09/01/2025
I never “long” post but if you can give me 3-5 mins of your time.
I have Menieres Disease. It’s an inner ear disorder that (For Me) causes severe vertigo, tinnitus, ear fullness, pitch changes in ear, nausea, can cause hearing loss (over time) , confusion, brain fog, extreme exhaustion, sometimes hard to get your thoughts out,can cause anxiety and/or depression due to the symptoms .
I had my 1st case of Vertigo in 2018 waking up and placing my feet on the floor and stood to find out I had zero balance and immediately fell to the floor confused at what was happening to me. My husband rushed me to ER and that’s when I found out what it was. After that visit I continued to have it Sometimes for mins, then days then weeks. I saw all types of Doctors from PCM, Neurologist, Allergist, physical therapist, chiropractor, ENT and Audiologist (which now manage my care). I was diagnosed by ENT in 2019. I’ve tried all types of care from being in chairs flipping me all upside trying to reposition ear crystals, laying on tables with warm forced air blowing in my ears to activate vertigo for a study, meds, diets, even YT suggestions lol etc… I could go on and on.
For me…flares can last from 5-14 days in MY experience. I am completely debilitated for days, I can’t drive, cook, clean, work, sometimes a simple trip to restroom is a struggle. I can’t get out of bed, need darkness, & silence. I try to get up but nausea, hot flashes and dizziness take over. After the first couple of days I can lay still and try and watch TV sometimes. I try my best to manage a certain diet and stress to avoid but sometimes it just happens. I get so frustrated and like any human ask why me…..
My New year started off rough, BUT GOD! Jan 2-today I’ve been in Bed. I woke up this morning full and just giving GOD thanks for balance and clarity and it was placed on my heart to share my testimony for awareness not sympathy and hoping this helps someone so I had to be obedient.
Each day I wake I thank him for another day and the simple things such as placing my feet with complete balance and that my flares don’t happen as often as they use to.
Just know this is not just my battle but also my family’s and friends. I thank GOD for them!
Be kind to those that fight silent battles. Everyone requires something different. Everyone doesn’t look like what they are going through. If someone tells you they are experiencing something, do your own personal research for understanding and to help if u can. Ask them what they need in those moments and try to oblige.