DamnedLioness

12/04/2023

It's been a min since my last post but to be honest not a whole lot has changed with me anyway. I'm struggling to stay positive, but choose to focus on the positive regardless. Acupuncture, physical therapy, and the chiropractor are working the best for me so far. I keep having allergic reactions to medications, almost every birth control I try I get blisters on my body that swell and hurt. My goal is to stop my period to manage some of my endo symptoms. But we've been unsuccessful in finding something my body agrees with. Mixing spondylolisthesis and endometriosis def makes for painful periods.

31/03/2023

Small things that are big things

25/03/2023

TW: Medical Trauma
Didn’t know how else to express it, so I drew it.
“You just need more exercise”
“It’s probably just stress”
“Your tests are all normal, I don’t know what to tell you”
“Have you seen a rheumatologist?”
“I can only help you if it gets worse”
“Come back in a year, maybe something will change”
“It doesn’t present like that”
“You can’t be feeling that”
“You’re not sick enough for that”
“You look great”
These are only some of the many phrases doctors have suggested to me. 3 years of “its all in your head”. Now that I finally have confirmation of what the hell is going on in my body, I find myself doubting it every day because of the medical trauma and all of the false narratives engraved into my mind.
You’re not alone, it’s not all in your head, what your feeling is valid and real. ❤️ author Haley Lou Duff

05/02/2023

I'm finally feeling like myself again. With any chronic illness the pain can get unbearable, and sometimes it just doesn't get better, for days, sometimes weeks. It can really take a toll on our mental health. So it's important to remember we HAVE to put ourselves first. I know, I know. It sounds so selfish. But if we don't take care our mental and physical well being before anything else, it's only a matter of time before we have a breakdown that could send us spiraling. You can't pour from an empty pot!

05/02/2023

Literally

Can I get an amen

05/02/2023

Endo PSA of the day!

Did you know that adenomyosis was once called ‘endometriosis interna’ until the two were discovered to be pathologically and clinically different?

Learn more about the key differences between adenomyosis and endometriosis: https://endometriosisnetwork.com/blog/april-is-adenomyosis-awareness-month

Source link (contains gendered language): https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6419978/

03/02/2023

Always felt a special connection to the color yellow, now I know why! Keep on fighting endo warriors! 💛💛💛

02/02/2023

I've been a little MIA. I would apologize but I promised myself I'd stop apologizing for things out of my control. Which includes a long ass "endo" flair. I've been depressed, anxious, hopeless and just mentally drained for a while now. I couldn't get out of bed, my spine being the usual culprit. BUT I do have some news to share shortly that has definitely given me some of my hope back. In the meantime here's the first time I genuinely smiled in I don't even know how long. And it felt great!

19/01/2023

At the Doctors

04/01/2023

I was diagnosed with endometriosis in June of 2022. I went in for a laparoscopy to diagnose and remove through ablation.. my 1st Dr didn't warn me of any of the risk involving ablation or what it could do to me. I remember being handed the release waver that day and thinking to myself, we haven't discussed any of this. But things felt rushed and I was meek and mild, I didn't want to interrupt anyone else's surgery bc I wasn't informed on mine.
That was the last day I let myself be meek and mild, especially when it comes to my health. He found endometriosis, labeled me as stage one and I left the hospital that day in less pain then when I arrived. 2 weeks later, after having my first period after surgery all my pain came back plus more! I was rushed to the ER, only to leave traumatized... I decided to continue to pursue endometriosis despite my 1st surgeon telling me it's impossible. Ablation is the technique of burning off the implant. Think of it like slash and burn. You got everything on the surface, but did you get the roots? Because if there's any trace of endo left in the body, that action of burning is going to raise hell ! I learned this the hard way. Please don't be a me.
💛💛💛💛💛
&mild

04/01/2023

My treatment only started once I actually started self educating myself and telling Dr's what I needed. I'm done waiting around in pain.

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