04/02/2025
Every day that my son stays alive, he doesn’t die. Here’s what I mean: he fights to live every day. Every day is a test and if he passes, he gets to keep on living. Don’t we all? Yes of course in some way, we all could not wake up tomorrow. We could get into a car accident or medical emergency and that would be that, the end.
But my son fights a battle every single day and there is never a day off for him. He is a type 1 diabetic. Every day he makes choices according to his best ability and training, surrounding his current status of blood glucose levels and intake of carbs for every meal he ingests, and calculates how much to inject into his body of a substance that can kill him within the hour if he’s off or wrong. No medical doctor following him around. I’m not there every second to double check (not that I am any more qualified). He is 16. He’s been at this now for 3 years.
Our son played baseball. He was (still is!) good. He pitched, play shortstop and 3rd. He was approached for travel teams, recruited for his ability and this specific summer his team had just won the championship! So, they moved on to States, which was very exciting. I had just finished cancer treatment a year earlier, my hair was still short and I felt like this was the first summer our family could get somewhere near “back on track.” Elija was playing games and practicing constantly. He was drinking insane amounts of water and Gatorade, and who could blame him? He needed to hydrate. He began loosing weight and was tired a lot. My mom sense felt like something was off and I kept asking him how he was feeling. He would assure me he felt fine. And I wasn’t certain about my intuitions because of all the medical things we had already gone through, so I felt like maybe I was just being paranoid and tried not to over think this. I chalked his weight loss up to him growing, practicing constantly and the hot summer. Same story with the tons of thirst. I had this nagging feeling something wasn’t right- but I struggle with anxiety and convinced myself my receptors were off because of all the trauma we just went through over the last few years.
It was mid August and like I mentioned this summer had been a hot one. So, this one blistering Saturday was no exception and we were all sweating as we were out by Port Huron watching one of his tournaments. He usually was quick to the ball, fast as lighting, we actually would joke and call him “The Flash”. But at this important game, something seemed off. He moved like he was running through sand with heavy feet. The other teams batter hit the ball, it was a grounder and as it rushed towards where Elija would normally have easily gotten to it and scooped it up, he sluggishly scuffled over to it and as he bent to lower his glove, it had already whizzed past him. Both his dad and I were shocked and I got up and yelled: “what’s going on out there!?! You shoulda had that!!!” like only the best most wonderful supportive mom would….to this day I feel absolutely horrible about that moment, by the way. Not my finest by far. Anyway, he didn’t even really realize he had missed the ball and when I walked over to the fence and he came up to me, he said, “I don’t know what happened. I put my glove down. It was like I just couldn’t get there fast enough.” And then I knew something wasn’t right for real. We left the game that day and he wasn’t feeling good. To be honest I still don’t remember if they won or lost, or anything else about the rest of that game- but they must have still won because I know his team went on to win either States or another championship or something without him because after he came home from the hospital, his coach came by with a trophy and stuff from his teammates for him.
The next few days were a blur and yet also I remember every detail….which I won’t share now. But the gist is that our son was admitted to the pediatric ICU and was hospitalized for 4 days. He was in DKA with dangerously high blood sugar levels and we could have lost him had we waited. At the hospital I immediately put all else in my mind aside and learned everything that I could possibly retain about what his care would require, so I could try to set him up for success once we returned home. I would have traded places with him in an instant if it were possible…I still would. It felt surreal, unbelievable to be in the hospital again, only this time with my son. It felt like an insurmountable task. And I wasn’t ready. Like we as a family had just had the wind knocked out of us and haven’t even recovered yet before we got kicked down again.
The months ahead were filled with lots of ups and downs (not just blood sugar) but being up at night all night monitoring him, and down during the day just literally crying asking God why in the world this had to happen to him. It was like having a newborn again. The level of exhaustion. The lack of sleep, the constant watching, the learning how to feed someone - chart everything, calculate everything. He was a trooper and he is my hero. For months after he would flinch at the needles. Even though that has since subsided (not anything any kid should have to get used to), we still have a lot to learn and deal with…. and I’m still waiting to feel like we will be “back on track”. That summer things were supposed to go back to normal. I beat cancer and we were going to get our life back. I’m still angry about it if I’m being honest. I still don’t “accept” this as his fate. He doesn’t deserve this. And I truly don’t know if we will ever really get back on track ever again because that old life seems like it was a movie I watched once that I just kind of remember. I think maybe that “movie” is the ideal dream of our family that I have in my head of what I think it’s supposed to look or be like. Maybe that dream is wrong and dead or maybe I need to surrender it… BUT whatever the case- we move ahead. We keep going. And we choose joy. Something I used to say during cancer treatment. CHOOSE joy.
My testimony today is that the life of my son was spared in August 2021. That year ended with a certain kind of pain, but in the end he is still here, alive and breathing. No matter what he has to deal with- he has the ability to deal with it because God has given him the gift of life and the chance to continue to live it after it was nearly snuffed out. My testimony today is that there is joy in the mundane and even in the difficult. We can always find something to be joyful and thankful for if we look. And if we focus on it, it becomes more clear and defined. I want to allow the anger I feel to dull and blur into the background so I can allow the joy to take up the whole lens… until eventually the anger disappears altogether.
Thank you Jesus for saving my son’s life. Thank you for insulin. Thank you for the medical staff that saved him and cared for him over the course of those days spent in the hospital and thank you for his doctors who take such excellent care for him now. Thank you for allowing me to be his mom and for helping us deal with the insurmountable on the daily. My testimony today is that when we look to God for our strength, He will carry us through times we surely couldn’t walk or even crawl through on our own. He is always faithful. 🤍