04/08/2024
It always breaks my heart when families from less fortunate countries contact me about getting their child started on a treatment but cannot access it due to money constraints or limited access to healthcare. Please, please consider helping this sweet boy get started on enzyme replacement therapy (one of the FDA approved treatments that Roman & Stella have been on for years). They live in Pakistan and are desperately trying to help their son🥺💔
I am from Pakistan. .y 1.5 year old son diagnosed naimann pick disease. Unfortunately in our country it’s treatment not available. His liver and spleen increasing day by day. Need xenpozyme injection. Which is costly and need to import from other country. I am doing private job I can’t a
