Lukas Caldwell

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Lukas Caldwell Raising awareness for my rare disease, Parry Romberg Syndrome.

12/08/2023

PRS may have some basis in genetics, but scientists are not sure. Lukas' twin brother Ben does not have PRS, suggesting ...
11/08/2023

PRS may have some basis in genetics, but scientists are not sure. Lukas' twin brother Ben does not have PRS, suggesting that a genetic link may not be that strong.

"Guess how old I was in this picture"
09/08/2023

"Guess how old I was in this picture"

Since he was 7 years old, Lukas Caldwell, now 18, has struggled to feel “normal” as he was diagnosed with Parry-Romberg ...
08/08/2023

Since he was 7 years old, Lukas Caldwell, now 18, has struggled to feel “normal” as he was diagnosed with Parry-Romberg Syndrome. The condition causes the skin and soft tissues on one side of his face to progressively deteriorate.

This means that Lukas is gradually looking less and less identical to his twin brother, Ben, who does not have the same condition. Growing up, Lukas states that he “suffered with self confidence”, but the remarkable relationship between the competitive siblings brought solace to him, as Ben has been his “biggest support.”

To the surprise of his schoolmates, Lukas started posting disease awareness videos on his TikTok account, amassing over 2 million followers. The high achieving teen, desires to just be himself and spread positivity in any way he can.

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