don’t be afraid to cry and to shout and to verbalize the moment, to let it all out so the next breath can be a new moment of endless possibilities just waiting for you to embrace them. And finally remember to rest and reset so you can have the energy to do it all over again tomorrow.

What makes my son Haven so resilient? I truely believe his life is a testimony. A testimony of humanity in its most vulnerable moments to its most precious minutes. A story no matter your age we can all relate to and hopefully see that same strength is within us all. That faith is what we have in those moments where we can’t see it the most. And hope for us all still exists - we just have to believe…

09/17/2025

Update on Haven 🙏

Haven’s surgery went well today. 💙 The team successfully replaced his Broviac line into his heart. The line did stick a little around where his blood clot was, and they did notice some narrowing, but overall things went smoothly.

Right now, he is still sleepy but rousable. If all continues to go well; since the line wasn’t exposed and there are no signs of fever or infection, we might get to go home tonight! 🏡✨

Thank you Angels 👼 for the continud love, prayers, and support. Our brave little warrior keeps showing us his strength and that faith can overcome more than we know. 💪💙

09/17/2025

Haven goes under surgery at 11 this morning to have a new Broviac line placed in his heart. Please send prayers up that everything goes smoothly and we will have only 24 hour waiting. Just to make sure no infections occur. 🙏🏻

09/17/2025

Prayers up please Angels 👼 We are back in the ER. This time we’re going to be admitted to the hospital. Haven’s gonna need a new Broviac line put in that’s the line that goes to his heart, because it has broken too close to the entry to be repaired. More than likely will be here for 48 hours after he comes out of anesthesia just to make sure he responds OK with new line. 🙌🏻😓

09/04/2025

My surgery went well 🙏🏻. I’m definitely in a bit of pain today, but I have faith that the results will come back benign. We won’t know for about 1½–2 weeks, so we’re holding onto hope and prayers until then.

In the middle of all this, we’re going through a lot of transitions. Haven is coping in his own way; he’s been showing some new self-harming behavior (SIB), like punching his lower face over and over. We believe it’s more of a sensory stim, and we’re working really hard to gently replace it with something safer for him. Whether it’s waking up, celebrating a win, or just seeing something exciting on his iPad, this new stim has been showing up everywhere. It’s hard, but we are learning and growing together. 💙

The biggest transition of all is coming in just a few weeks… and we can’t wait to share our uplifting news with you then. ✨

Thank you all for your prayers, love, and support; it truly carries us through.

(Pictured is Haven’s chin bruised from continuing to hit himslf 😢)

09/03/2025

Made it out of surgery thank you Angels for all your prayers. We should know in a week and a half or so if everything is all clear. 🙏🏻🙌🏻💜

09/03/2025

Prayers please, sweet Angels 👼

This morning I’m heading into surgery to have my breast tumor removed. Haven doesn’t fully understand why Mamma won’t be able to do our precious “mamma bed cuddles” for a little while, or why I won’t be able to lift him but he knows love surrounds us. 💙

We’ll get the results in two weeks, and until then we are choosing faith over fear. Haven and I have walked through so many storms together, and every time we’ve come out stronger. 🌈

Please keep us in your prayers for comfort, healing, and brighter days ahead. Thank you for lifting us up with your love and light as always.💖

08/29/2025

Six years ago, I was told my son had less than a 10% chance of life. Six years ago, I was living at the Ronald McDonald House, having left my job to sit beside him in the NICU. Six years ago, I had no idea how we would make it; only that I had to keep holding on to hope…

And now, that hope has carried us to a place I never dared dream we’d stand.

They say miracles aren’t destined to happen… but maybe, just maybe, they are. Haven is proof of this time and time again.

Stay close. The next chapter is about to unfold. ❤️

08/29/2025

08/25/2025

Today in OT, Haven had a big adventure! ✨

He dressed up as Bumblebee (one of his favorites!) working to do it all by himself (still needs support) and then practiced taking the costume off; working hard on his fine motor and dressing skills. 💪🐝

After that, he checked out a fun new Baby Shark fishing game 🎣🦈 to practice hand-eye coordination and focus. He was so curious, studying the box before diving in!

Next up… physical therapy to keep building his strength and balance. This boy is nonstop determination and heart. 💛

We are so proud of you, Haven!

08/22/2025

We are all done and heading home thank you all for your prayers and always being here for us! 💗🌹